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FALL 2007


12th Annual Lou Gehrig Sports Awards Benefit Successful Duane Reade/ Yankee Campaign


president's message

Dear Friends, This year, with your generous support, the Greater New York Chapter has been able to again expand programs, increasing our funding for both research and patient services. Our Chapter is serving more patients, expanding clinic hours, providing additional support group meetings and increasing the number of medical and augmentative communication equipment on loan. In addition, we have added in-home and respite care services through the Barry Barkoff Respite Care Program. Thanks to the hard work of our ALS advocates in New York State, our Chapter has received support from the State to expand our clinics and patient programs. On a federal level, our Chapter advocates have made a difference in encouraging legislation to advance our cause. Our own New York Congressman, Eliot Engel, introduced the National ALS Registry Act (H.R. 2295), which passed the full House Energy and Commerce Committee on September 27th 2007. This important achievement moves the Bill forward to the final stage of the legislative process in the House of Representatives. Finally, keep your eyes open as we roll out a new look in future Chapter publications. The ALS Association has unveiled a dynamic new logo, shown below, and theme line that underscores its commitment in the fight against Lou Gehrig's Disease. The new logo of the ALS Association ­ a hand touching a vibrant red-letter "A" ­ visually represents its unending, heartfelt pledge to fight on every front to improve life for those living with Lou Gehrig's Disease. The visual identity reflects The ALS Association's three focused areas of expertise and commitment: research, advocacy, and comprehensive care and support services for all PALS. It has been an exciting year for us at the Chapter. With your support, we look forward to continuing to grow our commitment to serve the hundreds of people living with ALS in greater New York and northern and central New Jersey. Best Wishes,


116 John Street, Suite 1304 New York, NY 10038-3301 800.672.8857 ·


INTERIM CHAIRMAN . . . . . . . . . Richard Rose CHAIRMAN EMERITUS . . . . . . . . John L. Ernst CHAIRMAN EMERITUS . . . . . . . Alan R. Griffith PRESIDENT . . . . . . . . . . . . . . . Dorine Gordon VICE PRESIDENT . . . . . . Wendy Schriber, Esq. TREASURER . . . . . . . . . . . . . . . W. Marc Lane SECRETARY . . . . . . . . . . . Elizabeth Rosenberg


Alice Claar; Arthur I. Grayzel, MD, FACP, MACR; Lennard Katz; David Lubars; Gerry Lukeman; Kevin McGovern; Rodney W. Nichols; Jason Perline; Ray Robinson; Peter Rosenberger; Marilyn Safenowitz; Pierre Schoenheimer; Gleniss Smith Schonholz

Honorary Board

David Cone; Lynn Cone; Bob Costas; Judy Gilbert; Rod Gilbert; Sally John; Tommy John; Vicky Sbarro; Dick Schaap*; Teresa Wright* * In Memoriam Newsletter Editor: Kate McNamee Cover Photo: The 4-foot "Strike Out ALS" baseball used in the onfield ceremony, signed by the New York Yankees.

Dorine Gordon


Susan Hufford, board member of the Greater New York Chapter and trustee on the National Board of The ALS Association, died on November 28th, 2006 after a year-long battle with cancer. After her husband, Emmy award winning actor, Michael Zaslow's death in 1998, Susan played a leading role in advocacy efforts, joining the Chapter's Board as Public Policy Chair and serving as a trustee on The ALS Association National Board. As president of Michael Zaslow's ZazAngels, Susan worked tirelessly to raise awareness and funds for ALS by producing five Broadway Theater benefits, including Tuesdays with Morrie starring Jerry Stiller which raised over $1 million for ALS research. In 2005, Susan published Not That Man Anymore: A Message from Michael, written by Zaslow and Hufford, which chronicles Michael's year-long battle with ALS.


To lead the fight to cure and treat ALS through global, cutting-edge research,and to empower people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.



Fall 07

12th Annual Lou Gehrig Sports Awards Benefit

Honoring Claire and Leonard Tow

On November 1, 2006, supporters of the Greater New York Chapter gathered for the 12th Annual Lou Gehrig Sports Awards Benefit at the Marriott Marquis New York. Claire and Leonard Tow were honored with the Jacob K. Javits Lifetime Achievement Award in recognition of their leadership in the fight against ALS. In 1999 Claire was diagnosed with ALS. The Tows have since donated millions of dollars to medical research to eradicate ALS. With Bob Costas as Presenter and Jeremy Schaap as Master of Ceremonies, the Benefit also honored New York Yankee great, Yogi Berra, and captain of the 1980 United States Olympic Hockey Team, Mike Eruzione with the Lou Gehrig Sports Award in recognition of their personal and professional achievement. For yet another year, BBDO showcased humorous videos, highlighting the athletes, and a moving profile of PALS, Adele Zinberg and Marlene Fraehmke and their families. After accepting his award, Yogi Berra offered inspiring words to the attendees by remarking, "I never met Lou Gehrig. But the great Bill Dickey, the one who `learned me all his experience,' was Lou's roommate and closest friend. And he told me all about him. He told me he could do everything on a ball field. He told me about his dignity and humility. He didn't have to tell me about ALS ­ we've lost too many people too young to this terrible disease. Thinking about my good friend Catfish Hunter, it's very hard. But we can't give up. All of us need to keep the faith, keep pitching in, keep working. We can't stop." The Benefit raised $900,000 for the Greater New York Chapter, supporting patient services and research programs.

Leonard Tow receives the Jacob Javits Lifetime Achievement Award from Dinner Co-Chair, Larry Rand.

13th Annual Lou Gehrig Sports Awards Benefit New York Marriott Marquis, October 24, 2007 Honoring: Chris Evert, Joe Girardi, Jackie Robinson For info: Call 800.672.8857 or visit

Tom and Marlene Fraehmke select an item to bid on at the silent auction.

Pictured above (left to right): Master of Ceremonies, Jeremy Schaap; Presenter, Bob Costas; Awardees, Yogi Berra and Mike Eruzione; Chapter President, Dorine Gordon and Chairman Emeritus, Alan Griffith. Fall 07 ALS­NY 3

Welcome to Our New Board of Directors and staff


Lennard (Lenny) Katz is a Partner of Katz Realty Group in Little Neck, NY. Katz Realty is a family-owned real estate business that owns and manages apartment buildings in New York City's outer boroughs and has been in business for over 40 years. Katz is a Board Member of the Rent Stabilization Association (RSA), an advocacy group for New York City property owners. He was also a National Vice President of the MDA in 2005 and 2006. Katz served as Chair of the Chapter's 2006 Long Island Walk to D'Feet ALS© and will serve as Chair of the 2007 Long Island Walk. Katz lives on Long Island with his wife, Amy, and has two children. His father, Sheldon, was diagnosed with ALS in 1982 and died in 2004.

Greater New York Chapter Receives Over $300,000 in Grants

The Milton and Marilyn Safenowitz Foundation provided $100,000 for The Milton Safenowitz Post Doctoral Fellowship for ALS Research. Adding Love and Support, founded by the friends and family of Barry Barkoff, who lost his battle with ALS in March 2005, raises funds to provide respite care through The ALS Association Greater NY Chapter. A grant of $85,000 was awarded in 2006 to establish a respite care program on Long Island. Helen Hoffritz Charitable Trust supported The ALS Association Greater New York Chapter's equipment loan program with a grant of $55,000. Ride for Life provided support for the ALS clinic at Stony Brook University Hospital with a grant of $30,000 and also awarded $30,000 for ALS-specific research. The Christopher and Dana Reeve Foundation awarded The ALS Association with a grant of $7,500 for our home visit program. The Hyde and Watson Foundation awarded The ALS Association Greater New York Chapter $5,000 to purchase new computer equipment. Joseph Alexander Foundation provided $5,000 to support The ALS Association Greater New York Chapter's patient services programs.


Kevin McGovern is Chairman and CEO of McGovern Capital LLC, which provides Intellectual Property Rights Strategy, and originates, structures and implements capital formation, joint ventures and business alliances. McGovern Capital is one of three owners of the largest manufacturer and worldwide seller of carbon filters for water and air purification. A graduate of Cornell University, McGovern is currently a member of the Board of Trustees (Co-Chairman of Technology/IP Committee). He was one of the three founders of South Beach Beverages, producers of SoBe products. McGovern is a Fellow of the Foresight Institute which focuses its efforts upon nanotechnology. McGovern is also the Co-Chairman of the Silver Shield Foundation.


Adele Marano, LCSW, joined The ALS Association Greater New York Chapter as Director of Patient Services in September 2006. She is responsible for the management and implementation of the Chapter's patient services programs. Prior to joining The ALS Association Greater New York Chapter, Marano served as Director of Operations at MIC-Women's Health Services from 1999 to 2004. Her previous experience also includes serving as Director of the Planned Parenthood of New York City Margaret Sanger Clinic for five years. Marano received her Bachelor of Science in Education and Master of Social Work degrees from New York University. Marano was one of the five founding board members of the Chapter.

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Last Chance to Take Advantage of the Pension Protection Act

The Pension Protection Act of 2006 was signed into law to allow people who are 70-1/2 or older to make charitable donations of up to $100,000 directly from their IRA to a nonprofit without paying income tax on the distribution. The Act expires at the end of 2007, therefore your opportunity to take advantage of this incentive is running out. If you are 70-1/2 or older and have a traditional or Roth IRA, consider using it to make a gift to The ALS Association Greater New York Chapter. Please consult with your tax or financial advisor for making a charitable contribution through your IRA.

Duane Reade and the New York Yankees Team Up to "Strike Out ALS"

In a pregame ceremony on April 18, members of the Duane Reade management team and New York Yankee, Jason Giambi, took the field to "Strike Out ALS". In a unique partnership, the New York Yankees and Duane Reade teamed up to raise funds and generate awareness for ALS by selling $1 paper baseballs at the retailer's 248 stores from April 19 through June 11. keep up the momentum, The Yankees will present the 4-foot baseball that has been autographed by the entire team to be auctioned at the 13th Annual Lou Gehrig Sports Awards Benefit on October 24th. The campaign was the inspiration of Duane Reade company manager and Woodbridge Walk to D'Feet ALS Chair, Abby Anderson. Abby approached her employer with the

For information on bidding on the 4-foot autographed baseball, visit:

Duane Reade executives, Dave D'Arezzo, Jim Scarefone, Jeff Thompson and Abby Anderson with Jason Giambi, representing the New York Yankees"

The campaign was a huge success for Duane Reade, the Yankees and the Chapter with $157,067 raised for patient services and research. The New York Yankees celebrated the success of the campaign by inviting the three top fundraisers along with Duane Reade's Vice President of Marketing, Jeff Thompson, to appear at home plate on July 20th. To

idea of raising funds for ALS by selling paper baseballs. Duane Reade, a New York Yankees corporate sponsor, partnered with the team to promote the campaign. Abby inaugurated the Woodbridge Walk in 2004 in honor of her father and PALS, Ira Anderson. Ira died 3 weeks after the Walk was held.

Students, Inspired by Duane Reade, Hold Fundraiser for ALS

After seeing the New York Yankees and Duane Reade's successful "Strike Out ALS" campaign, Yeshivah of Flatbush High School students decided to join the fight against ALS. In honor of Linda Mandelbaum, a PALS and secretary of the YOF college guidance department, the students organized a basketball/soccer tournament, soliciting sponsors from local merchants and families and charging $20 per student to participate on a team. The students raised $8,146 to benefit patient services and research.

Students from Yeshivah of Flatbush with tournament trophies.

Fall 07



National ALS Advocacy Day

Congressman Eliot Engel (Democrat-17th) introduced the ALS Registry Act (H.R. 2295/ S.1382) in the House of Representatives.

From Monday, May 14 through Wednesday, May 16, ALS advocates from fifty states gathered for The ALS AssoPictured from left to right: (top row) Jackie Reinhard, Theresa Lewis, Peter Vinci, Peter John Vinci, Bernadette Vinci; (center row): Mary Lewis, Phyllis Silver, Ann Vinci, Kayvan Freeman, Jody Wiesel, Marie Castronovo; ciation's National ALS Advo(bottom row) Stan Silver at the Conference's candle light vigil. cacy Day and Public Policy Conference in Washington, DC. The Chapter represented Greater New York and Northern New Jersey with 48 delegates, including 5 PALS, reaching out to 28 U.S. Representatives and our New York and New Jersey Senators. On May 15, the ALS Registry Act (H.R. 2295/S.1382) was introduced in the House of Representatives by New York Congressman Eliot Engel (Democrat-17th) and Nevada Congressman Lee Terry (Republican-2nd) and in the Senate by Nevada Senator Harry Reid (Democrat).On September 27, 2007 the full House Energy and Commerce Committee unanimously passed the ALS Registry Act (H.R. 2295). The bill now heads to the House floor for a vote, the final stage of the legislative process in the House of Representatives. The Committee's action comes just over three months after the bill was reintroduced in the 110th Congress. The subcommittee's action reflects the strong bipartisan support generated by ALS Association Chapters and advocates from across the country. A total of 274 House Members ­ well over a majority ­ and 50 Senate members have signed on in support of the bill. Pictured from left to right: (top row) Abby Anderson, Marcia Anderson, New Jersey Rep. Mike Ferguson (Republican-7th), and This conference marked the 10th year for The National ALS Tom Fraehmke; (bottom row) Marlene and Christian Fraehmke Advocacy Day and Public Policy Conference. Past successes

6 ALS­NY Fall 07

national advocacy

include: increased annual funding for ALS research from $15 million to more than $53 million; the enactment of historic legislation to waive the 24-month Medicare waiting period for people with ALS; legislation authorizing $290 million in funding to improve and expand the availability of respite care services; and securing nearly $1 million in Congressional funding to establish the building blocks for a national ALS Registry at the Centers for Disease Control and Prevention (CDC).

New Jersey advocates with New Jersey Rep. Rush Holt (Democrat-12th) (center left)

PALS, Fern Cohen, Advocates for ALS in D.C.

Although able to communicate to her U.S. Representative and Senators with an Augmentative Communication device, PALS, Fern Cohen, also left behind a letter so she could tell her full story. "I was teaching French, Spanish, and English as a Second Language in a high school in East Harlem, when I began to trip and fall inexplicably, and my speech started to slur. Once an avid bicycle-rider and in top shape, I now felt a cloud of fatigue cutting my workouts short. It was 2003, I had received my coveted tenure. I was fluent in three languages and was proud of the place I had carved out for myself, including a fulfilling and rewarding teaching career, and a co-op apartment. Along the way, I had completed a Masters degree at NYU too. Slowly, my world began to fall apart and finally in January, 2004, I knew the reason why. ALS was robbing me of my abilities, and I learned I was dying." Today, I can no longer speak and I need my wheelchair to get around. Always fiercely independent and self-sufficient, I now rely on aides 24/7 to help me with the most basic tasks ­ toileting, showering, cleaning etc. My respiration is failing, and I use a ventilator at night, and for a few hours during the day. I was always on the go; now, I am forced to plan out every activity, every outing. But through it all, I choose to live and fight to find a cure, because now there is none."

Pictured from left to right: Ellita Lewis, New York Rep. Carolyn McCarthy (Democrat-4th), Jackie Reinhard, Mary Nagle, Fern Cohen and Louise Foley

Fall 07



state advocacy

New York State Advocacy Day 2007

Above: Advocates from The Greater New York and Upstate Chapters with Senator William Stachowski (Democrat-58th) (center) at New York State Advocacy Day in Albany, NY. PALS include Fern Cohen, Jeff Dunlap, John Gunlogson and Chris Pendergast (not pictured).

Senator Charles Fuschillo (Democrat-8th) sponsored New York State's ALS Awareness Day in Albany for a second year on February 12th. Senator William Stachowski (Democrat-58th) greeted the Chapter's delegates and provided them with encouraging words towards their efforts. 21 PALS, family members and caregivers met with approximately 30 legislators and their staff to educate them about ALS and the services the Chapter

provides. The Chapter aimed to gain support to strengthen our existing patient services programs and outreach PALS in the underserved areas of the state. Westchester Walk to D'Feet ALS© Chair and ALS advocate, Bill Monti, secured a proclamation from New York State, announcing that May was "ALS Awareness Month".

Senator Golden Honors Student for Spreading ALS Awareness

On February 13th, Jenny Hynes was honored by State Senator Martin Golden (Republican-22) with a resolution to recognize her efforts, which included raising funds for the Greater New York Chapter. Jenny, a 2006 graduate of Public School 222, raised funds with the help of her teacher, Ms. Trinka, by selling "Never Give Up" bracelets, paper baseballs and raffling off Walk to D'Feet ALS© tee shirts. In July, Senator Golden issued a proclamation commending Jenny "for her display of outstanding citizenry in support of ALS." The resolution, passed on February 13th, was presented on the Senate floor.

Duane Visits Chapter Office

Jenny Hynes and family with Senator Martin Golden (R-22). 8 ALS­NY Fall 07

ALS supporter, New York State Senator Thomas Duane (Democrat-29th) meets Greater New York Chapter President, Dorine Gordon, and Executive Director, Jackie Reinhard at the Chapter office on July 11.

The Als Association greater new york chapter

116 John Street New York, NY 10038 800-672-8857

annual report

Year Ending January 31st, 2007


Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, is a fatal neuromuscular disease that attacks the motor neurons in the brain and spinal cord that control voluntary muscle movement. As these cells or motor neurons die, the muscles they control become weak and then nonfunctional. As the disease progresses, people with ALS become paralyzed, while their minds usually remain unaffected and aware of their bodies' deterioration. ALS became known as Lou Gehrig's Disease when the New York Yankee great died of it in 1941. Outside of the United States, ALS is often referred to as Motor Neuron Disease.


To lead the fight to cure and treat ALS through global, cuttingedge research, and to empower people with Lou Gehrig's disease and their families to live fuller lives by providing them with compassionate care and support. As one of The ALS Association leading chapters, the Greater New York Chapter plays a major role in promoting the mission of The ALS Association by . . . Providing a comprehensive range of support services for patients and their families in the Greater New York area including New York City's five boroughs, Long Island, Westchester and Rockland counties and northern and central New Jersey. Funding aggressive, cutting edge research to find a cure that utilizes the newest techniques and fosters collaborative initiatives among government agencies, the private sector and scientists. Supporting The ALS Association's national advocacy program to expand government support of research and elicit programs to make treatments and care accessible and affordable for all ALS patients. Heightening awareness of ALS in order to stimulate volunteerism, scientific and healthcare community activism, and public support that is essential to the fight against ALS.


ALS can strike anyone. It occurs throughout the world with no racial, ethnic, or social-economic boundaries. ALS is not a rare disease. Over 5,600 people in the U.S. are diagnosed with ALS every year--15 new cases every day. Each year, the number of people who learn they have ALS is about the same as those who find out that they have multiple sclerosis. The average life expectancy of an ALS patient is two to five years from diagnosis. About 20% live five years or more and up to 10% will survive more than ten years. ALS is not contagious. Approximately 5 to 10% of ALS is familial, occurring more than once in a family lineage. The care of an ALS patient can cost up to $200,000 per year, depleting entire savings of patients and relatives. While there is no cure for ALS, with the proper medical management and support, people with ALS can lead more independent and productive lives.


