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Electronic Library for Congenital Heart Defect Registry 2012


A population-based study of cardiac malformations and outcomes associated with dextrocardia. Am J Cardiol. 2007 Jul 15;100(2):305-9. Epub 2007 May 25. PMID: 17631088 [PubMed - indexed for MEDLINE] Bohun CM, Potts JE, Casey BM, Sandor GG.

Adult survivors of pediatric illness: the impact on pediatric hospitals.

Goodman DM, Mendez E, Throop C, Ogata ES.


Pediatrics. 2002 Sep;110(3):583-9. PMID: 12205264 [PubMed - indexed for MEDLINE]


Analysis of outcomes for congenital cardiac disease: can we do better? Cardiol Young. 2007 Sep;17 Suppl 2:145-58. Review. PMID: 18039408 [PubMed - indexed for MEDLINE] Jacobs JP, Wernovsky G, Elliott MJ.

Behavioral Adjustment of Children with Surgically Palliated Complex Congenital

Frank A. Casey, Donald H. Sykes2, Brian G. Craig, Rosario Power, H. Connor Mulholland.


Heart Disease Journal of' Pediatnc Psychology, Vol. 21, No. 3. 1996, pp. 335-352

Caliber of quality-of-life assessments in congenital heart disease: a plea for more


conceptual and methodological rigor. Arch Pediatr Adolesc Med. 2004 Nov;158(11):1062-9. Review. PMID: 15520344 [PubMed - indexed for MEDLINE]

Moons P, Van Deyk K, Budts W, De Geest S.


Cardiovascular malformations among preterm infants. Pediatrics. 2005 Dec;116(6):e833-8. PMID: 16322141 [PubMed - indexed for MEDLINE]

Tanner K, Sabrine N, Wren C.


Changing practice of cardiac surgery in adult patients with congenital heart disease. Heart. 2005 Feb;91(2):207-12. PMID: 15657234 [PubMed - indexed for MEDLINE]

Srinathan SK, Bonser RS, Sethia B, Thorne SA, Brawn WJ, Barron DJ.


Congenital heart disease in the general population: changing prevalence and age distribution. Circulation. 2007 Jan 16;115(2):163-72. Epub 2007 Jan 8. PMID: 17210844 [PubMed - indexed for MEDLINE]

Marelli AJ, Mackie AS, Ionescu-Ittu R, Rahme E, Pilote L.


Delayed diagnosis of congenital heart disease worsens preoperative condition and outcome of surgery in neonates Heart 2006;92:1298­1302.

K L Brown, D A Ridout, A Hoskote, L Verhulst, M Ricci, C Bull


Factors associated with increased resource utilization for congenital heart disease. Pediatrics. 2005 Sep;116(3):689-95. PMID: 16140709 [PubMed - indexed for MEDLINE]

Connor JA, Gauvreau K, Jenkins KJ.


Fetal echocardiography and its evolving impact 1992 to 2002. Am J Cardiol. 2005 Jul 1;96(1):134-6. PMID: 15979452 [PubMed - indexed for MEDLINE Mohan UR, Kleinman CS, Kern JH.


Genetic epidemiology of cardiovascular malformation Progress in Pediatric Cardiology 20 (2005) 113 ­ 126

Angela E Lin, Holly H. Ardinger


Impact of anomalies other than congenital heart disease on the fetal cardiovascular system Progress in Pediatric Cardiology 22 (2006) 109 ­ 119

Jack Rychik


Inpatient health care use among adult survivors of chronic childhood illnesses in the United States. Arch Pediatr Adolesc Med. 2006 Oct;160(10):1054-60. PMID: 17018465 [PubMed - indexed for MEDLINE]

Okumura MJ, Campbell AD, Nasr SZ, Davis MM.


Geographical distribution of congenital heart defects in Saudi Arabia Ann Saudi Med 2005; 25(1): 63-69

W. Greer, PhD; A.L. Sandridge, MSc; M. AlMenieir, BSc; A. Al Rowais, MPH


The incidence of congenital heart disease J. Am. Coll. Cardiol. 2002;39;1890-1900

Julien I. E. Hoffman, and Samuel Kaplan


Patterns of Recurrence of Congenital Heart Disease An Analysis of 6,640 Consecutive Pregnancies Evaluated by Detailed Fetal Echocardiography J Am Coll Cardiol. 2003 Sep 3;42(5):923-9. PMID: 12957444 [PubMed - indexed for MEDLINE]

Harinder K. Gill, MSC, MRCP, Miranda Splitt, MD, MRCP, Gurleen K. Sharland, MD, FRCP, John M. Simpson, MD, MRCP


Report of the National Heart, Lung, and Blood Institute Working Group on Research in Adult Congenital Heart Disease Journal of the American College of Cardiology Vol. 47, No. 4, 2006

Roberta G. Williams, MD, FACC, Gail D. Pearson, MD, SCD, FACC, Robyn J. Barst, MD, FACC, John S. Child, MD, FACC, Pedro del Nido, MD,_ Welton M. Gersony, MD, FACC


Mode of Death in Adults With Congenital Heart Disease Am J Cardiol 2000; November 15, 2000 86:1111­1116

Erwin N. Oechslin, MD, David A. Harrison, MD, Michael S. Connelly, MBBS,Gary D. Webb, MD, and Samuel C. Siu, MD


Perinatal mortality and congenital anomalies in babies of women with type 1 or type 2 diabetes in England, Wales, and Northern Ireland: population based study BMJ 2006;333;177

Mary C M Macintosh, Kate M Fleming, Jaron A Bailey, Pat Doyle, Jo Modder, Dominique Acolet, Shona Golightly and Alison Miller


Consanguinity as a Risk Factor in Congenital Heart Disease in Saudi Arabia Journal of the Saudi Heart Association, Vol. 13, No. 3 Suzan M.Becker, PhD,MPH


Preterm Infants With Congenital Heart Disease and Bronchopulmonary Dysplasia: Postoperative Course and Outcome After Cardiac Surgery PEDIATRICS Vol. 116 No. 2 August 2005

Colin J. McMahon, MRCPI; Daniel J. Penny, MD; David P. Nelson, MD, PhD; Anne M. Ades, MD; Salim Al Maskary, MRCP; Michael Speer, MD; Julie Katkin, MD; E. Dean McKenzie, MD


Prevalence and development of additional cardiac abnormalities in 1448 patients with congenital ventricular septal defects Heart 2004;90:1321­1325.

S Glen, J Burns, P Bloomfield


Report of the Tennessee Task Force on Screening Newborn Infants for Critical Congenital Heart Disease. Pediatrics. 2006 Oct;118(4):e1250-6. PMID: 17015513 [PubMed - indexed for MEDLINE]

Liske MR, Greeley CS, Law DJ, Reich JD, Morrow WR, Baldwin HS, Graham TP, Strauss AW, Kavanaugh-McHugh AL, Walsh WF; Tennessee Task Force on Screening Newborn Infants for Critical Congenital Heart Disease.

Survival of children born with congenital anomalies

S Dastgiri, W H Gilmour, D H Stone


Arch Dis Child 2003;88:391­394

The contribution of complications to high resource utilization during congenital


heart surgery admissions. Congenit Heart Dis. 2007 Sep;2(5):319-26. PMID: 18377447 [PubMed - in process]

Benavidez OJ, Connor JA, Gauvreau K, Jenkins KJ.


Update from The International Working Group for Mapping and Coding of Nomenclatures for Paediatric and Congenital Heart Disease Cardiol Young 2004; 14: 225­229

Marie J. Béland, Rodney C. G. Franklin, Jeffrey P. Jacobs, Christo I. Tchervenkov, Vera D. Aiello,


Virtues of a worldwide congenital heart surgery database. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2002;5:126-31. PMID: 11994872 [PubMed - indexed for MEDLINE]

Mavroudis C, Gevitz M, Elliott MJ, Jacobs JP, Gold JP.


Long term results of percutaneous balloon valvoplasty of congenital aortic stenosis: independent predictors of outcome. Heart. 2004 Jan;90(1):70-6. PMID: 14676248 [PubMed - indexed for MEDLINE]

Reich O, Tax P, Marek J, Rázek V, Gilík J, Tomek V, Chaloupecký V, Bartáková H, Skovránek J.