ALS­NY Annual Report

Fall 07


The ALS Association is recognized as the preeminent organization in the quest to conquer ALS, setting the gold standard for world-class ALS research in the 21st century. We are guided by rigorous scientific standards and a spirit of collaboration with other organizations across the United States and around the world. The ALS Association research program, led by a science director with more than 10 years of research experience, promotes collaboration among scientists while exploring innovative directions that embrace promising but unproven approaches. Because of its stringent review process, the research program celebrates credibility among the scientific community. This cutting-edge research program utilizes these strategies . . . TREAT ALS. Launched in 2005, this initiative capitalizes on scientific and technological progress to accelerate drug discovery and realize effective new therapies for ALS independently and collaboratively. Investigator-Initiated Research. This program awards grants for innovative starter and one to three year research projects of high scientific merit and relevance to ALS. Scientists are encouraged to shape their research to learn the fundamentals about ALS. A prestigious review panel selects those studies which offer the greatest hope in unlocking the mysteries of ALS. The ALS Association Initiated Research. The ALS Association is taking the lead in identifying research to capitalize on new technologies, follow promising leads and explore scientific horizons. The Milton Safenowitz Post Doctoral Fellowship for ALS Research. A unique opportunity for recently graduated scientists to be on the cutting edge of scientific discovery. This fellowship program encourages bright young investigators to enter the field of ALS. Scientific Workshops and Symposia. To generate new research ideas and stimulate research applications from investigators new to ALS, ALSA holds scientific workshops throughout the year to bring together ALS researchers and non-ALS investigators renowned in their respective specialties to explore specific ALS-relevant topics.


Revenue from all sources for the fiscal year of The ALS Association Greater New York Chapter ended January 31, 2007 was $3,413,836, an all time high. Included in this amount is $165,980 in in-kind donations of equipment used for our equipment loan program. A copy of our complete audited financial report or our current 990 is available upon request. EXPENSES*

10% Surplus Replenishment 9% General Administration 9% Fundraising 22% Research 8% Public Awareness and Education 3% Advocacy 34% Patient Services

5% ALSA national mission

*Extracted from audited financials.

Fall 07

ALS­NY Annual Report



Since 1994, The ALS Association Greater New York Chapter has provided those with ALS and their families with the highest quality of care and support services. Serving over 600 patients with ALS in the Greater New York area, including New York City's five boroughs, Long Island, Rockland and Westchester counties, and northern and central New Jersey, we provide a wide array of services to help people with ALS manage the disease. These services include . . . ALS Clinical Services Centers at Beth Israel Medical Center* in Manhattan, Robert Wood Johnson University Hospital* in New Brunswick, New Jersey, and Stony Brook University Hospital in Stony Brook, Long Island. In fiscal year 2007, The ALS Association Greater New York Chapter sponsored and participated in 86 multi-disciplinary ALS clinic days at these centers, and provided critical care to patients. Monthly support groups for patients and care givers. In fiscal year 2007, we hosted 43 support group sessions for people with ALS, their families, and caregivers, providing a much needed outlet for those living with ALS. In-home visits by a social worker, occupational therapist and/or nurse. In fiscal year 2007, The ALS Association Greater New York Chapter participated in over 96 in-home visits, including wheelchair and home safety and access evaluations, helping to make the adjustments required to increase the comfort of daily life. Educational programs on research advances and patient care. In fiscal year 2007, we sponsored and organized 3 "Ask the Experts" conferences, providing patients, families, and caregivers the opportunity to meet with care experts and researchers to learn about innovative ALS treatments and research for a cure. Elliot W. Dann Augmentative Communications Program. In fiscal year 2006, The ALS Association Greater New York Chapter provided 76 assistive communication devices to 72 patients. This program helps patients find ways of communicating when speech is no longer possible by loaning communication equipment while awaiting insurance approval, or if such equipment is not covered by insurance. Harold and Ruth Lopatin Transportation Program. In fiscal year 2007, we provided over 100 rides to people for over 47 people with ALS to clinic appointments and support group meetings--people who otherwise would not have access to multi-disciplinary clinical care. Jon Stone Equipment Loan Program. In fiscal year 2007, The ALS Association Greater New York Chapter loaned 228 assistive devices and medical equipment to 178 patients to assist in maintaining the safety, comfort, and maximal functioning of the person with ALS. In-service trainings for local health care professionals. In fiscal year 2007, we conducted 5 training sessions for health care professionals to learn about the needs of ALS patients and how best to work with them.

*The ALS Association Certified Center of Excellence


ALS­NY Annual Report

Fall 07


An important aspect of The ALS Association Greater New York Chapter's work is raising awareness about ALS and advocating for legislation critical to those living with ALS.

Each spring, chapters of The ALS Association from across the country travel to Washington, D.C. for National Advocacy Day and Public Policy Conference. In 2006, over 700 delegates representing 43 states went to Washington to meet with their Representatives and Senators to ask for co-sponsorship of the ALS Registry Act (H.R. 4033/ S. 1353) and to allocate funding for ALS in the Department of Defense. THE ALS REGISTRY ACT The ALS Registry Act (H.R. 4033/S. 1353) would authorize the Centers for Disease Control and Prevention to create and maintain a single nationwide ALS registry. The establishment of a national ALS registry will help identify the incidence and prevalence of ALS in the U.S. and collect data which is urgently needed for ALS research, disease management, and the development of standards of care. A national ALS registry also will promote a better understanding of the disease, help to determine causes of ALS and significantly enhance the nation's efforts to find a treatment and cure for ALS. DEPARTMENT OF DEFENSE APPROPRIATIONS ACT Studies, including those conducted by the Department of Defense (DOD), Department of Veterans Affairs and researchers at Harvard University, repeatedly have shown that ALS occurs at a greater rate in military veterans. By including ALS in the DOD's Neurotoxin Exposure Treatment Research Program, Congress will enable important ALS research to continue at DOD, help to determine why those in the military are at a greater risk of the disease, and ensure that our nation takes appropriate action to protect the health and lives of our military men and women. Importantly, research conducted by the Department of Defense will also yield important clues and data about ALS that will benefit all people suffering from the disease and will help make progress in finding a treatment and cure for ALS. Due to the dedication and hard work of ALS patients and their families and supporters, previous accomplishments from National Advocacy Day efforts include: Passage of the historic legislation to eliminate the 24-month Medicare waiting period for people with ALS. Increased annual federal funding for ALS research from $15.1 million in 1998 to an estimated $50 million in 2006, including funding from the National Institute of Health, the Department of Defense, and the Department of Veterans Affairs. Establishment of a presumptive disability ruling for ALS at the Social Security Administration, helping to ensure timely access to disability benefits for people with ALS. Two Congressional hearings dedicated solely to ALS, including a hearing held in 2005 by the Senate Appropriations Subcommittee on Labor and Health and Human Services. Most other diseases have not been the sole subject of a Congressional hearing, let alone two in less than five years.

Fall 07

ALS­NY Annual Report



We extend our warm and sincere gratitude to all of our generous contributors from February 1, 2006 to January 31, 2007.


Knock Out Circle ($25,000 and Above)

CSC Holdings Inc. Mr. and Mrs. Alan Griffith The Tow Foundation, Inc. Mr. Jason Perline Mr. and Mrs. Michael Price The Rudin Foundation, Inc Mr. and Mrs. James Simons Mr. and Mrs. Vincent Giffuni Mr. Don Giovanello Dr. and Dr. Arnold P. Gold Goldfarb and Abrandt Salzman and Kutzin LLP Dr. Alan Goldstein Ms. Barbara Goodbody Dr. Arthur Grayzel Dr. and Mrs. Henry Greenberg Mr. and Mrs. John Gregor Hans E. Schapira MD Foundation Mr. Jerome Heller Mr. and Mrs. Richard Heller Ms. Jean Henning Dr. and Mrs. Frederic Herter Mr. and Mrs. Amos Hostetter, Jr. Mr. Jerry Hostetter Hungry Man Inc. IF Hummingbird Foundation, Inc. Mr. William Ingram Inserra Supermarkets Mr. and Mrs. Hamilton James Jane Stern Family Foundation Inc. Mr. Evan Janovic Mr. Robert K. Johnson Joseph and Arlene Taub Foundation Mr. Ernest Kalman Mr. and Mrs. Harold Kamine Ms. Renee Kaplan Ms. Audrey Katz Mr. Sandy Koufax Mr. William Kraus Mr. Matthew Kutcher Mr. and Mrs. Charles Lachman Ms. Mary Lou Lagoy Ms. Elisa Lane Mr. and Mrs. Leonard Lauder Dr. and Mrs. Donald Lebell Lee and Cynthia Vance Foundation Mr. and Mrs. Harvey Leeds Mr. and Mrs. Martin Leibowitz Dr. and Mrs. Thomas Lentz Levitt Family Foundation Mr. and Mrs. Sanford Levy Mr. and Mrs. Steven Levy Mr. Victor Lipman Ms. Mollie Parnis Livingston Mrs. Lizanne Lodge Ms. Ruth Lord Mr. and Mrs. John Lowy Mr. Gerry Lukeman Mr. George Malin Mr. Matthew Mallow Mr. Milton Maltz Mr. and Mrs. Marlowe Marcus Mr. Michael Margitich Mr. Wally Marks Mr. and Mrs. John McGillicuddy Ms. Jean Messler Mr. Howard Milstein Mr. George Moore Mr. and Mrs. Gary Muhrcke Mr. Peter Murphy Mr. George Nichols Mr. and Mrs. James V. O'Halloran Mr. and Mrs. David O'Hayre Mr. Benjamin Ohrenstein, Esq. CPA Opus Business Forms and Papers Patriot Media and Communications LLC Ms. Ellyn Charleston Phillips Mr. and Mrs. Joshua Polan Realty Holdings of America LLC Robert Wood Johnson University Hospital Foundation Mr. David Rockefeller Mr. N. Anthony Rolfe Mr. Richard Rose Rose Family Foundation Mr. and Mrs. Steven I. Rosenfeld Mr. David Z. Rosensweig Mr. Stewart Rosner Mr. Howard Rubenstein Mr. and Mrs. Steven Russ Mr. Hubert Schlafly Mrs. Gleniss Schonholz Ms. Wendy Schriber, Esq. The Schwartz Family Foundation Mr. and Mrs. David E. Shaw Mr. Michael Sheehan Showtime Networks, Inc. Mr. and Mrs. Jeffrey Siegel The Honorable Howard Silver Mr. and Mrs. Jeff Silver Mr. Jeffrey Simek Mr. and Mrs. Lawrence Small Mr. and Mrs. Silas Larry Smith Ms. Judith Speiser Mr. and Mrs. William Lewis Steele Mr. and Mrs. Richard Stewart Mr. Peter Sundman Mr. Milton Stern and Ms. Rosalie Wolf Mr. Robert Stone Mr. and Mrs. Joel Thea Unisys Corp Mr. and Mrs. Norman Vale Mr. Harold Varmus Mr. and Mrs. Robert C. Waggoner Ms. Cheryl Wiesenfeld The Wilderotter Foundation Mr. and Mrs. William Williams Ms. Mitzi Willingham Mr. Ross Wilson Mr. Robert Witten Mr. Terry Woodard Mr. Daniel Ziff Mr. and Mrs. Dirk Ziff Mr. Robert Ziff Mr. and Mrs. Robert Zimmer Building Technologies Inc. Ms. Kendra Burke Ms. Carolyn Calkins Ms. Elizabeth Callahan Ms. Betsy Campbell Mr. G. Scott Clemons Ms. Peggy Coppola Ms. Jo-Ann Danzis Mr. John E. Decker Dowd Marketing Inc. Ms. Katherine Doyle Ms. Barbara Epstein Ms. Lynda Evans Mr. and Mrs. Herbert Feinberg Fiduciary Trust International Ms. Martha Fischhoff Ms. Patricia Fox Ms. Marylee Garber Ms. Hazel Gass Mr. and Mrs. John Gibbs Ms. Lucretia Gilbert Ms. Dorine Gordon Ms. Karen Gormley Mr. and Mrs. Murray Greene Mr. and Mrs. Andrew Gundell Mr. Andrew Hart Ms. Barbara Heckman Ms. Susan Hufford Mr. and Mrs. Charles Hull Ms. Jennifer Karpf Ms. Sandie Keidan Mrs. Laura Knipe Kobritz and Company Inc. Ms. Elisa Lane Mr. and Mrs. W. Marc Lane Ms. Audrey Laufer Mr. Allan Lenzner Ellen Levine Literary Age Ms. Miriam Lipstein Mr. and Mrs. John Lowy Ms. Jennifer Lowy Mr. and Mrs. Charles Maneri Ms. Judith Miller Ms. Patricia A. Muenzhuber Mr. Jason Perline Ms. Ellyn Charleston Phillips Mr. and Mrs. Christopher L. Pope Mrs. Elizabeth Rosenberg Ms. Mary Rower Ms. Vicky Sbarro Ms. Wendy Schriber, Esq. Mr. and Mrs. Charles Senecal Mr. and Mrs. Frederick Slater Mrs. Joy Sonders-Garber Timken Latrobe Steel Mr. and Mrs. Allen Trainer Ms. Jill M. Ungashick Ms. Mary Urrico Mr. and Mrs. Scott A. Vermilyea Warren County Foundation Depository Dr. David Weaver Ms. Lynn Woods Ms. Barbi Zakin

$50,000 ­ $99,999

Adding Love and Support, Inc. Helen Hoffritz Charitable Trust Ride For Life, Inc. Mr. and Mrs. Robert Schwab

($2,500 ­ $4,999)

Anonymous Bryan Cave LLP C-BASS Mr. Steven C. Davidson Ms. Connie DiGeronimo Ms. Michelle Ferguson Ms. Dorine Gordon Mr. Michael Marocco Mitsui and Co. (USA), Inc. Mr. Robert J. Mueller New York Mercantile Exchange Ms. Regina S. Rickless Mrs. Elizabeth Rosenberg The Whitehead Foundation

$10,000 ­ $49,999

Mr. and Mrs. John Bahnken Mr. John DeLiso Mr. Vincent Darragh Laurie Kayden Foundation Northport High School PS 235 Social Committee

Grand Slam Circle ($15,000 ­ $24,999)

Bank of New York Mr. and Mrs. Julian Brodsky Mr. and Mrs. Michael Connelly Kekst and Company Mr. and Mrs. Gerry Lenfest Tishman Speyer Properties LP

$5,000 ­ $9,999

Anonymous Charity Begins at Home Mr. David Cohen Mr. David Enders Mr. Robert A Friedman The Hyde and Watson Foundation Mrs. Ruth Lopatin Mr. Adam Moss Patti's Drive For a Cure

(Up to $2,500)

ACT 11 Partners Ms. Janet Adler Advance Newhouse Partnership AE Charitable Foundation Mr. and Mrs. John Allen Alliance Bernstein Matching Gift Center The Alpert Family Foundation Anreder and Company, Inc. Apfelbaum Family Foundation Mr. William Armistead Automatic Data Processing Mr. and Mrs. Harry Axelowitz Ms. Ilene Axelowitz Mr. and Mrs. Mark Axelowitz Dr. Walter Baer Mr. Howard Balley Bank of New York Mortgage Company LLC Mr. and Mrs. Maurice Barbash Baron Realty Associates Mr. Michael Barrett and Ms. Leslie Tomkins Dr. and Mrs. Alexander Bearn Mr. and Mrs. James Benfield Mrs. Belle Bennett Mr. and Mrs. Frank Berger The Betty and Norman F. Levy Foundation Mr. and Mrs. Frank Biondi, Jr. Ms. Alice Blank Mr. and Mrs. Edward Bleier Mr. George W. Bodenheimer Mr. John Brademas Mr. and Mrs. Marvin Brown Mr. and Mrs. Matthew J. Brown Mr. and Mrs. William Brown Ms. Laraine Caplan Mr. John Chalsty Ms. Maxine Clark Mr. and Mrs. Joseph Collins Commerce Bank Dresner's Restaurant Mr. Bryan F. Duffy and Ms. Melissa Maloney Ms. Sonya Dunham Ms. Madaleine Egelfeld, Esq. Federal Express Corporation Geese Peace

Touchdown Circle ($10,000 ­ $14,999)

Abercrombie and Fitch Management Co. The Abernathy/ MacGregor Group Aon Risk Services BBDO New York Beth Israel Medical Center Bresnan Communications Bristol-Myers Squibb Pharmaceutical Research Comcast Corporation CommScope Conoco Phillips Company Crew Cuts Emmet Marvin and Martin, LLP Mr. and Mrs. Louis Friedman Mr. Gerald Hassell Hearst Corporation Hershey Foods Corporation Innisfree M & A Inc. Mr. and Mrs. Philip L. Milstein Mr. Peter Morgenstern The News Corporation Foundation New York Marriott Marquis New York Yankees Foundation Mr. Rodney Nichols Partner Reinsurance Co. of U.S. Mrs. Marilyn Safenowitz The Schoenheimer Foundation Skadden, Arps, Slate, Meagher and Flom LLP Mr. and Mrs. Thomas Stephenson Mr. Henry Swieca Tyco International (US) UBS Warburg The Wilf Family Foundation Mr. Terry Woodard

$1,000 ­ $4,999

Mr. Keith Albertina Baron Realty Associates BNY Securities Group Co. Campus Text Inc. Mr. Michael Cohen Ms. Lillian Colbert Mr. and Mrs. Michael Corsi Dears Foundation, Inc. Mr. and Mrs. Robert De Verna Ms. Teresa Donahue Mr. Peter Ehrhardt Mr. James Essey Mrs. Lenore Frankel Mr. and Mrs. Samuel Friedman Mr. Robert Gay Hofstra University Dr. and Mrs. Alan Houghton Mr. Herb Ingham Mr. DeVyan Jeffreis Dr. Yohan Jeffereis Joy and Steve Rudy Charitable Foundation Inc. Ms. Jennifer E. Jult Mr. and Mrs. Lawrence Kleinberg Mr. Vincent Laurenzano Ms. Lois A. Lenahan Long Island Lawyer's Softball League Inc. Long Island Plumbing and Heating Wholesalers Association Inc The Louis Feinberg Foundation Dr. and Mrs. Robert Matz MCJ Foundation Mrs. Jeannette Deutsch Oglesby Old Oaks Foundation, Inc. Mr. and Mrs. Anthony Panzica Mr. Jayesh Patel Mr. and Mrs. Joshua Polan The Richard F. Walsh/Alfred W. DiTolla/Harold P. Spivak Foundation Mr. Peter Rosenberger Mr. and Mrs. Frank P. Sahaj


Ms. Sarah Adair Ms. Mary Alderfer Anonymous Ms. Carol E. Appelbaum Ms. Elizabeth Pynchon Beckett Ms. Katie Benetos Mrs. June Boswick Mr. and Mrs. Stephen Breskin Mr. Richard Brock

($5,000 ­ $9,999)

Black Entertainment Television Davis Polk and Wardwell Dr. Linda Faraci Feil Family Foundation Fleischman and Walsh LLP Mr. and Mrs. W. Marc Lane


$100,000 and over

Milton and Marilyn Safenowitz Foundation


ALS­NY Annual Report

Fall 07

Mrs. Vicky Sbarro Mr. Steven Schneider Mr. and Mrs. Pierre Schoenheimer Ms. Hilda Semel Mr. Sanford Sirulnick Mr. Richard R. Snape Tuckahoe Eastchester Lions Club Mr. William Tuttle Mr. and Mrs. Mark Weiss Ms. Mae Zeher Mr. and Mrs. David Zinberg

$500 ­ $999

American Ramp Systems American Medical Alert Corp. Mr. John Bradwell Brae Burn Country Club Mr. Robert B. Busby and Friends Ms. Elizabeth Campbell Common Cents New York Mr. John Durante Empowering Access Mr. and Mrs. Joseph Esposito Mr. James Farina Ms. Michelle Ferguson Fidelity Charitable Gift Fund Frangeli Consulting and Remodeling Inc. Mr. and Mrs. Paul Guenther Mr. and Mrs. Victor Gumper Mr. and Mrs. Adam Hodes Ms. Christine Hopkins Mr. Jonathan Jaramillo Mr. Ken Justak Mr. Ernest Kalman Mr. and Mrs. Thomas V.A. Kelsey Mr. and Mrs. Paul Laurenzano Ms. Bebe Leon Mr. and Mrs. Sidney Lerner Mr. and Mrs. Richard Levenson Lynn and Robert Zimmer Family Foundation Ms. Nancy Marx Mr. Anthony Messina Millennium Health Care Inc. Mr. Rodney Nichols NYSSRC-SEC Inc. Olympia Sports Mr. and Mrs. David Orenstein Pella Windows and Doors PS 222 Mr. and Mrs. Lawrence Rand R.B. Howes and Company, Inc. Mr. and Mrs. Anthony Riley Mr. and Mrs. Allen Rosenberg Mr. Richard Saunders SI Bank and Trust Foundation Smiths Medical PM Inc. Mr. and Mrs. Barry Strugatz Sugar Bun Bake Shop Inc. Ms. Mary Sullivan Mr. Joseph Uanino Ms. Sally E. Unger Mr. and Mrs. Mark J Wilson Mrs. Sheryl Parker Zinberg



Melvyn Allen Ms. Phyllis Troy

Abby Susanne Anderson Ms. Mindy Zimmerman and Ms. Sandra Glazer Marcia Anderson Ms. Mindy Zimmerman and Ms. Sandra Glazer Jean Angell Mr. and Mrs.Winthrop Rutherfurd, Jr. Allyn Arden Mr. J. Miguel Peman Barkoff Family Ms. Carolyn Singer Charles Bedford Ms. Jill Pepe Deborah Berniker Mr. Jamie Scott Berniker Mr. and Mrs. Jeffrey Greenwald Burtoni Bernstein Ms. Evelyn Bennett-Bernstein Malina Brown Ms. Mady Brown Angelo Campanella Ms. Camille D'Amico Donald Campbell Mr. Michael Hyland John Cariano Mr. and Mrs. John J. Cariello Leigh Cascarella Mr. and Mrs. Marcello Caira Raymond Catanzano Mrs. Arlene Catanzano Alex Cathcart Ms. Amy Stivelman Valerie Chambers Dr. and Mrs. Henry Ginsberg Carol Clark Ms. Eileen Kavanagh Mr. and Mrs. Charles Ness Mr. Morris Orenstein David Chilcoat Dr. and Mrs. Frank Jones Andrew Decter Mr. Ivan Scharer David Deutsch Mr. and Mrs. Vinnie Conlon Mr. and Mrs. John Kovacs Dr. and Mrs. John T. Oglesby Phil Diffley Ms. Mary Marsigliano Mary Ellen Downey Mr. and Mrs. Jefferson Alverna Ms. Margaret A. Feeney Ms. Arlene Isermann Mr. and Mrs. Mark Stewart Ms. Elizabeth Thomason Donald Drescher Ms. Jean Bernstein Karl Ehrhardt Jack Elwood Ms. Jen Sielicki Mr. Marc Soloway Robert Fellows Mr. and Mrs. Stephen Fellows Mr. and Mrs. Thomas Noonan Mr. Charles Snyder Ms. Virginia Willis James P. Ferraro, Sr. Ms. Barbara Cassidy Ms. Arlene McGuire Muriel Fierman Mrs. Elizabeth Rosenberg Rory Finn Ms. Maureen Finn-Patterson

Frank Louis Forcina Ms. Diana Forcina Marlene Fraehmke Mr. and Mrs. Eric Betz Mr. and Mrs. Edward Rzeszowski

Susan Harrington Fiduciary Trust International Ellie Hattenback Mrs. Carol Bishop Eugene Hattenback Mrs. Carol Bishop

Gladys Maneri Ms. Nancy Dennigan Salvatore Maneri Anonymous Robin Marcus Mr. Daniel Goldberg

Ricardo Romero, Sr. Mr. A. Acosta Mr. and Mrs. Edwin Arteaga Elizabeth Rosenberg Ms. Joanne Nussbaum

Ryan Levine Honors Grandfather's Legacy

Ryan Levine's family is committed to finding a cure for ALS, as his grandfather, Milton Safenowitz, passed away from the disease over seven years ago. In addition to participating in the annual Walk to D'Feet ALS©, Ryan (front row, center) donated $1,000 of his Bar Mitzvah money to The Greater New York Chapter in memory of his grandfather.

Denis Giordano Mr. and Mrs. John Krause Laura G Mr. and Mrs. John Buonviaggio William Galda Ms. Brandy Galler Ronald Garber Mr. Gregory Burke Deb Giacalone Mrs. Joy Sonders-Garber Mark Goodman Ms. Christina McLaughlin Dorine N. Gordon Dr. and Mrs William Greenberg George Gordon Mr. Hun Chung Mr. and Mrs. Andrew Nitzberg Mr. and Mrs. Max Nitzberg Mr. and Mrs. Ira Rosenberg Mr. and Mrs. Richard Schwartz Mr. Howard Silverman Mr. and Mrs. John Yekel Joseph Gray Mr. Michael Byrne Estherann Grayzel Mr. and Mrs. Robert Polstein Alan Griffith Mr. and Mrs. Charles Gray Howard Gursky Mr. and Mrs. Stanley Upbin Lafe Hagen Mr. Kenneth Hagen Laurie Hanneman Anonymous

Marc Herman Mr. Richard Kopp Mr. and Mrs. Jeffrey Murphy Norma Hess Mr. and Mrs. Nick Gargiulo Herb Ingham Mr. McNamara Jemma Mrs. Elizabeth Reisman Gregory Jones Ms. Helen Addis Joseph Jozak Mr. and Mrs. Richard Jozak Cornelius Keating Mr. Michael G. McDonough William Kempner Ms. Mary Ellen Graulich Kathryn Schnarr Kenney Mr. and Mrs. Martin Logan Joel Kolen Mr. and Mrs. Paul Topper Edith Kravitz Ms. Sandy Kornfeld Mario Kwong Mr. Kenneth B. Oplinger Herbert Lagin Mr. and Mrs. Stanley Harrison Bebe Leon Ms. Lauren Altchiler Chris Long Mr. Robert Culley Pam Lyon Ms. Eileen Trenain Dr. Mackler Mr. Howard Hirsch

Peter J. Marintsch Ms. Della Marintsch Patti Matuszewski Ms. Maureen O'Connor Greg McDonald Ms. Carol Lange Sally McLaughlin Ms. Eileen McEnroe Fanshien and Leslie Mellis Mr. and Mrs. Bernard Model Patricia Memoli Mr. and Mrs. Demetri DeBiase Solomon Mendelson Mr. and Mrs. David Leibowitz Minnie Myers Dr. and Mrs. Henry Ginsberg Ms. Mary Singleton Betty Paul Mr. Royal E. Blakeman Chris Pendergast Mr. & Mrs. James Colon Ms. Ruth Davidowitz Ms. Diane Doherty Mr. and Mrs. John Kovacs Ms. Mary Ann Mercurio Mr. and Mrs. Anthony Porraro Mr. and Mrs. Peter Stahl Ms. Susan Stracquadanio Pat Pratt Mr. and Mrs. Gabriel DeSantis Ellen Reach Anonymous Ray Robinson Mr. Arthur Weinstock

Kathryn Ross Ms. Barbara Haag John Rubenstein Mrs. Elizabeth Rosenberg Daniel Rubin Cathy Daniels Ltd. Mr. and Mrs. Jonathan Miller Mr. and Mrs. Joseph Stubbins Marilyn Safenowitz Mr. and Mrs. Sidney Bashein Ms. Cindy Gold Mr. and Mrs. Aaron Safenowitz Seymour Schneidman Mr. Royal E. Blakeman Bryan Schonfeld Ms. Sylvia Holder Stanley Schreiber Mr. and Mrs. Fred Mircoff Ron and Anna Schwartz Mr. and Mrs. Harold Schwartz Samuel Schwartz Ms. Terri Sperber Marcy Shapiro Ms. Myn Becker Thomas Shea Halvar S. Enger Rosemarie Sherry Ms. Maureen Courtney Ms. Diane L. Drahos Mr. and Mrs. Edward Pascocello John Slesiona Mr. William Barbeosch and Ms. Marta B. Varela

Fall 07

ALS­NY Annual Report


Frank Stefurak H.W. Good Company Bradford Stein Mrs. Susan Stein Virginia Tirpak Ms. Helen Breure Ms. Carrie Voorman Jennifer Tobin Ms. Nancy Miringoff Claire Tow Mr. Michael Barrett and Ms. Leslie Tomkins Leonard Tow Mr. and Mrs. Jules Hirsh Thomas S. Turgeon Mr. Peter Guilmette Dick Van Dyke Mr. Royal E. Blakeman Lucy Wax Ms. Leatrice Tieman Mr. and Mrs. Adam Wax Arthur Weinbach Mr. Stephen Doherty Richard Weintraub Ms. Amy Weintraub Ann Wolf Ms. Rita Grayson Kezhou Xie Anadigics, Inc. Georgann Yurtin Mr. and Mrs. John Witkowski Rona Zandell Mr. and Mrs. Scott Cohen Adele Zinberg Ms. Edith Kaplan Ms. Marian Schwartz Mr. and Mrs. David Zinberg Mrs. Sheryl Parker Zinberg Bennie Zobel Mr. and Mrs. William Wundeler Moshe and Debby Zwang Ms. Beverly Weinstein

Mr. and Mrs. Andy Bhatia Mr. and Mrs. Mark Boland Mr. and Mrs. Richard Borisoff Ms. Diane Grubbs Mr. DeVyan Jeffries Dr. Yohan Jeffereis Ms. Beth Johnson Mr. and Mrs. Fred Levine Ms. Elaine Libman Mr. James Meinhold Mr. and Mrs. Robert Quirk The Reidy Family Mr. and Mrs. David Siegfried Mrs. Pearl Trachtenberg Ms. Robin Vogel Ms. Elaine Zamore Ms. Carole Zarlin

John Antonacci Floyd Elementary Sunshine Club Mr. Jerry Giardina Ms. Barbara Iannone Mr. and Mrs. Benjamin Katzen Mr. and Mrs. Steven Nathan Ms. Maryann Siano Barbara Appelbaum Ms. Ronni Rubin Bolger Glen Appleyard Mr. and Mrs. Michael D. Golden Marie Aprigliano Ms. Elisa Cuevas Mr. and Mrs. Gregory B. Metzler

Eddy Bachman Ms. Bernice Rosenshein Mona Bachman Mr. Theodore Campo William J. Banyar Ms. Bernardette Atti Mr. and Mrs. James Carroll The Colton Family Foundation, Inc. Mr. John Dahill Donnelly Ms. Jennifer Frost Mr. and Mrs. Henry Hamburger Immaculate Heart Academy Parent's Club Mr. and Mrs. Michael Insinga Mr. and Mrs. Andrew Kent Mr. Richard Kitaeff

Arnold Bart Mr. and Mrs. Ferdinand Avolio Ms. Marguerite Burt Bill Barvin Mrs. Marcia Barvin Ms. Lori Gold Hector Basora Ms. Jerilyn Farrell Champness J. Battista Mr. and Mrs. James Hughes William Battista Mr. and Mrs. James Hughes Mrs. Estelle Baumgarten The Applebaum Foundation

"FOR THE LOVE OF JEMMA" Walk team raises over $100,000 for a second year!

In her role as captain of "FOR LOVE OF JEMMA" Walk to D'Feet ALS Team, Cathy Miller spearheaded two letter writing campaigns raising $101,657 in 2005 and $106,809 in 2006. Currently, there are 150 Walks to D'Feet ALS® nationwide, with FOR THE LOVE OF JEMMA being the most successful fundraising team in both years.


Louis Abelson Mr. and Mrs. Robert Bernstein Blossom Abrams Ms. Lesley Levine Mr. and Mrs. Rod Offenkrantz Aurelia Acevedo Ms. Eleanor Rosenblatt Fredrich Ach Mr. and Mrs. John Foley Florence Adler Ms. Paulene Reynolds Clifford Aitken Mr. and Mrs. Howard Mall Irene Akalski Ms. Deborah Akalski Mr. and Mrs. Frank Akalski, Jr. Harry Albertina Mr. Keith Albertina Mrs. Lillian Albertina Thomas Albertina Mr. Keith Albertina Mrs. Lillian Albertina Anthony Allocco Mr. and Mrs. John Burlew FPEA Mr. and Mrs. Dave Mandzak Robert Alter Mr. and Mrs. Mel Barbell

Marie Amoroso Mr. and Mrs. Robert Conio Mrs. F. Jean Richards Mr. and Mrs. Stephen Zaderiko Tasos Anastasiou Dr. Donald Birnbaum Ms. Susan Epstein McKinley School Fund IS-259 Mr. and Mrs. Christos Papaiacovou Mr. and Mrs. Stelios Stamoulis Mr. and Mrs. Antonakis Tannousis Gary Andersen Mr. and Mrs. Charles Brown Mr. and Mrs. Joseph D'Aquila Mr. and Mrs. John Gaw Ira Anderson Mr. and Mrs. Stephen Cespuglio Mr. and Mrs. William Matelski Ms. Celeste Racano Mr. Aaron Woitkowski Ms. Mindy Zimmerman and Ms. Sandra Glazer Victoria Andes Mr. William Andes Ruth H. Andrews Ms. Donna Flye Jerry Antipas Mrs. Virginia Anagnos

Abe Apsel Ms. Ellyn Charleston Phillips Ms. Alice Claar Mr. Richard Essey Mr. and Mrs. Allen Finkelstein Ms. Patricia Freiberg Ms. Felicia Gordon Mr. and Mrs. Tommy John Ms. Edith Merrit Mr. and Mrs. Victor Mutnick Mr. Rodney Nichols Mr. Benjamin Ohrenstein Mr. and Mrs. Lawrence Rand Mrs. Jacqueline Reinhard Ms. Diane Russ Mr. and Mrs. Stephen Saltzman Ms. Vicky Sbarro Ms. Marilyn Simon-Gersuk Ms. Nancy Venner Dr. Jody Wiesel Ms. Sarah Wood Ruth Apsel Ms. Felicia Gordon Ann Arcaro Mr. and Mrs. Gregory Arcaro Esther Archie Mr. Woodard Archie Mary Auer Mr. Raymond J. Auer Ms. Stephanie Dlugolecki Diane Azznara Ms. Magdalena Wojda

Ms. Barbara Kleckley Mr. Charles Kuruc Ms. Irene Kuruc Ms. Maryann Labella Mr. and Mrs. George Lawson Mr. Brian Lowe Mr. and Mrs. David Lowe Mr. and Mrs. Thomas Lowe Mr. and Mrs. Graeme McMeekan Ms. Ruth Ann Michalski Ms. Mary O'Dea Ms. Anne Shannon St. Peter Academy Home School Association Mr. and Mrs. Howard Vogel Mr. and Mrs. Dennis Weiss Mr. and Mrs. John Yuhasz Mrs. Donna Orsini Yuppa Paul Baranski Ms. Bonnie Adams Stuart Barish Ms. Gussie Barish Barry Barkoff Mr. and Mrs. Jack Fischer Ethel Barmatz Joan Bogart Antiques Ltd. Phyllis Barnett Mr. and Mrs. Ira Dubowy Anthony Barone Mr. and Mrs. Allen Rogers Ted Barr Mr. and Mrs. Thomas Srednicki

Mary Beaton Mrs. Yolanda Helen Lyons Bill Beck, Sr. Mr. and Mrs. Martin Scherer Fiby Benchimol Mr. Albert Benchimol Dr. Stephen Bender Mrs. Reva Wolitzky Phil Bentivena Mr. Thomas Catuogno Robert Berg Mr. and Mrs. Eric Harris Carolyn M. Berger Ms. Lauren McNally and Mrs. Caroline Zambrano Myra Berger Mr. and Mrs. Steven D. Berger Ms. Carol Sym Tillie Berger Mr. and Mrs. Jack Berger Walter Bergman Mr. and Mrs. Edward Hecht Frank Bering Ms. Marilyn Lindenbaum Irvin Berkman Mr. Bruce Berkman Bruce Berman Phi Kappa Sigma Burt Bernstein Mr. and Mrs. Christopher Nelson

Mary Jane Bianco Mr. and Mrs. Fred Barbagallo Lillian Bien Mr. and Mrs. George Akst Ms. Anna Berger Mr. and Mrs. Sol Drabkin Mr. and Mrs. Sheldon Grossman Ms. Susan Herbert Ms. Barbara Horowitz Mr. and Mrs. James McCullough Ms. Diane Sakatis Ms. Pauline Schwartz Ms. Arline Strassberg John Bird Mr. Spencer Krigsman Donna Blachard Ms. Carolyn Shults Donald Black Mrs. Patricia Black Ruth D. Bogen Ms. Elizabeth Bogen Ms. June Shapiro Sylvester Bongiorno Ms. Mary Bongiorno Janice Bonomo-Lamont Mr. and Mrs. Robert Biribin Mr. and Mrs. Allen Bloch Brookside School Social Committee Citrus Trading Associates Mr. and Mrs. Charles Cocchiaro Ms. Dorothy Courtright Mr. and Mrs. Stephen Dobish Ms. Joanne Ehlermann Elmwood Park Senior Participatns Mr. and Mrs. Anthony Hacker Ms. Genevieve Incao Mr. and Mrs. Edward Langan Mr. and Mrs. Paul Mercogliano Ms. Eileen Miller North Jersey-Rockland Chapter SHRM Mr. and Mrs. Donald Panarotto Mr. and Mrs. Steven Pavlovia Mr. and Mrs. Peter Pera Mr. and Mrs. Ralph Piano Mr. and Mrs. Eric Reff Mr. and Mrs. Angelo Restivo Mr. Arthur Sabatini Stainless Emporium LLC Mr. and Mrs. Dennis Stern Ms. Rhoda Tarnoff Patricia Bonsangue Mrs. Iris Yarnold Nicholas Borzeka Ms. Chris Borzeka Mr. and Mrs. John A. Borzeka Ms. Sophie Borzeka Ms. Jean Hecht Sean Bowler Mr. and Mrs. Philip Bursky Stephen Bradley Anonymous Mrs. Diane Bradley Mr. and Mrs. Thomas Catalano Mrs. Suzanne B. Hollifield Mr. Eric Lipp Mr. and Mrs. Samuel J. Meisels Herman Braunschweiger Mrs. Dorine Braunschweiger Anne Brisk JP Morgan Chase Ms. Elaine Mulligan