Parents' understanding of their child's congenital heart disease. Heart. 2004 Apr;90(4):435-9. PMID: 15020523 [PubMed - indexed for MEDLINE]

Cheuk DK, Wong SM, Choi YP, Chau AK, Cheung YF.


Hypoplastic left heart syndrome: it is all in the genes. J Am Coll Cardiol. 2007 Oct 16;50(16):1596-7. Epub 2007 Oct 1. No abstract available. PMID: 17936160 [PubMed - indexed for MEDLINE] Grossfeld PD.


Hypoplastic left heart syndrome is heritable. J Am Coll Cardiol. 2007 Oct 16;50(16):1590-5. Epub 2007 Oct 1. PMID: 17936159 [PubMed - indexed for MEDLINE]

Hinton RB Jr, Martin LJ, Tabangin ME, Mazwi ML, Cripe LH, Benson DW.


Clinical Outcome of 193 Extracardiac Fontan Patients The First 15 Years J Am Coll Cardiol. 2006 47,(10)

Salvatore Giannico, MD, Fatma Hammad, MD, Antonio Amodeo, MD, Guido Michielon, MD


Electrophysiological characteristics of fetal atrioventricular block. J Am Coll Cardiol. 2008 Jan 1;51(1):77-84. PMID: 18174041 [PubMed - indexed for MEDLINE]

Zhao H, Cuneo BF, Strasburger JF, Huhta JC, Gotteiner NL, Wakai RT.


The adult with congenital heart disease: born to be bad? J Am Coll Cardiol. 2005 Jul 5;46(1):1-8. Review. PMID: 15992627 [PubMed - indexed for MEDLINE] Warnes CA.


Pediatric cardiology and congenital heart disease. J Am Coll Cardiol. 2005 Jun 7;45(11 Suppl B):9B-11B. Review. PMID: 15936642 [PubMed - indexed for MEDLINE]

Spray TL, Landzberg M.


Bicuspid aortic valve is heritable. J Am Coll Cardiol. 2004 Jul 7;44(1):138-43. PMID: 15234422 [PubMed - indexed for MEDLINE]

Cripe L, Andelfinger G, Martin LJ, Shooner K, Benson DW.


Device closure of muscular ventricular septal defects using the Amplatzer muscular ventricular septal defect occluder: immediate and mid-term results of a U.S. registry.J Am Coll Cardiol. 2004 Apr 7;43(7):1257-63. PMID: 15063439 [PubMed - indexed for MEDLINE] Holzer R, Balzer D, Cao QL, Lock K, Hijazi ZM;


Long-term outcome of patients with ventricular septal defect considered not to require surgical closure during childhood. J Am Coll Cardiol. 2002 Mar 20;39(6):1066-71. PMID: 11897452 [PubMed - indexed for MEDLINE]

Gabriel HM, Heger M, Innerhofer P, Zehetgruber M, Mundigler G, Wimmer M, Maurer G, Baumgartner H.


Outcome of children with fetal, neonatal or childhood diagnosis of isolated congenital atrioventricular block. A single institution's experience of 30 years. J Am Coll Cardiol. 2002 Jan 2;39(1):130-7. PMID: 11755298 [PubMed - indexed for MEDLINE] Jaeggi ET, Hamilton RM, Silverman ED, Zamora SA, Hornberger LK.



Congenital Heart Disease in Children Admitted to a University Hospital in Riyadh, Saudi Arabia. Journal of the Saudi Heart Association, Vol. 14, No. 2, May 2002






Clinical results and radiographic appearance of the Rashkind double umbrella device in patients with occlusion of the ductus arteriosus Pediatr Radiol (1997) 27: 936±941

Omar Galal, Walter von Sinner, Nawal Azhari, Fadel Al-Fadley, Michael de Moor, Jana BoÈ cker , Mohammed E. Fawzy, Zohair Al-Halees


First-Cousin Matings and Congenital Heart Disease in Saudi Arabia Community Genetics; 1999; 2, 2-3; ProQuest Medical Library pg.69

Susan Becker; Zohair Al Halees


The complexity of the psychosocial situation in children and adolescents with heart disease Acta Pædiatrica, 2005; 94: 1495­1501



Geographic variations in possible risk factors for severe cardiac malformations. Acta Paediatr. 2002;91(2):222-8. PMID: 11952013 [PubMed - indexed for MEDLINE]

Cedergren M, Selbing A, Källén B.