ALS­NY Annual Report

Fall 07

Ned Brody Ms. Alan Brandt Alice Brooks Mr. and Mr. Edward H. Barnett Mr. and Mrs. Edward Prescott Laura Brooks Mr. and Mrs. Ben Fruchter Thomas C. Brown Ms. Edna Brown Florence Bruckner Mr. Irving and Mr. Gary Fromowitz Josephine Brunetti Ms. Helen Perrone Richard Bryant Ms. Andrea Bryant Ms. Cheryl Bryant Mr. Donald Bryant Mr. Frank Rodrigo Luther Buckbee Ms. Ruth Buckbee Eugene Buckley Mr. and Mrs. Robert Buckley George Budabin Mr. and Mrs. William Fisher Edward Budzilowicz Anonymous Michael Buith Mr. Charles Hannafin Margaret Burbage Mr. and Mrs. Carl Peterson Thomas Burns Ms. Joan Burns Elsie Burroughs Ms. Janet Burroughs Charles Burrows Mr. and Mrs. Michael Allgaier Ms. Patricia Mulligan Ms. Colleen M. O'Reilly and Mrs. Barbara Burrows Winnifred Burton Mr. and Mrs. Marvin Lundt Thomas E. Byrnes Mr. and Mrs. Anthony Porraro David Campbell Ms. Margo Kane James Canova Mr. and Mrs. John Canova Rita Capezzi Ms. Michelle Henn Vincent Carella, Sr. Ms. Maria Carella Edward Carey Mrs. Barbara Carey Edward Carroll Mrs. Pat Carroll Susan Casner Mr. and Mrs. Jack Blumenthal Mr. David Ives Ms. Martha Ives Dr. Steven Lee Ms. Betty Lerner Ms. Lucy B. Sardell Mr. and Mrs. Paul Shapiro Jack Cassidy Mr. Daniel Schmidt Thomas Catanzano Mr. and Mrs. Daniel Barna Mr. and Mrs. Sven Raymond Berglowe Mrs. Arlene Catanzano Mr. Jeffrey Gerard Mr. and Mrs. Steven Kwiat

Mr. and Mrs. Edward McGahan Ms. Cynthia Diane Price Victor Cavasinni Mrs. Ann Cavasinni Paul Censoplano Mr. and Mrs. Joseph Nocera Jacob Chan Dr. Renate Safrin George Chapman Dr. Dewayne Brown Robert Cheesman Ms. Eileen McCann Richard Chrisman Belmar Teacher's Association Denim Day Peter Ciccarone Mr. and Mrs. Irving Klein Tony Clavel Ms. Virginia Pitbladdo Donald Clayton Ms. Michelle Henn Mervin A. Cohen Mr. and Mrs. Edward Brown Edward S. Cohn Mrs. Stephanie Cohn Ed Cohn Mr. Bernard Borks Mr. and Mrs. Robert Kahn Carol Colbeth Ms. Gay Bolich Rose Marie Collishaw Mr. Domenick Muro Theresa Comiskey Ms. Jean Kelly Michael Confino Mr. Bradley Bernstein Joseph Connors Mr. and Mrs. John Deegan Insurance Service Office Inc. Ann Conti Mr. Nicholas Conti Annette Cooper Mr. and Mrs. Lawrence Reynolds Abby Copper Mr. Murray Wess Samuel Corbett Mr. and Mrs. Andrew Gold Michael Corcoran Mr. and Mrs. Robert Gary Allen Mr. and Mrs. Francis Reidlinger David Core Mrs. Ann O. Greenberg Margot L. Coscia Ms. Debra Coscia Joe Cotrone Mr. and Mrs. Vincent Cotrone Ms. Milagros Vargas John H. Crawford Mr. Samuel Hill Mr. Robert Pyle Ms. Margaret Shields Mr. Gary Stass Gary Cromer Ms. Esther Handler Ken Cryer Mr. Donald Conover Rosemarie Collishaw Mr. Dominick Muro Patrick Cunningham Mr. Mark Black Okey Plumbing and Heating, Inc.

Philip Curran Mr. Daniel Burzinski Karen Cuzzi Ms. Linda Kreussling Helen Czajka Mr. and Mrs. Richard Corcia Madeline Dalton Mr. and Mrs. William Dalton Dolores A. Daly Mr. Shawn Daly Margaret Daly Ms. Theresa Larkin Helen Damm Ms. Barbara Pirozzi Elliot Dann Mr. Asher Dann Gifford-Rudin Foundation, Inc. Mr. and Mrs. Ronald Unger Archibald Darragh Mr. and Mrs. George Georgiadis Mr. and Mrs. Benjamin Gerace Ms. Donna Morena Mr. and Mrs. Anthony Pilewski Mr. and Mrs. Robert Templin Mr. and Mrs. John Ward Daniel D'Avino Mr. Roasario Accarino William H. Davis Mr. and Mrs. David Dias Mr. and Mrs. Frank LaBarge Margarita De La Rosa Mr. and Mrs. Charles Saumell Mario DeCardillo Mr. and Mrs. Domingo Handal Philip Decter Mr. and Mrs. Arnold M. Marrow Mr. and Mrs. Robin M. Wexler Bill Deede Ms. Elizabeth Ernst Mr. Glenn Siss Ms. Leslie White Arthur Del Vescovo Ms. Judy Del Vescovo Lawrence A. Deliso Mr. John DeLiso Marie DeMarino Mr. and Mrs. Teddy Loschiavo Cosma DeNichilo Mr. Brandino Cacallori Mayor and Mrs. Jim Cahill Mr. and Mrs. Charles Carlan Ms. Joann Chiamese Mr. Stephen Chiamese Mr. and Mrs. Robert Dalby Ms. Nicola DeNichilo Mr. and Mrs. Gene DeStefano Mr. and Mrs. Randall Essex Mr. and Mrs. Warren Frank Ms. Stacy Fysz Ms. Denise Hunt Ms. Jackie Inneo Mr. and Mrs. Joseph Ippolito Mr. and Mrs. Gregory Kereakoglow Mr. and Mrs. John Loomis Mr. Hatch Mott MacDonald Mr. and Mrs. Albert Mellini Mr. and Mrs. Frank Misischia Ms. Barbara Piel Mr. and Mrs. Gregory Ploussas

Ms. Anna Procopio Ms. Jacqueline Ulrich Ms. Carol Walczyk Mr. and Mrs. Lawrence Williamson Ms. Maureen Whelan Anthony M. DeNunzio Ms. Catherine DeNunzio Sonia Derman Mr. Emanuel Derman Dorothy DeStefano Ms. Denise Messemer William Deutsch Mr. and Mrs. Ronald J. Nevers Aurelio A. DeYoanna Mrs. Elizabeth De Yoanna Rodney O. Dickerson Ms. Edrie W. Dickerson Dorothy DiGregorio Mr. and Mrs. John Jazombek Adem Dinc Ms. Ethel Adler Mr. and Mrs. Alan Gold Ms. Arlene Weberg Kathy DiNoia Mr. and Mrs. John Palmero Vincent DiResta Mrs. Mary Ann DiResta Frederick L. DiStaso Ms. Mirza Dominguez Mr. and Mrs. Steve Gentile Mr. and Mrs. Julian Knaster Ms. Caroline Koski Mr. and Mrs. Richard Koski Mr. and Mrs. Stan Koski Mrs. Evelyn Rivera Ms. Madeline Sullivan Mr. and Mrs. Eugenio Vera Ms. Doris Viruet Ms. Sonia Viruet Frank X. Donovan Ms. Alice Corrigan Mr. and Mrs. James Egan Mrs. Rita Egan Mr. and Mrs. Robert Ferris Robert Dowell Mr. and Mrs. Douglas Geneen Mr. Robert Hyman Donald Doyle Mrs. Mary Doyle Gregory Drescher PSI Summit Hospital, Inc. Mr. and Mrs. Charles Leiwant Ms. Carole Obohoski Mr. and Mrs. Philip Stoll Blanche Drillick BRD Foundation Howard Druss Mr. and Mrs. David Barocas Jennifer Dunham Mr. and Mrs. David Zinman Richard Dwoinen Mr. and Mrs. Alex Dwoinen Gerald Eckstein Mrs. Gwen Eckstein HymanEgelfeld Ms. Jeanette Aronowitz Ms. Diane and Ms. Susan Borko Mr. and Mrs. Allan Botter Ms. Annamarie Brown Ms. Bruna L. Debase Ms. Madaleine Egelfeld Mr. Darrell L. Gavrin Ms. Francine Genser Ms. Marguerite Grays Ms. Ilene Kass

Ms. Karen Koslowitz Mr. and Mrs. Marc Kramer Ms. Carol Levy Ms. Martha Mangot Mr. and Mrs. Robert F. Marks Ms. Edwina McKinnon Ms. Barbara S. Odwak Ms. Phyllis Krulik Saxe Mr. and Mrs. Clifford H. Stein Mr. Sidney F. Strauss Ms. Sally E. Unger Ms. Elisabeth Vreeburg Ms. Kathleen Ward Ms. Lori Zimand Elizabeth Eisenhardt Ms. Elizabeth Maurer Marc Enderle Mr. and Mrs. Timothy Berrios Joanne Enders Mr. David Enders Mr. and Mrs. Daniel McDowall Mary Engelbert Ms. Jeanette Bruzzese Ms. Ann Marie Quinn Mr. Philip V. Sarcione Mr. and Mrs. Paul Sibilio Theodore Engert Mr. and Mrs. George Rocklein Charles Engle Ms. Barbara Lovato Madeline Esposito Diageo North America Foundation Inc. Mr. and Mrs. Joseph Esposito Mr. and Mrs. Brian Falvey Ms. Catherine J. Falvey and Ms. Mary T. Gardner Mr. and Mrs. Christopher J. Falvey Mr. and Mrs. Daniel P. Falvey Dr. and Mrs. Kevin J. Falvey Mr. Peter A. Falvey Ms. Sharon H. Falvey Mr. and Mrs. Stephen P. Falvey Mr. and Mrs. Timothy L. Falvey Mr. William J. Falvey PB Capital Corporation Mr. and Mrs. Andrew E. Woodtli Estelle Mrs. Shirley Bart Ezequiel Faisea Mr. and Mrs. Alvaro Coelho Nicholas Falcone Mr. James Clark Dr. Benjamin Falk Ms. Betty Karsh Edmund Faltermayer Mrs. Frances C. Faltermayer Frank Farese Mr. and Mrs. Joseph Monus Anna Farrelly Mr. and Mrs. Edward Dropp Martin Fasciana Brooklawn Sunshine Club Susan Favor Mr. and Mrs. Thomas Marsico Michael Fealy Mrs. Mary Fealy Selma Fein Mr. and Mrs. Frederick Press Dominic Felico Ms. Rose Felico

James Ferraro Mr. Paul Awramko Ms. Patricia Burke Mr. and Mrs. Jimmie Gonzalez Ms. Lori L. Markarian Mr. and Mrs. Donald Messick Mr. and Mrs. Ronald M. Palko Ms. Frances Sheridan Gloria Ferriola Mr. and Mrs. Frank Ferriola Ellen Fields Mr. and Mrs. Philip Kraus Marvin Fields Mr. John J. Annunziata Ms. Fern Arden Ms. Marion Fuhr Mr. and Mrs. George Gurin Mr. and Mrs. John Kramer Dr. and Mrs. Herbert Mittman Mr. and Mrs. John Murphy Ms. Maria Nachmann Our Lady of Mercy Medical Center Radiology Department Ms. Victoria Rivera Mr. and Mrs. Kenneth Silverman Ms. Sandra Tenenhaus Mildred Firstenberg Ms. Celia Goldhaber Mr. and Mrs. Randi Jaffe Morris Firstenberg Ms. Elaine Firstenberg Myron Firstenberg Ms. Elaine Firstenberg Judith B. Flicker Mr. and Mrs. Michael Rosenberg Franklin Floyd Mr. and Mrs. Stephen Leibholz Don Folz Mr. John Folz Florence Foster Mr. Eden Foster Kenneth Fox Mr. and Mrs. Harry Fox Jeffrey Franco Ms. Violet Franco Janet Frank Ms. Debbie Pfautsch Phyllis Frankel Mr. and Mrs. George Goldstein Butch Freedhoff Mr. and Mrs. Donald Rosen Marvin G. Freid Mr. and Mrs. Richard Haigh Phylllis Friedman Dr. and Mrs. Yale Pava Seymour Friedman Dr. and Mrs. Gerald Sweder Kevin Frye Mr. Thomas Braun Ms. Patricia A. Frye Ms. Suzanne Kowalczyk Andrew Fuchs Ms. Jennie Iapoce Harriette Furst Ms. E. D. Williamson Harold Gang Mrs. Jane Mulroy John Gannon Ms. Jeanne O'Driscoll Ethel Ganz Mrs. Merle Berg

Fall 07

ALS­NY Annual Report


Diane Garbes Mr. and Mrs. Arthur Gilbert Helen Garni Ms. Susan Masullo Mr. Vernon Smith Alferia M. Garrett Ms. Elizabeth Garrett Fredreique Gasne Ms. Joan Roldan Lillian Gastwirth Mr. and Mrs. Ronald Kramer Gay Mr. and Mrs. Franklin Hannoch Lou Gehrig Mr. C. Deno Gianoukos Thomas H. Gerblick Ms. Mary M. Bertagnoli Mr. and Mrs. Bjorn Hallsson Mr. and Mrs. Robert E. Mraz Mr. and Mrs. Jeff Pedersen Mr. and Mrs. Roy B. Riis Charles Gerena Ms. Monica P. Dekel Mr. Donald Jemella Peter Gesell Mr. and Mrs. Hugh Kirkpatrick Madeleine Gillis New Milford Hospital Laboratory Staff David Gilson Mrs. Wendy Gilson Hilda Glassman Mr. Terry Glassman M. B. Glassman Ms. Carol Feinstein Martin Glickman Mr. and Mrs. Robert Pomeranz Francis J. Goetz Mr. and Mrs. John Holowczak Alan J. Golann Mr. and Mrs. Michael Corsi Bernard Gold Ms. Judythe Schonfeld Harris Goldberg Ms. Fay Schiff Carol Marion Goldman Mr. Michael Goldman Ian B. Goldman Mr. and Mrs. Martin Genee Ms. Sylvia Stone Stanley Goldman Ms. Kristin Carbin Ms. Janine Judge Ms. Carlyn Winston John Goldrick Mr. and Mrs. Joseph Conti Fidelity Charitable Gift Fund Ms. Maureen Greaney Ms. Lesley Harrison Mr. William Janetschek Mr. and Mrs. Richard Kreider Mr. and Mrs. Michael McGoldrick Ms. Laura Newfield Ms. Anne Ramer Ms. Susan Smith William Goldy The Goldy Family E. A. Gomolski Mr. and Mrs. Jack Spengler GeorgeGoodman Mr. and Mrs. Abraham Strum

Richard Goodman Mrs. Ina Goodman Eleanor Gordon Mr. and Mrs. Manuel Finkelstein Mr. Jay F. Gordon Gina Gotfryd Ms. Betty Duani William Gray, Jr. William Gray Estherann Grayzel Ms. Judith Kurzweil Mr. Robert Polstein Mr. and Mrs. Sheldon Raab Ms. Theresa Schwartzman Dolores Green Evemarie Gilfillan Laura Lee Green Mr. and Mrs. John Hamma Isidore Greenbaum Mr. and Mrs. David Barocas Goldie Rogoff Greene Ms. Eilene Frances Greene Daniel Greenidge Mr. and Mrs. J. Peter Clavin Dr. and Mrs. Ossie Diaz Mrs. Karen Ann Greenidge Mr. and Mrs. Phillip Imperato Mrs. Temmy Kocivar Mr. and Mrs. Brian Ryglewicz Robert Greer Mr. and Mrs. Paul Bergins Concept:CARE Mrs. Helen Greer Anthony Grieco Mr. and Mrs. Marcello Caira Everett Griggs Ms. Suzanne Griggs and Ms. Mildred Bowers Mr. and Mrs. William Randazzo Frances Grossane Mr. and Mrs. Ronald Grossane Aaron Groveman Ms. Nancy Laxer George Grunthaler Mr. and Mrs. Roy Kucks Shirley Grunthaler Mr. and Mrs. Roy Kucks Marguerite Guaraldo Ms. Rosalind Guaraldo Estecce Guardino Mr. and Mrs. Roger Gerland Sonny Guerriero Mr. and Mrs. William Southard Donald Guertin Ms. Caryn Kahn Samiran Gulian Mr. and Mrs. John C. Kapas Mr. and Mrs. Dikran Saganda Ann Toole Gunning Mr. and Mrs. Jessine Monaghan Modestine Gustus Mr. Frederick Dickerson Ronald Hackworth Ms. Jane Bridges Ray Hagen Ms. Mary L. Fay Mary Lou Hale Ms. Gail DeSantis Catherine M. Hall Mr. and Mrs. Donald Hoeffner

Charles Hall Mr. and Mrs. Donald Hoeffner Alice M. Hallman Mr. and Mrs. Edward Miller Ballen Mildred Harmatz Mrs. Shirley Bart Sandra Hassel Mr. and Mrs. David Brown James A. Heedles Mr. and Mrs. James Lamprecht Gary Heimsoth Mr. and Mrs. Lawrence Reynolds John Heinrich Mrs. Alice Heinrich Muriel Heller Mr. and Mrs. Robert Schwab Lawrence Helmlinger Ms. Melinda O'Hara Lucrezia Heltz Patricia Hall Mary Hersh Mr. Burt Hersh Adele Hervey Mrs. KathleenAtkins Ms. Dorine Gordon Mr. Gary Leo Mr. and Mrs. Thomas Naples Mrs. ElizabethRosenberg Ms. Nancy Venner Dr. Jody Wiesel Steven Hirsch Mr. and Mrs. John Dias Mr. and Mrs. Harold Grill Mr. and Mrs. Eugene Hattenback Mrs. Marlene Miller Mr. and Mrs. Lance Pomerantz Robert Hodes Ms. Joyce Magnus-Hodes Ms. Ellen Schwarz Ferdinand Hoekstra Mr. Al Piaget Catherine Hoeppner Mr. and Mrs. Robert Hoeppner Anna Homicki Mr. and Mrs. Eugene Homicki Bruce Richard Hoppe Mr. and Mrs. Robert W. Holowinski Loretta Hresko Ms. Linda Hresko Susan Hufford Ms. Carol E. Appelbaum Barbi Zakin Events, LLC Mr. and Mrs. Stephen Breskin Ms. Kendra Burke Mr. John E. Decker Fiduciary Trust International Ms. Martha Fischhoff Ms. Dorine Gordon Ms. Audrey Laufer Ms. Miriam Lipstein Ms. Ellyn Charleston Phillips Mrs. Elizabeth Rosenberg Ms. Vicky Sbarro Mr. and Mrs. Armin Szatmary Warren County Foundation Depository Kenneth Hughes Mr. and Mrs. Jeffrey Adelman Mr. and Mrs. Frank Albergo Mr. and Mrs. Rocco Canonico

Mr. and Mrs. Chuck DeCarbo Ms. Margaret Kempton Mr. and Mrs. James Murer NYSSRC-SEC, Inc. Ms. Fredrica Ordway Dr. and Mrs. Paul Richman Mr. and Mrs. H. Scharlatt Ms. Arlene Smaldone Stony Brook University Hospital Respiratory Care Unit Mr. and Mrs. Thoams Warga Kevin Hughes Ms. Linda McLaughlin Michael Hynes Ms. Joan Pollak Hank Jackson Mr. John K. Jackson Jacob Jaffe Mr. and Mrs. Elliott Wolfe Timothy Jecko Mrs. JoAnn Jecko Robert Jenkins Mrs. Paulette Jenkins Gail Jensen Mr. and Mrs. Damon LaSala Mr. and Mrs. Eugene Lasala Mr. and Mrs. Robert Van Arsdalen Ms. Marilyn Wade Roger Johansson Mr. and Mrs. Mel Eisenstein Ms. Rita Eisenstein Ms. Dora Johansson Jules Mr. David Bernstein Keith Kacanich Mrs. Linda Kacanich Sirpuhi Kahyaoglu Mr. and Mrs. Hakan Leblebicioglu Mr. and Mrs. John C. Kapas Mr. and Mrs. Arthur Saganda Gerson Kaiserman Mr. and Mrs. Terry Karnovsky Ms. Deborah Becker Mr. and Mrs. Joel Gould Mr. and Mrs. Mel Kreines Ms. Angelina Palino Ms. Anne Pridgen Ms. Marcia Schulman Ms. Filippa Terrasi Ruth Kane Mr. Richard Kane Sheldon Katz Mr. and Mrs. Richard Jacobs The David and Cheryl Unterberg Charitable Foundation Trust Abraham Kaufman Ms. Dana Chais Mrs. Kaufman Mr. and Mrs. Martin Scherer Catherine Kealey Mr. and Mrs. Tobias L. Monaco Irma Keenan Acme Heat & Power, Inc. Blackman Plumbing Supply Co., Inc. Ms. Elizabeth Morley Mr. and Mrs. Martin Solomon Mr. Greg Talbot Bernadette Kelleher Mr. and Mrs. William Kurtz Mr. and Mrs. Simon Mauromatis Ms. Theresa Skahill

Michael Kelly Ms. Therese Kelly Vera Kelly Mr. and Mrs. Walter Frank Andres Mr. Walter James Andres Mr. and Mrs. Juan Arroyo Mr. and Mrs. William Barretti Mr. and Mrs. George Burger Ms. Doris Fazio Mr. and Mrs. George Galka Mr. and Mrs. Frank Gilabert Mr. and Mrs. Robert Goldblat Hawthorne Golden Circle, Inc. Mr. and Mrs. Charles Kelly Mr. Joseph Kelly Mr. and Mrs. William Matarazzo Ms. Suzanne Patnaude Mr. and Mrs. Jonathan B. Ratner Ms. Jennifer Siletti Mr. and Mrs. Norman Tirpak Mr. and Mrs. John Vander Brink Hilly Kessler Ms. Faith Smollen Robert Kietel Mr. and Mrs. James Halpin Warren G. Kiuzey Ms. Julianne Kelly Martha Klamm Mrs. Lois Morreale Herman Klein Mr. and Mrs. Harold Gold Sol Klein Mr. Barry Rubin John Kleinegris Mr. Patrick Bellino Mrs. Joan Kleinegris Mr. and Mrs. Preston Palazzo Emil Kling Mrs. Hedy Kling Andy Knipe Mr. and Mrs. Rav Freidel Mr. Patrick Horbac Mrs. Laura Knipe Mr. Richard Knipe Dr. Kobren Mr. and Mrs. Martin Scherer Anny Koby Ms. Lora Reimann Morris Koff Mrs. Renee Becker Allan Kornbluth Mr. and Mrs. Kirk Schloss Frances Kors Mr. and Mrs. Carl Wess Edward Kosek Ms. Gloria Kosek Jeannine Krause Ms. Karen Krause Mr. and Mrs. Joseph Rigolio Jeffrey Krause Mrs. Marjorie Krause Helen Zinn Kreinik Mr. and Mrs. Stanley Kreinik Dorothy Kroeger Ms. Gerda Kroeger Mr. Peter Kroeger Fred D.Kugler Mr. and Mrs. Gerald Gilbert Mr. and Mrs. Howard Gilbert Scott Kunen Ms. Marsha Lamberg Mel Kurtz Ms. Sandra Kurtz

Virginia Kwast Mr. and Mrs. Dennis Krug Edward Labrenz Mrs. Dolores Labrenz Mr. and Mrs. Raymond LoGuidici Milton Lachterman Ms. Betsy J. Matthias Beverly Lader Mr. and Mrs. Richard Cohen Charles Laudati Ms. Beatrice Laudati Jacob H. Lazarowitz Ms. Debra McGarry Mr. & Mrs. Larry McGarry Li Hudson Leathers Mr. John H. Leathers Joseph Leichtman Mrs. Rachel Leichtman Abe Leisten Mr. and Mrs. David Gregory David Leisten Mr. and Mrs. David Gregory Lois A. Lenahan Anonymous Ms. Marianne V. Cattier Ms. Carol F. Hutchins Mr. Waldo Hutchins Ms. Jane D. Keresey Ms. Elizabeth Lenahan Locust Valley Library Mr. and Mrs. Alfred Meyer Mr. and Mrs. William J. Nammack Ms. Margaret S. Peguillan Ms. Kathryn L. Perkins Ms. Jennifer Puritz Ms. Wyndham Robertson Mr. Scott Schiller Ms. Judith Steers Mr. Charles A. Whittingham Irving Lenes Ms. Selma Rothstein Ruth Leonard Ms. Joan Kney Charles Leonardis Ms. Patricia Castellano Mary Leskusky Mr. and Mrs. Vincent Leskusky John Lessard Ms. Sarah Fuller-Lessard Alan Lesser Mrs. Denise Lesser Mollye Levenson Mr. and Mrs. Peter Schneir Audrey Levine Ms. Monica Smiddy Carl Levine Mr. and Mrs. Barry Berger Ms. Marie P DePalo Mr. and Mrs. Andrew D. Hopkins Mr. and Mrs. Sam Flax Mr. and Mrs. Richard Greenblatt Mr. and Mrs. Elliott Kaye Mr. and Mrs. Stuart Kissel Mr. and Mrs. Barry Manson Mr. and Mrs. Jonathan Miller Mr. Marvin Natiss Mr. and Mrs. Abraham Neuman Edith Levine Ms. Mildred Schneider Larry Levine Mr. Bruce Spanier Lawrence Levine Mrs. Jacqueline Levine


ALS­NY Annual Report

Fall 07

Samuel Levine Mr. and Mrs. Lawrence Levine Dorothyanne LevineEdelstein Mrs. Amy L. Levine-Montalvo Mr. and Mrs. Julio Montalvo Kenneth Lewis NYS Office of Alcoholism and Substance Abuse Services Robert Lewis Ms. Elizabeth Ryan Sax Mr. Michael Schiff Shirley Liebenow Ms. Bernice S. Himber Thomas J. Lippmann Mr. and Mrs. Gary Brody Mrs. Susan Lippmann Lou Liszczynsky Mr. and Mrs. Michael Safer Joseph Locascio Mr. Ronald Locascio Christopher Long Mr. Robert Culley Ruth Lopatin Ms. Kayla Carole Chazin Mrs. Muriel Falk Mr. and Mrs. Sherman Firsty Mr. and Mrs. Louis Grunin Ms. Phyllis Cedar Haber Ms. Betty Karsh Ms. Dorothy Kenner Ms. Judith Kleinberger Mr. and Mrs. Arnold A. Offner Ms. Marilyn Offner Mr. and Mrs. Seymour Scharer Sue E. Lore Mr. G.C. Pack Sylvia Lubitz Ms. Lilyan Lewis Rudolph Lucchesi Ms. Eleanore Calace Caroline Lund Ms. Ann Marie Capuzzi Ms. Mariana A. Hernandez Ms. Christine Hildebrand Ms. Virginia S. Hildebrand Jeanne Lurie Ms. Ilene Mark Charles Lusky Mr. and Mrs. Christopher Hane Ms. Carol Nocerino Hyman Lymor Ms. Marilyn Lindenbaum Ms. Irma Lymor Mary Lyons-Beaton Mrs. Yolanda Helen Lyons Muriel Bierr MacArthur Mr. and Mrs. John O. Keim Anne Maccarrone Mrs. Gracine Ehrlich-Dunn Max Mackler Mr. & Mrs. Jeffrey Mitzner Mr. and Mrs. Melvyn Mitzner Sue Maggiore Mr. and Mrs. Marion Mark Mr. and Mrs. Richard Witt Stanley Mahan Mr. Richard Schreiber Helen Mahoney Ms. Margaret Dougherty Sadie Mainenti Glass Gardens Inc.

Thomas Manganella Ms. Mary Ann C. Trilli Benis De Capua Marchitto Ms. Neva Galasso Jerry Marcus Mr. and Mrs. Bradley Nitkin Ms. Joy A. Weiner Martin Marcus Ms. Mindy Zimmerman and Ms. Sandra Glazer Irwin Markowitz Mr. and Mrs. George Goldstein Libby Markowitz Mr. and Mrs. Paul Mark Kevin Marsh Mr. and Mrs. Jake Beebe Mr. and Mrs. Jon Brennan Mr. and Mrs. John Cunha John Hassall, Inc. Ms. Barbara Miller Mr. and Mrs. David Miller Ms. Florence Miller Mr. and Mrs. Frank Miller Ms. Elizabeth Seul Mr. and Mrs. Louis Turnbull

Ms. Dawn Cariello Ms. Mary Ellen Cariello Mr. Leo A. Chester Ms. Martha Coopersmith-Gray Mr. Joseph Costantino Mr. and Mrs. Douglas J. Cranwell Mr. and Mrs. Gabriel DeSantis Ms. Cynthia Dinella Mr. and Mrs. Brian E. Dunleavy Ms. Kate Edelstein Mr. and Mrs. Lawrence Engel Mr. and Mrs. William Ferry Mr. and Mrs. Edwin J. Ford Mr. Manuelito A. Fraga and Ms. Mary Celestina Palis Mr. and Mrs. Joshua S. Friedlander Friends Mr. and Mrs. Francis Gervasio Mr. Stuart Goldberg Mr. and Mrs. Robert J. Gosney Ms. Christina Gray

Ms. Nancy Munick Mr. Masako Murphy Mr. and Mrs. Michael Paul Nelson Mr. and Mrs. Roger Nibert Mr. and Mrs. Scott E Niemiec Pat Smith Chiropractic Services LLC Pheasant Field Bed & Breakfast Ltd. Mr. and Mrs. Timothy Phelan A. Polychronopoulos Mr. and Mrs. R. Martin Price Ms. Christian C. Procaccini Ms. Denise Reece Mr. and Mrs. Michael Rothman Mr. and Mrs. Marshall Ryan Ms. Barbara Schoenthaler Mr. and Mrs. Luis Schuchinski Ms. Eileen Scotto Mr. Richard Seebald Mr. and Mrs. Sempepos Mr. and Mrs. Henry Shannon Thomas P. Hughes School PTO

Anne McDonnell Saint Raphael Convent Marie McEntee Mr. Robert McEntee Elizabeth McEvoy 3M­Health Information Systems Mr. and Mrs. John Barry Ms. Ann Bave Mr. Roland Del Cid DRA Advisors LLC Edgemont Teacher's Association Ms. Kerry Gerling Ms. Margaret Goldbach Ms. Elizabeth Harris Mr. and Mrs. John Hartline Mr. and Mrs. Robert Huff Ms. Ann Hutchison Income & Asset Advisory, Inc. Mr. Ronald Mason Ms. Linda Mikitovic Mr. David Morrow Mrs. Ada Mudd Mr. Ralph Parilla Mr. and Mrs. Daniel Prunty

Arch Enemies of ALS

On October 23, 2006, Vincent Darragh held "Arch Enemies of ALS," a golfing event in memory of his father, Archie Darragh, who died of ALS in December of 2005. The event, held at Bellport Country Club in Bellport, Long Island, included lunch, a round of golf, a gourmet dinner and raffle prizes. "Arch Enemies of ALS," raised $10,000 for patient services and research.

John Martello Ms. Arcangela DiOrio Stan Martin Mrs. Sylvia Feuerman Howard Mashel Mr. and Mrs. Richard Honig H. Margaret Mason Mr. and Mrs. Owen Jackson Victor Masotti Mr. and Mrs. Alex Masotti Tom Masters Anonymous Mr. Robert E Astheimer Automatic Data Processing Mr. and Mrs. John Besante Mr. and Mrs. Wayne D Bierbaum Mr. and Mrs. Jeffrey Blakemore Mr. and Mrs. Fredric Boff Mr. and Mrs. Peter Boise Mr. and Mrs. Lawrence J. Bostwick Mr. and Mrs. Donald Brennan Mr. and Mrs. Robert E. Brewster Mr. and Mrs. Thomas J. Burns Ms. Nancy Butler Ms. Linda Jacques Carella

Mr. and Mrs. Marc Greenberger Mr. and Mrs. John Guarino Ms. Josephine Guido Dr. and Mrs. James J. Hakim Ms. Mary Harbach Mr. and Mrs. Harry L. Harkin Mr. and Mrs. Douglas Hieber Mr. and Mrs. William Hopkins Mr. William J. Horbatuk Mr. and Mrs. Timothy J. Kinsley Mr. and Mrs. Michael K. Kirk Ms. Anne Krasny Mr. and Mrs. Daniel J. Leonard Mr. and Mrs. Marc S. Levine Mrs. Mary Lewis Mr. and Mrs. Thomas J. Manicone Mr. and Mrs. David Marcus Mr. and Mrs. William S. Marcus Mr. and Mrs. Ernest Masini Mrs. Ellen Masters Ms. Leanne Masters Mr. and Mrs. Robert W. Meier Mr. Richard Minich Mr. Roger Mohr Ms. Joyce Mondadori

Mr. and Mrs. Martin Tobin Mr. and Mrs. Lon Tweeten Vecchione Family Ms. Margaret A. Whiting Mr. and Mrs. Edward Woodrow Carlos Matos Mrs. Barbara Matos Howard J. Matos Christine Havekost William F. Matthews Ms. Kathryn H. Matthews Patty Matuszewski Mr. and Mrs. Frederick Celentano William Mautschke Mr. Robert C. Mautschke Angelina Mazzamurro Mr. Michael Mazzamurro Thomas McAllister Ms. Therese Mulligan Raymond McCauley Mr. & Mrs. Dennis McCauley Thomas H. McCoy Mr. and Mrs. Lee Burns Mr. and Mrs. James Carlson Mr. and Mrs. David McCoy

Ms. Mary Jane Reddington Ms. Janine Roberts Ms. Susan Salek Mr. and Mrs. Francis Tansey Barbara McGarrity Ms. Dorothy Murray Ms. Veronica Tagarelli Vincent McGeehan Mrs. Patricia McGeehan Kenneth McGinniss Anonymous Mr. and Mrs. Adam Berman Mr. and Mrs. Terrence H. Both Mr. and Mrs. William Camacho Ms. Mary A. Bray De Reyes Mr. and Mrs. Joseph DiBernardo Ms. Susan Galland Mr. Robert A. Gandino Ms. Judy Germuth Mr. and Mrs. Thomas Gill Mr. and Mrs. Joseph P. Gladstone Glennon Family Ms. Maryann Grillo Mr. and Mrs. Joseph Locicero Mr. and Mrs. James Lomenzo Mr. Paul McGinniss Mr. Paul A. Muto Mr. and Mrs. Harold Reardon

Mr. and Mrs. Thomas Sciattara Mr. Richard Spehr and Ms. Heather W. Lane James Stelling Ms. Victoria Vrona Mr. and Mrs. Jerry Zaback John Martin McPartlan Mr. and Mrs. James Sbarra William Meehan Mr. and Mrs. Richard Kent Ms. Jane A. Lee Mr. and Mrs. John F. Mauceri Ms. Beth Meehan Mr. Herbert Rabin and Ms. Judith Rustin Eugene Meglio Mr. Randall J. Bond and Ms. Barbara Hamilton Ms. Laura Buoncuore Mr. and Mrs. Steven A. Cohen Friends Mr. and Mrs. Clifford M. Kaiser Ms. Rosanne R. Marrone Ms. Jean M. Seergy Ms. Joan M Seergy Christopher W. Seid and Mary E. Rehak Ms. Ellen Serpe Mr. and Mrs. Carl S. Strotz Mr. Michael Tedone Doug Melanson The Mentor Network Anthony Messina Mr. and Mrs. Yim Fong Chong Mr. and Mrs. Frank Seddo Mr. and Mrs. Joseph Sica Rebecca Mevorah Mr. and Mrs. Arthur Kutlow Clint Meyers Mr. and Mrs. David Chieco Nicholas Michalakis Mr. and Mrs. Arthur Hirshey Howard Miller Mr. and Mrs. Kenneth Baker Mr. David Tennenbaum Seymour Miller Mr. and Mrs. Harold Himmelstein Leon S. Milmed Mr. Paul Milmed Joseph Milone Mr. and Mrs. Alfred Leteria Anita Milstein Richstein Family Gail Mirman-Dolinko Mr. Barry Dolinko Bruce Molcsan Ms. Jane Molcsan Earl L. Molinelli Mrs. Catherine Molinelli Mrs. Mary Perri Mr. and Mrs. Charles Sadler Richard J. Molnar Ms. Leah Koch Billy Monti Ms. Eleanor Lamotta Mr. and Mrs. John Maduras Ms. Dawn Munno Mr. and Mrs. William Monti Mr. and Mrs. Steven Horn John Moran Ms. Mary Gargiulo Mr. and Mrs. Thomas Laparle Rachel Moriarty Ms. Marie Tufo

Fall 07

ALS­NY Annual Report


Rochelle Moss Dr. Tami Amiri Ms. Linda Moskowitz Mr. Adam Moss Mr. and Mrs. Allen Popowitz Sugar Bun Bake Shop Inc. Elizabeth Most Mr. and Mrs. John Most SMBC Global Foundation Inc. Allen Muenzhuber Ms. Patricia A. Muenzhuber Gilbert J. Muller Mario and Theresa Spola Family Foundation Anne Mulski Mr. and Mrs. Brian Donaldson Mrs. Donna McPartlan Mr. and Mrs. Thomas Passaro Mr. and Mrs. Douglas Sidnam Eileen Mulvey Ms. Abina T. Glennon Frank Mungo Mr. and Mrs. Gust Adams John Muro Mr. Domenick Muro Philip Muro Mr. Domenick Muro Joseph Murphy Davison Avenue Faculty and Staff Mr. and Mrs. Christopher Del Bello Desetta Garden Shop and Nursery, Inc. Mr. Jason Lappe Mr. and Mrs. John Leonardi Mrs. Ruth Murphy Thomas Murphy Mr. and Mrs. Michael Lauria Mr. and Mrs. Roger Manganiello Francis Robert Nash Ms. Sarah Bender-Nash and Mr. Jonas Bender-Nash Mr. Robert Bender and Ms. Loretta Nash Mr. and Mrs. Thomas McDermott Howard Naskel Mr. and Mrs. Joel Jacobson Miriam Nathan Mr. Robert Clark Nathan Herbert Nathan Dr. and Mrs. Jeffrey Bernard Nathanson Ms. Naomi Schneider Allan Nelson Ms. Marianne Coston Mrs. Margaret Rego Marian L. Nemec Mr. and Mrs. Douglas Bode Margeret Nesbihal Mr. and Mrs. Dennis McNamara William Newham Ms. Margaret Newham Nancy Nichols Dr. and Mrs. Don Lebell Sandra Nirenberg Mr. Alex Nirenberg Jacqueline Noack Mr. and Mrs. Louis Delonardo