Report from the Executive of The International Working Group for Mapping and


Coding of Nomenclatures for Paediatric and Congenital Heart Disease Cardiol Young 2002; 12: 425­430

Marie J. Béland,1 Jeffrey P. Jacobs,3 Christo I. Tchervenkov,2 Rodney C. G. Franklin4


The Year in Congenital Heart Disease Vol. 47, No. 12, 2006 Journal of the American College of Cardiology

Thomas P. Graham, JR, MD, FACC, Nashville, Tennessee


Prepregnancy Obesity as a Risk Factor for Structural Birth Defects Arch Pediatr Adolesc Med. 2007;161(8):745-750.

D. Kim Waller, PhD; Gary M. Shaw, DrPH; Sonja A. Rasmussen, MD, MS; Charlotte A. Hobbs, MD, PhD; Mark A. Canfield, PhD; Anna-Maria Siega-Riz, PhD;M. Shayne Gallaway, MPH; Adolfo Correa, MD, MPH, PhD; for the National Birth Defects Prevention Study


Maternal Smoking and Congenital Heart Defects Pediatrics Vol. 121 No. 4 April 2008, pp. e810-e816

Sadia Malik, Mario A. Cleves, Margaret A. Honein, Paul A. Romitti, Lorenzo D. Botto, Shengping Yang, Charlotte A. Hobbs and and the National Birth Defects Prevention Study


Assisted reproductive technology and major structural birth defects in the United States Human Reproduction 2009 24(2):360-366; doi:10.1093/humrep/den387

J. Reefhuis1,3, M.A. Honein1, L.A. Schieve1, A. Correa1,C.A. Hobbs2, S.A. Rasmussen1 and the National Birth Defects Prevention Study Raluca Ionescu-Ittu, PhD candidate1, Ariane J Marelli, associate professor of medicine, director2,3, Andrew S Mackie, assistant professor of paediatrics4, Louise Pilote, professor of medicine, director2,5


Prevalence of severe congenital heart disease after folic acid fortification of grain products: time trend analysis in Quebec, Canada Published 12 May 2009, doi:10.1136/bmj.b1673 Cite this as: BMJ 2009;338:b1673


The intensive care of infants with hypoplastic left heart Syndrome Arch Dis Child Fetal Neonatal Ed 2005;90:F97­F102. doi: 10.1136/adc.2004.051276

U Theilen, L Shekerdemian


Brain maturation is delayed in infants with complex congenital heart Defects J Thorac Cardiovasc Surg. 2009 March; 137(3): 529­537. doi: 10.1016/j.jtcvs.2008.10.025.

Daniel J. Licht, MD,a David M. Shera, ScD,b Robert R. Clancy, MD,a Gil Wernovsky, MD,c Lisa M. Montenegro, MD,d Susan C. Nicolson, MD,d Robert A. Zimmerman, MD,e Thomas L. Spray, MD,f J. William Gaynor, MD,f and Arastoo Vossough, MDe


Two-Year Survival and Mental and Psychomotor Outcomes After the Norwood Procedure: An Analysis of the Modified Blalock-Taussig Shunt and Right Ventricle_to_Pulmonary Artery Shunt Surgical Eras 2008;118;1410-1418; originally published online Sep 15, 2008; Circulation

Joseph Atallah, Irina A. Dinu, Ari R. Joffe, Charlene M.T. Robertson, Reg S. Sauve, John D. Dyck, David B. Ross, Ivan M. Rebeyka and the Western Canadian Complex Pediatric Therapies Follow-Up Group


An Invitation to the Medical Students of the World to Join The Global Coalition to Improve Care for Children and Adults with Congenital Heart Disease Across the World Mcgill J Med. 2008 November; 11(2): 185­190.