Martin Nutkis Mr. and Mrs. Joel Roth Nancy O'Donnell Mr. James O'Donnell Katherine O'Hanlon Ms. Margaret Ward Shunichi Ohta Mrs. Makoto Ohta Mary Sheridan O'Neill Ms. Claire O'Neill Helga Oppenheim Ms. Peggy Shapiro Robert Palazzolo Mr. and Mrs. Keith Palazzolo Robert Palguta Ms. Kate Debold Anne Palkot Mr. Edward J. Palkot Aldo Palmicano Ms. Rose Murphy Rosemary Panzarella Mr. Peter J. Anguilla Mr. and Mrs. Robert Henderson Mr. Joseph Panzarella Frank Papa Ms. Gayle Papa Martin Parker Ms. Caroline G. Parker Clyde M. Parker Ms. Judith Parker Irwin Parness Mr. and Mrs. Andy Boyd Mr. and Mrs. Herman Friedman Dr. and Mrs. Paul Friedman Mr. and Mrs. Edward Goldenberg Dr. and Mrs. Edward Henry Mr. and Mrs. Sol Karsch Mr. and Mrs. Samuel Krevansky Mr. George S. Li Mr. and Mrs. Philip Mintz Mrs. Marjorie Parness Ms. Ellen Phillips Pilot Air Freight Ms. Janet Snyder Mr. and Mrs. Eli Talkov Mr. Paul Talkov Town of Oyster Bay Arts Council, Inc. Caroline Pasqua Mr. and Mrs. Victor Cotumaccio Betty Paulis Mr. and Mrs. Chris Argyris Mr. and Mrs. James Deerfield Ms. Joan Dougherty Mrs. Margaret Holthusen Mr. and Mrs. Howard Robertson Ms. Virginia Tilden Debby Paulis Mr. Noah Paulis Julie Peierls Mr. Jeffrey Sanzel Anne Pembroke Mr. and Mrs. Gerard Gavin James Pennington Mr. and Mrs. Khosrow Sadeghian Arlene Perlmutter Mr. and Mrs. Alvin Gershoff Rose Perrone Mr. Richard Jones and Ms. Rosemary Quartuccio Joseph Pesesky Mr. Lawrence Pesesky

Salvatore Petrane Mr. and Mrs. Ronald Beekman Mr. and Mrs. Patrick Calabria Mr. and Mrs. Jim Dunn Mr. and Mrs. Victor Oliveti Pasquale F. Petrera Mr. & Mrs. Leonard Revellese Fay Pettinato Ms. Pamela Ercole Ruthe Peyser Mr. and Mrs. Frederick Robinson Ms. Maggi Scharf

Ms. Vanessa McCullough Ms. Mary Dee Pifer Ms. Michele Rashburn Mr. and Mrs. Abe Valazquez Joe Porcelli Ms. Rose Murphy Vincent Porraro Mr. and Mrs. Anthony Porraro Saverio Potente Mr. Ralph Potente Alice T. Powers Ms. Mary Lombardi Ms. Theresa Lombardi

Mr. and Mrs. Michael Madaio Ms. Ida Modica Nativo Family John Read Mr. and Mrs. Terrence G. Clark Ms. Patricia A. Clause Mr. and Mrs. G. Cox Fidelity Investments Charitable Gift Fund Mr. and Mrs. Peter Koblan Ms. Donna M. Lesch Mr. and Mrs. Tom Maloney Mr. and Mrs. James P. McDermott

Mr. Larry Singleton Sudler & Hennessey Salvatore Ricca Ms. Roxanne Ricca Mr. and Mrs. Ralph Sorrentino Michael Riley Mr. and Mrs. Anthony Riley James Rinaldi Ms. Susan Rinaldi Thomas Roche Mrs. Nilsa Roche Marguerite Roppleye Ms. Sharon L. Clarke

Make Me a Plate

On October 19, 2006, "Adding Love and Support" kicked off its first annual "Make Me a Plate" Long Island tasting event at Leonard's in Great Neck. "Make Me a Plate" raised $85,000 for the Chapter. "Adding Love & Support" was founded by friends and family of Barry Barkoff, a PALS, who died in 2005. For more information about the 2nd Annual "Make Me a Plate", visit

Stephen Piccininni Mr. and Mrs. George Piccininni Larry Pieratti Mrs. Marie Pieratti Leonard J. Pietrafesa Ms. Dolores Pietrafesa Jack Pineles Mr. Richard Pineles Dr. Pisetsky Ms. Lillian Pisetsky Susan Plascoff Mr. Irwin Plascoff Ralph Pocaro Ms. Judith Brown Mr. and Mrs. Christopher Cunningham Mr. and Mrs. Tom D'Altrui Jerry Rose Floral and Event Design Mr. and Mrs. Andrew Kaslow Phonextra, Inc. Mr. and Mrs. John Robinson The Sherlund Family Foundation Frederique Pohl Mr. and Mrs. Kuno Weckenmann Mr. and Mrs. Thomas Weckenmann Renee Polen Ms. Sandra Kurtz Don Polz Mr. and Mrs. Lawrence Birn Felix Ponce Ms. Heather Clamer Ms. Francine Lieberman Ms. Natalia Martin

Salvatore Procida Mr. and Mrs. Jeryl Griesing Rose Puchall Mr. and Mrs. Michael Cohen Tomas Quiles Ms. Natalie Rivers Edward Quinn Mr. and Mrs. John Barabas Mr. and Mrs. David Fagersten Mr. and Mrs. David Poelstra Margaret Quinn Mr. and Mrs. Michael Frank Barbara Rabbitz Ms. Cindy Hnatt Anthony Raia Ms. Frances Bilan Mr. and Mrs. Gaspare Delia Mr. and Mrs. Mark Frisch Mr. and Mrs. Gerard Gross Mr. Anthony Yazzetti Mr. and Mrs. Richard Zdazenski Tony Raia Mr. Lucian Durso Suresh Ramakrishnan Mr. Eric Shan Jean Randal Mr. and Mrs. Lawrence Reynolds Robin Rath Mr. Russell Jordan James B. Rather Ms. Rhonda Borrow Mr. Mark Hellerer Mr. & Mrs. John O'Connor Salvatore Ravalli Ms. Clare Caponiti Mr. and Mrs. Joseph Madaio

Mr. and Mrs. Thomas Reid Mr. and Mrs. John W. Van Tassell Mr. and Mrs. David S. Zakrewski John Redden Ms. Elizabeth Bartoletti Mr. and Mrs. Thomas Caughey Ms. Maureen Kuchar Mr. and Mrs. Kevin Redden Mr. and Mrs. Richard Sikorski Judith Clark Reilly Dr. and Mrs. Charles Clark Mr. and Mrs. Thomas Maher Franz J. Reiss Sportsfriends Women Soccer Team Anthony A. Rettino, Sr. Mr. George Gordon Ms. Donna Oplinger Mrs. MaryAnn Rettino Mr. and Mrs. Leonard Spero Stark Investments Enrique Reyes Mr. and Mrs. Miguel Rodriguez Charles W. Reynolds Ms. Paulene Reynolds Eileen Reynolds Ms. Peggy Callahan Dr. Christine Cortese Mrs. Diana Dillinger Mr. and Mrs. Ed Emusov Ms. Weetona Hobby Ms. Paula Lang Ms. Donna Michalizysen Ms. Lynn Nakashian Precept Medical/Emeritus Ms. Carolyn Quinn

Simone Rosenberg The Charles L. Schreiber Unit-BNAI Brith Max Rosenblum Mrs. Claire Rosenblum Phyllis Roth Ms. Randie Bader Stanley Rubenstein Mr. Alan Brandt Anthony Rubertone Ms. Lucille Foschini Myron Ruderman Mrs. Judith Ruderman Anthony Rusciano Ms. Virginia Benzak Mr. and Mrs. Raymond Butti Ms. Annabel Christiansen Ms. Penny Cozza Mr. Jason D. Ienner Mr. and Mrs. Joseph Roscigno Frank Russo Ms. Helen Perrone Fred Russo Schuyler-Colfax Middle School Maria Rosaria Russo Ms. Carmela Russo Giovanni Sabatino Arthur W. Brown Mfg. Co., Inc. John Sabatino Ms. Antoinette Sabatino Milton Safenowitz Mr. and Mrs. Charles S. Miller Charles Salerno Mrs. Annette Salerno


ALS­NY Annual Report

Fall 07

Buddy Sandra Mr. and Mrs. Jay Lifton Virginia Sanford Mr. and Mrs. Brian Callahan Robert Santangelo Ms. Mariam Attarian Madeline Saul Mr. Kevin Saul Patricia A. Savage Mr. Marc and Ms. Gemma Grossman Mr. and Mrs. Gerald Rooth Mr. and Mrs. Eric Torbic Joseph Scamardella Mr. and Mrs. Christopher A. Clarke Mr. and Mrs. John Corcoran Mr. and Mrs. Gregorty Donatello Ms. Diana Goldstein Ms. Mary M. Lovin Massapequa High School Sunshine Club Mr. and Mrs. Frank Palazzo Francesca Scarlata Dr. Robin Scarlata Donald Scarola Ms. Christine Scarola Joanne Schaaf Mr. and Mrs. Bernard Duffy Ms. Jeanne O'Driscoll Peter Schlinger Mr. and Mrs. Ron Goldstein William Schon Mr. and Mrs. Otto Schon Bennett Schreiber Mrs. Merle Berg Jack Schriber Jewish Communal Fund Robert Schulman Mrs. Ellen Craig Schulman Brian Schuman Ms. Cara M. Schuman Dianne Schwab Ms. Barbara Feit Gail Schwartz Mr. Howard Schwartz Lillian Schweickert Mr. Stephen Hess Albert G. Schweiss Mr. and Mrs. Orville J. Schweiss Matthew Sciacca Mr. George DeFilippis Josephine Scozzaro Mrs. Arlene Catanzano Frank Scutari Mr. Michael Loeffler, Jr. Esther Seaman Ms. Josephine Mahon Kathleen Semanchik Ms. Mary Plowman Robert Senecal Mr. and Mrs. Robert Hotine Ms. Elizabeth Mallett Charles R. Senecal Mr. and Mrs. Charles Senecal Daniel A. Serino Ms. Marguerite Serino Mrs. Micky Vitalone Paula Sferrino Mr. John Litman Mr. Clifford Mahood Marsha M. Shafiroff Ms. Linda Sue Corinotis Ms. Delores Ferraro

Mr. and Mrs. Michael Fitzsimmons Kathleen Shalaby Ms. Pamela Cariello Mr. and Mrs. Douglas Jacobs Tom Shea Mr. and Mrs. George Michinard Mary Sheridan O'Neill Ms. Jane Brill Ms. Claire O'Neill Bill Sherwood Ms. Carol Anne Sherwood Mildred Shor Ms. Barbara Beers Mr. and Mrs. Sam Beller Ms. Claire Finkelstein Mr. and Mrs. Leonard Gold Dr. Stanley Samuels Mr. and Mrs. Bernard Scharfstein Ruth Shott Mr. and Mrs. Olaf Olsen Sam Shriar Ms. Maye Robinson James Siconolfi Mr. Nicholas Chicola Mr. and Mrs. Anthony Panzica Marty Siegel Ms. Renee Kriegel Joan Duitz Siller Mr. and Mrs. Jerry Duitz John Simmons Mrs. Joan E. Simmons Bart Simone Mrs. Lillian Simone Marcia Slaw Mr. Stanley Slaw Curt Smith Ms. June F. Locke Mr. and Mrs. Bruce D. Treiber Patricia Smith Mr. William Smith Philip Snett Mr. and Mrs. David Snett Robert Solomon Mrs. Isabelle Solomon Ms. Marjorie Zolot Nadine Sontag Mrs. Robin Tullo Jerome S. Sorkin Mr. Herbert Sorkin Temple Emanuel Craig Sozomenu Ms. Katherine Cavallo Maxwell Speiser Mr. and Mrs. James Speiser Emilia Spirito Ms. Ernestine Spirito Mary Stahlin Ms. Joan King Mario Stamegna Ms. Mary Stamegna Sandra Stang Dr. and Mrs. Stanley Scher Susan M. Stewart Mr. Terence Stewart Aviva Stober Mr. and Mrs. Richard Marcus Blanche Stone Mr. and Mrs. Ronald Rosenburg Edmond Sullivan Ms. Helen L. Davies

Mr. and Mrs. Robert Germinder Mr. Kevin Fannin and Mr. Joseph MacDonald Mr. and Mrs. Robert Mascio Shore Point Distributing Co, Inc. Mr. and Mrs. Charles Sullivan Mr. Robert L. Sullivan MarionR. Swain Ms. Constance S. Evans Tobie Taylor Mr. and Mrs. Neil Taylor Robert Telson Broome County Office for Aging Harold Tepper Mrs. Rhoda Uchitel Barbara Tjornholm Ms. Myra Kanig Edward Trasky Mr. and Mrs. Richard T. Barto Ms. Carmela Colson Ms. Janice Colson Mr. and Mrs. Raymond J. Delaney Mr. and Mrs. John DeMarco Flynn and Son Funeral Homes Friends Mr. and Mrs. Anthony Niebert Mr. and Mrs. Joseph Pawelczak Mr. and Mrs. Joseph A. Phillips Walter Treiber Ms. Mary Treiber Stanley L. Trela Ms. Genevieve Adamski Ms. Kelly Aker Mr. and Mrs. John Bacha Mr. Joseph Bentz Mr. and Mrs. Andrew Caccholi Mr. Gary Conrail Mr. William Coyle Ms. Barbara Gauthier Grant Thornton LLP Mr. Joseph Graziano Mr. and Mrs. Louis Hahn Mr. and Mrs. William Ippolito Mr. and Mrs. Robert Klose Mr. Keith Newton Ms. Patricia Nicholson Mr. and Mrs. Anthony Orlando Ms. Mariana Sinbine Mr. and Mrs. Douglas Tracy Mr. Stanley Trela Mr. and Mrs. Thomas Trela Mr. Stanley V.N. Yates Andrew Trocchia Ms. Frances De Armond Louise Turitto Ms. Mary Barton Mr. and Mrs. Pasquale Campanelli Mrs. Angela DiCarlo Mr. and Mrs. Pasquale DiScenza Ms. Mary Oliva Mr. and Mrs. Thomas N. Troutman Mr. Anthony Turitto Mr. Leonard Turitto Mr. Thomas Turitto Francine Tutshen Mr. and Mrs. Howard Latzer Ms. Rose Milo

Ms. Lucille Scimeca Mr. and Mrs. Arthur Troisi Patricia Tuttle Mr. and Mrs. Alfred Berghorn Mr. William Tuttle Paula Uanino Ms. Jacqueline Leone Gwen Vavra Mr. and Mrs. Terry Vavra Lin Chen Vee Mr. Harry Vee Ben Vinci Ms. Helene Kimmons Patricia Vitale Mr. and Mrs. Ronald Grossane Mr. Charles Vitale Judy Vitters Mr. and Mrs. Carl Bloom Mr. Gary Vitters Rosemary Walker Mr. and Mrs. Robert Walker Rhoda Wallack Mr. Dan Wallack Sylvia Walzer Ms. Joyce Magnus-Hodes Robin Ward Ms. Tanya Winborne Carolyn Warncke Ms. Sue C. Kinker Ms. Karen Warncke David Warshaw Ms. Rita Swedlow Murray Warshaw Mr. and Mrs. Sidney Smilowitz David A. Wassmer Ms. Roberta H. Wassmer Philip Watrous Mrs. Linda Watrous Jeannette Watson Mr. and Mrs. R. Gary Seaman Patricia Weber Mr. John Weber Evelyn Weiner Mr. Burt Hersh Joan Weiner Mr. and Mrs. Stuart Oken Ms. Diana Marjorie Savit Mr. and Mrs. Jay Weiner Richard Weintraub Ms. Julia Alberino Mr. and Mrs. Steve Feingold Mr. and Mrs. Steven Greenblatt Mr. and Mrs. Ira Rubin Ms. Helen Smith Mr. Ronald Tarulli Mr. Kenneth Weintraub Woodbury Jewish Center 4 Year Old Nursery School Sam Weintraub Ms. Caroline Fielder Mr. and Mrs. Sid Tilles Shirley Weisberg Mr. and Mrs. Joel Weisberg Lillian Weiss Ms. Harriet Hartman Mr. and Mrs. Gerard Hawkins Mr. and Mrs. Mark Weiss Ronald Weyand Mrs. Jacqueline Weyand Edward Wieler Ms. Gina Wieler

Phil Wiesel Ms. Janet DeWinter Gay Wilentz Mr. and Mrs. Leo Kaufman Robert H. Williams, Sr. William E. Howe & Co. Mr. William Lyons Judy Wilson Ms. Patricia Newbold Gerald Wind Mr. and Mrs. Barry Faber Mrs. Phyllis Wind Frederick J. Wissemann Mr. and Mrs. William P. Wissemann Denise Wittke Amateur Astronomers, Inc. Mr. and Mrs. Donald F. Mokrauer Mr. and Mrs. Sheldon L. Olitsky Ms. Hope Skaperdas Mr. and Mrs. Roy R. Taff Mr. and Mrs. Clarence J. Walbert Bernice Wnek Anheuser-Busch, Inc. Mr. and Mrs. Michael Coppola Ms. Mary Cubberley Ms. Leilani Fallon Mr. and Mrs. Stephen Feldman Island Food Stores, Ltd. Mr. and Mrs. Edmund Kultys North Florida Sales Mr. Charles Remlinger Mr. and Mrs. John Roberts Mr. Daniel Ryan Ms. Kathleen Smyth Mr. and Mrs. William Todt Ms. Rose Van Riper Mr. and Mrs. Neal Weiss Mr. Stanley Wnek Mr. and Mrs. Edward Wozniak Estelle Wolf Mr. and Mrs. Robert Schwab Edith Pearl Wolfe Mr. Harry Wolfe Sol Wolin Dr. and Mrs. Elliot Nadelson Garson Wolitzky Mrs. Reva Wolitzky Helen M. Woodruff Mr. and Mrs. Peter Versage Felice Yahr Ms. Mildred Nadel Anna Yorio Mr. and Mrs. Charles H. Cutler Mr. Joseph Yorio Mr. Michael Yorio Mary Ellen Young Mr. Todd Baker Helena Zaslow Ms. Elaine Siegel Michael Zaslow Ms. Elizabeth Pynchon Beckett Ms. Arlene Foschini Ms. Patricia Fox Ms. Marylee Garber Ms. Karen Gormley Mr. and Mrs. Charles Maneri Mr. and Mrs. Christopher L. Pope Mr. and Mrs. Allen Trainer Ms. Jill M. Ungashick Robert Zeher Mr. and Mrs. Gregory Perri

Charlotte Zelou Ms. Dorothea Sasson Lorin Zeltner Ms. Susan Archambault Ms. Carol Crida Ms. Jane Eaione Fidelity Charitable Gift Fund Mr. and Mrs. John T. Fix Girl Scouts of Westchester Putnam, Inc. Community of Tuckahoe/Ea Mr. and Mrs. Sheldon Gottlieb Mr. and Mrs. George Graham Ms. Marie F. Illos Mr. and Mrs. Edward P. Jordan Ms. Marilyn Joyce Dr. and Mrs. William Lawson Mr. Rayne Madison Ms. Ruth McHenry Ms. Helene Miller Ms. Helen Quinn Ms. Barbara Remini Seidel Mr. and Mrs. John Venezia Edward W. Zinckgraf Mr. and Mrs. Michael Molnar Morse Hill Foundation Mr. and Mrs. Robert Olpp Mr. and Mrs. Michael Zinckgraf Robert Zollner Mr. and Mrs. Gregory B. Metzler Milton Zuckerbrod Mr. and Mrs. Edward Zuckerbrod Shirley M. Zuckerman Mr. & Mrs. Albert Solomon Herbert Zundel Ms. Lauren Ball Mr. and Mrs. Alfred Berni Ms. Louise Flanagan Mr. and Mrs. John Mannion Massapequa Auto Repair, Inc. Mr. & Mrs. Thomas Roland Ms. Linda Saporito Mr. and Mrs. Robert Szczurowski Ms. Eileen Wagner Joe Zundel Mr. Herbert Zundel Frank R. Zurla, Jr. Mrs. Shari E. Zurla Herb Zweig Superior Sewing Machine and Supply LLC Miriam Zwerin Ms. Gladys Belson Ms. Beatrice Birnbaum Mr. and Mrs. Fred Cohen Ms. Paula Cohen Mr. Manuel Dickerner Mr. and Mrs. Adam Dictrow Mr. and Mrs. Matthew Goun Mr. and Mrs. Fred Heinrich Mr. and Mrs. Howard Katz Ms. Honey Kuhl Ms. Florence Leventon Dr. and Mrs. Ralph Lusskin Mr. and Mrs. Joseph Mentkow Ms. Lois Roos Mr. and Mrs. Seymour Schneider Ms. Claudette Smith Ms. Molly Strauss Mr. and Mrs. Irwin Stricker Mr. and Mrs. Martin Zobac

Fall 07

ALS­NY Annual Report



Teams "walked for" the people listed in italics.

Above $25,000

Anderson Walkers of Hope ­ Team Woodbridge Ira Anderson

$10,000 ­ $24,999

Laura's Legion of Hope Laura Grzeskowiak Rooters for Rosemarie Rosemarie Sherry

$5,000 ­ $9,999

A Day for a Knight Robert Lewis Gray Team Marlene's Angels Marlene Welte Fraehmke Team Ellie Ellie Reynolds The Andersens Fight Back Gary Andersen The French Connection Louis Roy

$1,000 ­ $4,999

Amelia's Little Stars Amelia Mendoza D & V Legal Advertising Yuet Sim Leung Henry's Angels Felix Marin JFK Memorial High School Michelle La Gasse Reggev Park's Pandas Myong-Ja Park Rick's Team Rick Snape Salfi-Gianetti Staten Island 4 a Cure Marty Cavanagh Sully's Run Robert L. Sullivan, Sr. Team Lahoda Chris Lahoda Team McCormack JoAnn McCormack Team Motz Muriel Lewis Team Stanley Trela Stanley Trela Team X Xavier Abbott The AVAs Anthony Allocco The Man on the Door William H. Davis, Jr. XIE's Team Kezhou Xie

Foley's Follies Ruth E. Foley Heartbeats for Tony Anthony Clavell Hope Elio Mario Cardillo Mrva's Marchers Ronald J. Mrva Murphy's Marchers Mary (Jeanne) Murphy Novello Michael Novello PALS Defeating ALS Ira Anderson Racing 4 Rosalba Rosalba Quiroz RWD Saunders/Sirens Richard Saunders Sciarrino/Mallalieu Jody Mallalieu Soos Mona I. Soos Team Amber Jean L. Askew Team Courage Mary Virginia Sanford Team Krieger Ruth Krieger The Schleppers Alvin Adler Wasser C.R. Margolies We Miss Chris Chris Estok

Walking Strong Arthur DelVescovo

To $999

Arlene's Girlfriends Barry Hochman Buffaloe James Patterson Janet Wehrle Frankie's Flyers Friends of Leslie Leslie McCarthy Grandpa Hal Harold M. Cohen I Can't Believe It's Not Butter Tom Rogers Karen's Team Rita McKenna Kim's Pre-Wedding Walk Team Laura's Team Laura Grzeskowiak Moving for Mike Michael Cerny P.A.B. Walkers Patricia A. Bonsangue Prasek Skiz Team Schmidt The Birthday Club Jane Marriott Anne Aboussleman VORBTEX Kathleen O'Keefe Walking Ladies Carl Indelicato Wasser Family C.R. Margolies


Above $10,000

Opa's Crew Manfred Borstelmann Stormin' for Norman Norman Holzberg Surf's Up Stephen Adeskavitz The Joe Pettinato Team Joseph Pettinato


Above $10,000

Bea Happy Beatrice Patti Blake's Bunch Mary Ellen Blake Equinix Eagles Jeff Madelone

$5,000 ­ $9,999

Fighting for the Farrells Joan Keogh Friends of Peter and Glenn Peter Gesell, Sr. Glenn Barney TYFBOOMA Tom Masters

Chet's Champs Chester Schneider Deede's Destroyers William Deede Ed's Amigos Ed Zinckgraf For Merrill Merrill Jay Gitkin For Thomas J. Murphy Thomas J. Murphy Friends Walking 4 Bea Beatrice Patti Gloria's Hope Gloria Ferriola Guertin Gaitors Donald Guertin Johnny John Redden J-Unit Jemma Mami's Angels Lusanus Tavukcuyan Mike's Miracles Michael John Turso Natalie's Nation Natalie Settlow Richard's Runners Richard Chrisman Saunders/Sirens Richard Saunders Spud's Team Edmond "Spud" Carroll Team J.B. John Balles Team Johnny Boy John Kleinegris Team Pappas James Donald Pappas Team Ramakrishnan T.A. Ramakrishnan Thumbs Up for Bridget "Dee" Mullen Bridget "Dee" Mullen Thunder Road Frederick Distaso Wait Awhile Francesco Binetti Walk for Hope Ricardo Romero, Sr. Walkin' for Weezie Louise Ade

Jennie's Angels Jennie Aschenbrand Kaiser Clara LoRusso Mike LoRusso Kevin McMahon Loretta's Team Loretta TumSuden Loving Memory of Carol Meier Carol Meier Madeline's Geese Madeline Esposito Midland School Mountain Man's Fighters Donald Irnhoff Nino's Team Nino Siletti Oller Marie T. Oller Out of Order Pop's Girls William J. Mainenti Ring Once When You Get Home Joseph Nealon Springer Susan Springer Team Carmela Carmela Statella Team Gilson David Gilson Fay Gilson Team Phyllis Phyllis Crowne Tom's Team Tom McGrath Walking for Joanne Joanne Benson Walking for Wilson Brent Wilson William Wilson

Pelham Power Anthony Senerchia Swan Grypma D.M. Reimers Poppy's Pals Aaron "Poppy" Rosner Team Basora Hector Basora

$1,000 ­ $4,999

Amelia's Little Stars Amelia Mendoza Andy's Team Andrew T. Cannistraci, Esq. Arnold's Angels Arnold Lamberg Blonde Ambition Carrying the Flame for Mary Jane Mary Jane Bianco Cheers for Sheers Michael Sheerin Euan's Team Euan MacDonald Family and Friends of Kathleen DiNoia Kathleen DeNoia Mac's Harem Kenneth MacKenzie Mary Lou's Marchers Mary Lou Thompson NYC Marathon Fundraiser Sugie's Survivors Bernard Vinci Team Martin Michael Martin The Quilt Cottage Christina Rosenberger

To $999

Az's Alligators Frank Azarenok Castaldo John Redden Daddy's Girls Angel Vazquez Danny's Kids Daniel Serino DG's Happy Hoofers Denis Giordano Excel Worldwide Transportation and Friends Faith Walkers Libby Burwell-Meeks Fisher Nathaniel Chale Gene's Hogs and Heifers Eugene L. Slobodin Geraldine's Joggers Geraldine McGrath Hospice Hopefuls Elvia Moran Inwood for Erna Jelly Bean Crew Johnny's Girls John Geoghegan Karen's Crusaders Marie Piccinini Maggie's Angels Maggie Farabaugh Papa Pacello Thomas Pacello, Sr. Rock's Team Alonza "Rock" Allen


Above $25,000

The Card Sharks Bernard Weiss Edythe Klegfeld

$5,000 - $9,999

JayRocks Janice Bonomo-Lamont Maggie's Angels Maggie Farabaugh The Briel Brigade Chris Briel

To $999

Arnesen Douglas Rhoda Cookie's Walkers Doris Breiner "Eye" Care Beatrice Patti Ferrone Jesse Plumley Friends of Glenn Glenn Nichols Glenn and Company Grandpa's Yankees Hyman Bodack Hefka's Hopefulls Agafia Hefka Erwin Hefka Hush's Guys Lila McManaman In Honor of Lois Ambrose Lois Ambrose In Memory of John Montague John Montague

$10,000 ­ $24,999

Bill's Miracle Workers Bill Sheluck Linda's Team Linda Perfecto Remembering Bill Monti William Glenn Monti Rick's Team Rick Snape Rochelle's Rockets Rochelle Moss

$1,000 ­ $4,999

Baby Nurse Strollers Catherine O'Halloran Ira Anderson Daddy's Girls Steve Pantini Greg's Gang Greg Crean Gutsy Ralph's Pacers Ralph Pocaro Rich Hoppy's Team Richard Hoppenstedt Manfred Borstelmann The Butterfly Gang Linda Scognamillo

$1,000 ­ $4,999

Alie's Angels Alison Mish Angie's Angels Angie Matthews Anthony's Giants Anthony Clavell Barbi's Butterflies Rebecca Barbi Big Daddy Mario Santiago Bill's Brigade William D. Lane Bill's Buddies Bill Banyar

To $999

Avenel Girls Beverly's Best Beverly Sichel Bill's Kids Bill Hayes Carol's Song Carol J. Buckley Dato Ira Anderson

$5,000 ­ $9,999

Always Leave Smiling Jeff Guttridge Anthony J. Rusciano Anthony J. Rusciano DLD Richard Dalrymple Greg's Gang Greg MacDonald J.C.'s Crew John Cunningham


ALS­NY Annual Report

Fall 07

Say No to Pickles Lois Joyce Schneider Select Yankees Sonis B.K. Soni Team Garfield Suzanne O'Shea Team "I Love Us" Bette Walpole Team Pasquale Nick Pasquale The Return of the Micks Lou Gehrig Ula's Angels Ula Bryan Walking for Lillian Lillian Flann Woodside

Mark's Motivators Mark Nurse Marlene's Angels Marlene Welte Fraemhke Sbarro's Team Ernest Mirti Team Hattenback Eugene Hattenback Team Trabosh Richard Trabosh The Purity Pack Iris Kadin Thunder Road Kathryn Schnarr-Kinney Walking for Ed Edward Flanagan

$1,000 ­ $4,999

All Lil's Supporters Lillian Weiss Alrose Team Jack Rosenberg Al's Angels Alan R. Doran Andy's Angels Andrew Fuchs Anita's Walkers Anita Milstein Arkwin Friends of Brad Stein Brad Stein Arthur Dutcher Arthur J. Dutcher, Sr. Barbara's Precious Moments Barbara Ann Vallary Bea's Bunch Beatrice Siskind Benny's Brigade Ben Zobel, Sr. Blossom's Best Foot Forward Blossom Levine Abrams Bowler's Rollers Sean Bowler Celestina's Angels Celestina Jelovcic Travalja Chris Long's Walkers Christopher Long D & V Legal Advertising Yuet Sim Leung Diane's Team Diane Schwab Dottie's Dingoes Dorothy Wassum Dotty D's Devils Dorothy DiGregorio East Woods School Everyone Loves Annie Ann M. Farrelly Fern's Fighters Fern Cohen FHS's Terrific Teens Fighting Irish VI Joseph L. Kelly For the Love of Lillie Lillie Shapiro Frank's Bunch Frank Louis Forcina Frank's Courage Under Fire Frank Russo, Sr. Friends of Joe Joe Gray Friends of Phil Phil Wiesel Glen Roy John McPartlan


Above $100,000


$25,000 ­ $40,000

Barbara's Bunch/Ginga's Kids Barbara McGarrity Katz Walkers Sheldon Katz Kevin's Kin Kevin Drummond Our Love for Mona Mona Bachman Team Raia Anthony E. Raia

$10,000 ­ $24,999

Joanne's Friends/Ken's Kids Joanne Brendel Ken McGinniss Keating's Crusade Neil Keating Milty's Marchers Milton Safenowitz Team Berg Robert Berg Team Greenidge Daniel Greenidge Team Roth Holly Roth

$5,000 ­ $9,999

Arnold's Army Arnold Bart Charlie's Angels Charles Lusky Friends of Kenny Ken Rienecker Friends of Mike Mike Sheerin Irish Fighting ALS Mike Corcoran Joanne's Team Joanne Schaaf Judy and Marcia's Team Judy Cohen Marcia Franklin Kent Lodge Joseph Cotrone Mario's Vikings Mario Teutonico

Gono's Gaiters Al Gonopolsky Jimmy's Team James Canova Joey's Angels Joanne Enders Julia's Jewels Julia Buchbinder Kadin's Kamp Iris Kadin Kosta's Krusaders Kostas Karousis Lady Di Diane Azznara Lanier's Peers Kenneth Lanier Lauralee's Legacy Lauralee Bokos Lenny's Trotters Lenny Dellilo Loving Lila Eulalia Burns Luz's Cabooses Luz Stella Ramirez Michael's Courage Michael Cestaro Millie's Memory Millie Accettola Nana's Angels Catherine Hall Norma's Girls Norma Steck-Hess Orthodox Christian Crusaders Kevi Mallios Victor Cantone Papa's Crew Kenneth G. Dodd, Jr. Pat and the Chimps Patricia Morgan Positive Energy Team Paula Uanino Remember Me Camillo Iadevaia Ruthie's Rebels Ruth Powers Sciorilli Hope Domenico Sciorilli Senecal Team Rob Senecal Seymour Friedman Hon. Seymour Friedman Slanina Saviors Joseph Slanina Stepping for Sam Saverio Potente Steps for Cyndy Cyndy Escobar Steven's Crew Steven S. Gudowitz Stony Brook University Hospital Team JNP J. Noel Pickering Team Lulu Marie Gruenheid Team Pimp Walk Wes Rose Team Rimpo Cliff Rimpo Team Sullivan Ed Sullivan Teddy's Bears Teddy Monoyos

The "A" Team Adem Dinc The Back of the Pack Patricia Vitale The DeLiso Dashers Lawrence DeLiso The Knights Who Say Ni Michael Hynes Travelex Den Lowman Turin-Greene Team Robert Turin Lillian Greene Iris Kadin Walking for Billy Billy Sheluck Walking for Dad Edgar Charles Carpenter, Sr. Walking for Mom Mackney Jo Saunders Mackney Zeisler's Zoo Richard Zeisler

To $999

Adem's Angels Adem Dinc David Klein AK Al's Pals Aldo Palmisano Margaret Kupiec Alice's Love Shines Alice Brooks Alpha Kappa Psi Andrew K Andy's Army Andy Knipe Angels for Helen Helen Steen APA for Kevin D Kevin Drummond Arnie's Army Arnold B. Wasserman Artie's Friends Arthur Gould BC Bea's Team Bernice Schloss Becky's Clan Rhea Cohen Bernadette's Baby Bernadette Charles Waters Billy's Bunch Bob's Buddies Robert Cheesman Campbell's "Souper" Feet David E. Campbell Captain Charlie's Crew Charles Koabel Champions for Carolyn Carolyn Warncke Chester's Crew Chester Manel Club 2763 Teddy Monoyos Cluny Brown Florence Sweeney Cold Spring Harbor Laboratory David Deutsch David Deutsch Dee Team Don G's Team Donald J. Gordon

Donna's Angels Donna Zicolella Don't Sweat the Small Stuff Joe Zundel Eileen Hoctor Mary Stewart Ethel Woods Ethel's Team Ethel Crowley Flo's Team Florence Bruckner Foley's Foe Fighters Eleanor Miller For My Friend Anastasia For the Love of Mary Fred's Fighters Fred Wissemann Friends of Hilda Hilda Ehrlich Friends of Joseph Joseph Murphy Friends of Lou Friends of Tom Gina Greco Gina Greco Harry Krantz Co. Gershon Wollenberg Jean Harvey Hassel Auto Group Herb's Team Herbert Charnes IKEA Irma's Enigmas Irma Keenan J Wright James and Friends James Francis Jimmy's Journey Jimmy Timpone Joany's Cronies Joan LaRosa Joe's Joggers Johanna and Jim Campbell Antoinette Percudani Johnny G. Team John Gardner Julia Munson's Family Julia Munson Kathy Aurigemma George Dunn Ken's Crew Kenny Fox Kerrianne's Krew Kerrianne Watson Kimmelman Ken Kimmelman LA 12 Team LAMARC's Hope Louise Schwartz Frances W. Schwartz Lozano's League Juan Lozano Maggie Manny's Yankees Manny Grubstein Mario and Friends Memory of Nicholas Michalakis Nicholas Michalakis Mimi's Flying Freats Cosma DeNichilo

Nanny's Team Therese Gall O'Conner Team Pearl O'Conner PAPA Bone Uncle Tony Carbone Q104.3 Walks for Jen Jennifer Lopez Reeve Sandy Federman Ruthe Peyser's Team Shanz-Pappas Silvana Benka Angelo Prestifilippo Spagnoli Strolling for Frank Frank X. Donovan Team Bank Casey Bank Team B.B. Bobby Baasch Team Berman Hyman Berman Team Big Al Albert Cohn Team Boscarino Marie Boscarino Team Catanzano Raymond Catanzano Thomas Catanzano Team Charles Gerena Charles Gerena Team Cotty Valentine Cotty Team Davis John Davis Team Merrick Team Sander Sander Manusama Team Suskauer George Suskauer Team Topper Topper Mininger The Gene Team Eugene Michael Quinn The Girls The H Team Sylvia Hassin Sidney Hassin The Mighty Motor Neurons Alex Cathcart The Pros Stephen Jacob Provenzano The Vikings Marlene Welte Fraehmke The Webmaster Paul Dondero Tomas Quiles Team Tomas Quiles Tom's Team United for Larry Larry Lefkowitz Walk 4 Lou Lou Gehrig Walking for Frederique Frederique Gasne Walking for Marsha Marsha Mintz Levy We Love Uncle Tommy Uncle Tommy Zwerin Miriam Zwerin

Fall 07

ALS­NY Annual Report


National ALSA Scientific Advisory Committee

Tom Maniatis, PhD Committee Chair Harvard University Department of Cellular and Molecular Biology Robert Abendroth Chair, Research Committee National Board Trustee, The ALS Association Richard Axel, MD Columbia University College of Physicians and Surgeons Robert Brown, Jr., MD, PhD Harvard University Massachusetts General Hospital Lucie Bruijn, PhD Science Director and Vice President The ALS Association Kevin Eggan, PhD Harvard University Department of Molecular and Cellular Biology Gerald Fischbach, PhD Columbia University Department of Pharmacology Ole Isacson, PhD Harvard University Massachusetts General Hospital Thomas Jessell, PhD Columbia University Medical School Center for Neurobiology and Behavior Andy McMahon, PhD Harvard University Department of Cellular and Molecular Biology Louis Reichardt, PhD Howard Hughes Medical Institute Neuroscience Program Joshua Sanes, PhD Harvard University Department of Cellular and Molecular Biology

The ALS Association Greater New York Chapter Board of Directors

Honorary David Cone Lynn Cone Bob Costas Judy Gilbert Rod Gilbert Board Sally John Tommy John Vicky Sbarro Dick Schaap* Teresa Wright*

Officers Richard Rose, Interim Chairman John L. Ernst, Chairman Emeritus Alan R. Griffith, Chairman Emeritus Dorine Gordon, President Wendy J. Schriber, Esq., Vice President W. Marc Lane, Treasurer Elizabeth Rosenberg, Secretary Directors Gerry Lukeman Kevin McGovern Rodney W. Nichols Jason Perline

Alice Claar Arthur I. Grayzel, MD Lennard Katz David Lubars

Ray Robinson Peter Rosenberger Marilyn Safenowitz Pierre L. Schoenheimer Gleniss Smith Schonholz

Directors Emeriti Albert Benchimol Lois H. Kleinberg, Esq. Don Casey Ruth Schapira


The ALS Association Greater New York Chapter Professional Staff

Jacqueline Reinhard Executive Director Jennifer Lowy Director of Marketing and Special Events Joel Bernor Assistant Clinical Coordinator Courtney Bollman Special Events Coordinator Kristina DeSantis Marketing Assistant Christine Dunn Patient Programs Coordinator Kayvan Freeman RN Patient Services Coordinator Cecelia Gallo Administrative Assistant Theresa Imperato RN Nurse Coordinator Adele Marano, LCSW Director of Patient Services Kate McNamee Development Assistant Beth Mohsinger Development Associate Debbie Schlossberg, LCSW Patient Services Coordinator, NJ Christopher Taormina Technology Specialist Antoinette Verdone Assistive Technology Specialist Ruth Wolcson Gift Coordinator Sue Zimmerman Patient Services Coordinator


ALS­NY Annual Report

Fall 07


The Milton Safenowitz Post-Doctoral Fellowship for ALS Research

In memory of her husband, who passed away in 1999, Greater New York Chapter board member, Marilyn Safenowitz established the Milton Safenowitz Post-Doctoral Fellowship for ALS Research, with a $1 million grant from the Milton and Marilyn Safenowitz Family Foundation. These grants encourage bright young investigators to enter the field of ALS. The ALS Association is especially committed to bringing new concepts and methods into ALS research, and young scientists play an important role in this process. The 2007 Milton Safenowitz Post Doctoral Fellowship Projects are:

Determining the Contribution of Mitochondrial Dysfunction in ALS Pathogenesis

Sandrine Da Cruz, Ph.D., working with Don Cleveland at the Ludwig Institute at the University of California, San Diego, will study the role in ALS of the mitochondria, the cellular power supplies that fuel all metabolic reactions, using genetically manipulated mice. Knowing how the mitochondria contribute in ALS will guide therapeutic efforts in the disease.

The ALS Association Announces 2007 Research Funding: New Efforts Promise Accelerated Progress

The ALS Association announces new projects that build on the most recent progress in understanding the disease process in order to devise effective treatment. Proposals include several approaches to find ALS biomarkers, molecules that specifically can report the onset, presence, and progression of the disorder to speed diagnosis, increase efficiency of clinical trials, and provide focused targets for developing new, effective therapies. Funding for these projects began August 1, 2007. The grants awarded include funding to researchers around the world. The ALS Association currently funds more than 20 international grants in more than 12 different countries. The criteria for funding are based on innovative, cutting-edge science regardless of the country in which it is produced. In some cases, studies abroad offer unique opportunities. This is the case with stem cell research as legal requirements to conduct this research vary widely from country to country. For genetics studies, some countries may offer particular population characteristics or

The Metabolome of the Cerebrospinal Fluid: Signature for ALS

Gurudutt Pendyala, Ph.D., working with Howard Fox, M.D., Ph.D., at The Scripps Research Institute, La Jolla, Calif., will seek to find a marker of the disease in the products of metabolism of the human body as well as in animal models for ALS. A reliable and reproducible set of metabolic biomarkers would allow faster diagnosis, streamlined clinical trials, and a window into the changes that could provide therapeutic targets.

Molecular Controls over Early Specification and Differentiation of Corticospinal Neurons (Upper Motor Neurons)

Caroline Rouaux, Ph.D., working with Paola Arlotta, Ph.D., Massachusetts General Hospital, will build on progress achieved with funding from The ALS Association in projects originating under the direction of Jeffrey Macklis, Ph.D., at Harvard. These investigators have found some of the control signals that guide stem cells in the developing brain to send their long extensions, called axons, down the spinal cord to connect to the lower motor neurons that contract muscles. The information should give important insights into stem cell therapy for ALS that could show a way to produce upper motor neurons to replace the dying ones.

Effect of Astrocytic Nrf2 Activation on the Onset and Progression of Motor Neuron Degeneration in an ALS-Animal Model

Marcelo Vargas, Ph.D., working with Jeffrey Johnson, Ph.D., at the University of Wisconsin, Madison, will examine the role of a defense system present in the cells that surround and aid the motor neurons. This experiment should define whether the Nrf2 system is a way to affect the disease process and therefore a promising avenue toward effective therapy.

The grants awarded include funding to researchers around the world. The ALS Association currently funds more than 20 international grants in more than 12 different countries.

cultural and socioeconomic factors. Ireland for instance provides a relatively homogeneous population with health information maintained in databases enabled by socialized medicine, a situation that is particularly useful for looking at likely risk factors for ALS.

Fall 07



Walk to D'feet ALS®

The 2007 Walk to D'Feet ALS© season was a great success for the Greater New York Chapter. The Chapter welcomed back metro sponsor, North Fork Bank, and media sponsor, Q104.3. The Chapter would also like to thank Duane Reade for joining us as a sponsor this year and raising awareness of the Walks.

Woodbridge Walk to D'Feet ALS© Saturday, May 5 Alvin P. Williams Memorial Park Chairs: Abby Anderson Number of Teams Registered: Over 60 Raised Over $148,740 Long Branch Walk to D'Feet ALS© Sunday, May 20 Seven Presidents Park Chair: Rebecca Adeskavitz Number of Teams Registered: Over 55 Raised Over $124,200 Saddle Brook Walk to D'Feet ALS© Sunday, June 3 Saddle River County Park Chair: Kim Single Number of Teams Registered: Over 80 Raised Over $151,795 Westchester Walk to D'Feet ALS© Sunday, June 11 Tibbetts Brook Park Chairs: Bill & Fran Monti and Donna & Mark Rubin Number of Teams Registered: Over 70 Raised Over $168,890

Pictured above: Team Pappas crosses the finish line at the Saddle Brook Walk to D'Feet ALS©. At left: Saddle Brook Walk Chair, Kim Single, receives an award from Chapter President, Dorine Gordon.

Long Island Walk to D'Feet ALS© Sunday, September 30 Eisenhower Park Chair: Lenny & Amy Katz Number of Teams Registered: Goal: $750,000

Data as of October 1, 2007

Deputy Commisioner of the Social Security Administration, Paul Doersam; Chapter President, Dorine Gordon; Board member, Peter Rosenberger; and Walk Chairs, Fran and Bill Monti and Donna and Mark Rubin cut the ribbon along with PALS at the Westchester Walk to D'Feet ALS©.



Fall 06

At left: a "Walking for" banner at the Long Branch Walk to D'Feet ALS©. Below: PALS, Lucy Wax and Arthur Borchert cross the starting line at the Long Branch Walk to D'Feet ALS©.

At left: Maire Deiana championed the North Fork Bank Fleetwood Branch's efforts in raising $6,001.25 by selling feet to customers for a minimum donation of $1.00. Maire was honored for her efforts at the 2007 Westchester Walk to D'Feet ALS© on June 10.

Pictured above: Woodbridge Walk Chair, Abby Anderson and mother, Marcia Anderson join Bob Sherry as he adds a photo of wife, Rosemarie Sherry, to a memorial tree at Alvin P Williams Memorial Park. . At right: Team Sully's Run won the creative team tee shirt contest at the Woodbridge Walk to D'Feet ALS©.

Fall 07



"Ask the Experts" Conference

The Greater New York Chapter hosts 3 "Ask the Experts" ALS Symposia annually in New Jersey, New York and Long Island, giving PALS and family members an opportunity to ask ALS researchers and specialists questions about current research and care topics for those living with ALS, as well as participate in a series of workshops on patient care.

Long Island

The Long Island Symposium featured researchers who participated in the Axon Dynamics Workshop, funded by the Chapter and held at Banbury Center, Cold Spring Harbor, NY. Speakers included Lucie Bruijn, PhD, Science Director and Vice President for the ALS Association; Erika L.F Holzbaur, PhD, Professor, . Department of Physiology, University of Pennsylvania School of Medicine; and Jonathan D. Glass, MD, Professor of Neurology, Director, ALS Center, Emory University School of Medicine. The Banbury workshop focused on the most recent progress in the complex fiber of nerve cells called the axon. The axon is what enables nerve cells to convert the electrical charge of their activation into a chemical message. For motor neurons, that conversion takes place as much as a meter away to contract muscle. This represents an extreme challenge for a single microscopic cell and is the very signal interrupted by the disease process in ALS. Participants look to the rapidly evolving knowledge of axon dynamics to see more clearly places where potential therapy might correct the effects of the disease process.

Left to right: Chapter Board Member, Rod Nichols; The ALS Association National Chair, Allen Finkelstein; Symposium Moderator, Stephen Sclesa, MD; and Presenters Tom Maniatis, PhD and Nicholas Maragakis, MD at the New York Symposium.

New Jersey

Presenters at the New Jersey Symposium included Nicholas J. Maragakis, MD, Assistant Professor, Department of Neurology, Johns Hopkins University; and Brian D. McCabe, PhD, Assistant Professor, Department of Physiology and Cellular Biophysics, Center for Neurology and Behavior, Center for Motor Neuron Biology and Disease, Columbia University. The moderator for the New Jersey Symposium was Jerry M. Belsh, MD, Director, The Robert Wood Johnson Neuromuscular & ALS Center; Chief, Division of Clinical Neurophysiology UMDNJ-Robert Wood Johnson Medical School.

Research experts answer questions from PALS and family members.

New York

Speakers at the New York Symposium included: Tom Maniatis, PhD, Thomas H. Lee professor of Molecular Cellular Biology, Harvard University; and Nicholas J. Maragakis, MD. Stephen Sclesa, MD, Director of the Neuromuscular Division and ALS Center, The Alan and Barbara Mirken Department of Neurology, Beth Israel Medical Center acted as moderator for the New York Symposium.

12 ALS­NY Fall 07

PALS, Norma Steck-Hess, Fern Cohen and Roberto Rosado listen to the ALS research presentations at the New York Symposium.

patient services

Quality Care at Our ALS Centers

Several studies within the last 10 years have shown that ALS patients who receive a wide range of care at a multidisciplinary clinic have an increased chance of living longer and have an improved mental outlook. Because ALS impacts physical and psychological functioning in numerous ways, a multidisciplinary team approach to care is the most well-planned and comprehensive approach offered to patients and families. People living with ALS (PALS) in the Greater New York and northern and central New Jersey area that seek expert, multi-disciplinary, patient-centered care need to look no further than the 3 Chapter sponsored clinics: Beth Israel ALS Center in Manhattan, the ALS Clinic at Stony Brook University Hospital in Long Island and Robert Wood Johnson ALS Center in New Jersey. All 3 centers are members of the North East ALS Consortium (NEALS), which takes advances in ALS research and translates them into clinical trials for patients as rapidly as possible. PALS, caregivers, and other support persons will find that our dedicated health care professionals provide all-encompassing support which is crucial when trying to organize and cope with the numerous challenges of ALS care. Geared toward helping patients live more productively and independently, the Centers provide a coordinated program of medical treatment, rehabilitation techniques and psychological support in a warm and compassionate environment. Comprehensive assessments, diagnostic and follow-up tests, education and treatment are individualized for each patient. Clinic visits, which are scheduled quarterly, consist of time spent with the neurologist, nurse, occupational and physical therapists, speech therapist, nutritionist, respiratory therapist, and social worker, who rotate through the patient's assigned private exam room. This "one stop shop" approach spares PALS the inconvenience of multiple visits. Medical expertise, prescriptions and referrals are only a phone call or email away for our center patients between visits. Additionally, our PALS have access to cutting edge research and may participate in clinical trials. Roundtrip transportation can be provided by the Greater New York Chapter Harold and Ruth Lopatin Transportation Program for PALS who qualify. For more information visit or contact Chris Dunn at 800-672-8857. For more information or to schedule an appointment, contact our Patient Services department at 800.672.8857 or one of the ALS centers listed below.


Where: Beth Israel Medical Center Phillips Ambulatory Care Center 10 Union Square East, Suite 2Q New York, NY 10003 When: Every Monday morning and every other Monday afternoon by appointment only Medical Director: Stephen Sclesa, MD Associate Director: Daniel MacGowan, MD How to schedule an appointment: Call Theresa Imperato, RN at 212.844.6188


Where: Robert Wood Johnson University Hospital and Medical School Clinical Academic Building 125 Paterson Street New Brunswick, NJ 08901 When: The second and fourth Wednesday of each month by appointment only Medical Director: Jerry Belsh, MD How to schedule an appointment: Call Joan Moore at RWJ 732.235.7341


Where: Stony Brook University Hospital 179 Belle Meade Road East Setauket, NY 11794 When: The second and fourth Thursday of each month by appointment only Medical Director: Rahman Pourmand, MD How to schedule an appointment: Call Theresa Imperato, RN, Department of Neurology at 631.444.2599

*ALS Association Certified Center of Excellence

Network of Clinical Investigators Stands Ready for ALS Trials

The ALS Association, through its TREAT ALS initiative, has put in place a partnership with the North East ALS Consortium (NEALS) to provide a network of clinical investigators that will be ready to test promising compounds in patients with ALS and provide opportunities for training of newer investigators to participate in clinical trials for ALS. Launched 2 years ago, TREAT ALS (Translational Research Advancing Therapy for ALS) is a drug discovery program and clinical trials process that accelerates discovery and testing of clinical candidates. The TREAT ALS/NEALS Clinical Trials Network will now expedite multi-center trials of compounds identified through the TREAT ALS program or any other compounds that appear to hold promise for ALS. The network will facilitate training of ALS centers including centers certified by The Association, and the existing trials network of NEALS will provide rapid translation of promising laboratory results into clinical trials. The ability to partner effectively with government, industry, and contract research organizations (CROs) is a key aspect of the TREAT ALS/NEALS Clinical Trials Network.

Fall 07 ALS­NY 13

"A Toast to Shelly" Event Honors PALS's Hole-in-One

On May 23, 2007 friends and family members of PALS, Shelly Smiles, gathered at Scarsdale Golf Club for "A Toast to Shelly," a benefit to raise ALS awareness. Shelly, who hit her second hole-in-one on October 9, 2006, received a letter from Professional Golfer Tom Watson acknowledging her accomplishment. The event, raised over $77,000 for patient services and research. The organizers of this event were Shelly Smiles (third from left) with co-chairs Dr. Stephen Smiles, Shelly's husband, along with Russell and Kathleen Falconer, Stephen and Judy Joynt, Richard and Judy Krain, and Paul and Lin Pruzan.

Students Give Back to Teacher by Giving to the Chapter

To honor Long Beach Catholic Regional School teacher, Pat Batus, whose mother has ALS, the school selected the ALS Chapter as the charity to benefit from a fundraising campaign led by Principal, Veronica Danca, and teacher, Cathy Tursi. The week-long activities brought in over $6,500. The top fundraisers were brothers, 4th grader, Teddy and 2nd grader, Kiernan Reinhard, whose grandfather, Theodore Reinhard, died of ALS. (No relation to Chapter Executive Director, Jackie Reinhard)

Ways to Give

Your generosity enables The ALS Association Greater New York Chapter to sustain our excellence in patient services and to fund innovative and cutting-edge research projects worldwide. It is only through gifts such as yours that we are able to provide services, free of charge, to people living with ALS in Greater New York and northern and central New Jersey. Checks: Please make checks payable to The ALS Association Greater New York Chapter Mail to: The ALS Association Greater New York Chapter 116 John Street, Suite 1304 New York, NY 10038

Credit Card: You may also make a credit card gift by calling 800.672.8857 or going online to Payroll Deductions: If your employer conducts an employee contribution program, please remember to designate The ALS Association Greater New York Chapter on your campaign form. The following are our employee payroll deduction codes: · State Employees Federated Appeal (SEFA) Code 51-1461 (State Campaign) · Combined Municipal Campaign (CMC) Code 1741 · Combined Federal Campaign (CFC) Code 56276 · United Way write in option: The ALS Association Greater New York Chapter Matching Gifts: Your company may have a matching gifts program, which can double or triple your contribution. Please contact your company's Human Resources department to inquire if your company is eligible.



Fall 07

in the community

10-Day Ride for Life

On May 6, Ride for Life, led by Chris Pendergast, gathered at Columbia University after a 10-day ride which started in Montauk, to raise support for ALS. Ride for Life has raised over $2 million for ALS since its first ride in 1998, contributing to the Chapter's Stony Brook clinic, other Chapter programs and research.

Patti's Drive for a Cure

On July 9, friends and family gathered in memory of Patti MatuszewskiSavage, at Water Gap Country Club in Delaware Gap, PA. Patti's Drive for a Cure raised $2,500 for ALS. In addition to a round of golf, Patti's Drive for a Cure included a raffle and auction.

Brooklyn Allstate Agency Donates $2,500 to the Chapter

In Recognition of ALS awareness month, the Steven Schneider Allstate Agency, donated $5.00 to the Chapter for every car insurance quote given during May 1st through June 19th 2007. The agency held a check presentation at its office, where Allstate Exclusive Agent, Steven Schneider, and Licensed Sales Producers, Christopher Scandaglia and Kim McFaline presented $2,500 to the Chapter. The Agency has raised $4,500 over a two-year period.

Tribute Gifts: Gifts to The ALS Association Greater New York Chapter provide a special opportunity to make a gift in memory of a friend or loved one. Gifts can be made to honor a special person or occasion. Appreciated Securities: Gifts such as stocks or bonds may offer substantial tax advantages. A full market value deduction is allowed provided the security has been held more than one year (long term capital gain property), otherwise the deduction is limited to the donor's adjusted tax basis. To transfer a gift of securities in the form of stocks and/or bonds, please contact Beth Mohsinger at 800.672.8857. Charitable Gift Annuities and Charitable Remainder Trusts: These planned gifts can provide a wide range of benefits to you, your loved ones, and The ALS Association Greater New York Chapter.

Bequests: By remembering The ALS Association Greater New York Chapter in your Will, you can have a significant impact on providing critical ALS patient services and innovative ALS research. If you have any questions about your gift or would like to discuss gift opportunities, please contact Beth Mohsinger at 800.672.8857, or by email at [email protected] As you consider any Charitable Gift Plan, please consult with your advisor to determine the tax/financial implications for you and your family. The ALS Association Greater New York Chapter is a taxexempt organization under Section 501(c)(3) of the Internal Revenue Code (Tax ID number 13-3616680).

Fall 07





THE ALS ASSOCIATION Greater New York Chapter

116 John Street, Suite 1304 New York, NY 10038-3301 For more information about The ALS Association Greater New york Chapter and its programs, visit

Non-Profit Org. US Postage PAID New York, NY Permit No. 7566

Leave a Legacy of Hope

Join The Lou Gehrig Legacy Society by including the ALS Association in your will or trust.

For more information, contact: The ALS Association Greater New York Chapter 1-800-672-8857



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