Pierre-Luc Bernier, Noritaka Otal, Christo I. Tchervenkov, Jeffrey P. Jacobs, Giovanni Stellin,Hiromi Kurosawa, Constantine Mavroudis, Sertac Cicek, Zohair Al-Halees, Martin Elliott, Marcelo Jatene, Richard A. Jonas, Rob Kinsley, Christian Kreutzer, Juan Leon-Wyss, Jinfen Liu, Bohdan Maruszewski, Graham Nunn, Samuel Ramirez-Marroquin, Nestor Sandoval, Shunji Sano, George Sarris, Rajesh Sharma, Thomas Spray, Ross Ungerleider, Hervé Yangni-Angate, and Gerhard Ziemer


Prevalence and Correlates of Successful Transfer From Pediatric to Adult Health Care Among a Cohort of Young Adults With Complex Congenital Heart Defects DOI: 10.1542/peds.113.3.e197 2004;113;e197-e205 Pediatrics

Graham J. Reid, M. Jane Irvine, Brian W. McCrindle, Renee Sananes, Paul G. Ritvo, Samuel C. Siu and Gary D. Webb


Adult congenital heart disease: a 2008 overview British Medical Bulletin 2008; 85: 151­180

Elisabeth Be´dard1,2, Darryl F. Shore1,2, and Michael A. Gatzoulis1,2*


Delivery of care for adult patients with congenital heart disease in Europe: results from the Euro Heart Survey European Heart Journal (2006) 27, 1324­1330

Philip Moons1,2*, Peter Engelfriet3, Harald Kaemmerer4, Folkert J. Meijboom5, Erwin Oechslin6, and Barbara J.M. Mulder3 on behalf of the Expert Committee of Euro Heart Survey on Adult Congenital Heart Disease Harry Campbell1, Trevor Duke2, Martin Weber3, Mike English4, Susanne Carai3, Giorgio Tamburlini5, and Pediatric hospital improvement group*


Global initiatives for improving hospital care for children: state of the art and future prospects Pediatrics. 2008 April ; 121(4): e984­e992. doi:10.1542/peds.2007-1395.


Newborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis Health Technology Assessment 2005; Vol. 9: No. 44

R Knowles, I Griebsch, C Dezateux, J Brown,C Bull and C Wren


Maternal Homocysteine and Congenital Heart Defects J. Am. Coll. Cardiol. 2006;47;683-685; originally published online Jan 13, 2006

Charlotte A. Hobbs, Sadia Malik, Weizhi Zhao, S. Jill James, Stepan Melnyk, and Mario A. Cleves


Epidemiology of Noncomplex Left Ventricular Outflow Tract Obstruction Malformations (Aortic Valve Stenosis, Coarctation of the Aorta, Hypoplastic Left Heart Syndrome) in Texas, 1999 ­2001

Kim L. McBride, Lisa Marengo, Mark Canfield, Peter Langlois, David Fixler, and John W. Belmont


Causes of Death after Congenital Heart Surgery Ann Thorac Surg 2007;83:1438-1445

Marsha Ma, MDa, Kimberlee Gauvreau, ScDb, Catherine K. Allan, MDb, John E. Mayer, Jr, MDc, Kathy J. Jenkins, MD, MPHb,*


Congenital heart defects: 15 years of experience of the Emilia-Romagna Registry European Journal of Epidemiology; 2003; 18, 8; ProQuest Medical Library pg. 773

E. Calzolari; G. Garani; G. Cocchi; C. Magnani; F. Rivieri; A. Neville; G. As...


Conditions Leading to Pediatric Cardiology Consultation in a Tertiary Academic Hospital 2004;114;e409-e417 Pediatrics

Robert L. Geggel, MD


Caring for adults with congenital cardiac disease: successes and challenges for 2007 and beyond Cardiol Young 2007; 17(Suppl. 2): 87­96

Joseph A. Dearani,1 Heidi M. Connolly, Richard Martinez, Hector Fontanet, Gary D. Webb


Improving safety for children with cardiac disease Cardiol Young 2007; 17(Suppl. 2): 127­132

Ravi R. Thiagarajan, Geoffrey L. Bird, Karen Harrington, John R. Charpie, Richard C. Ohye, Ravi R. Thiagarajan,1 Geoffrey L. Bird, Karen Harrington, John R. Charpie, Richard C. Ohye,


Is there still a role for cardiac autopsy in 2007? Cardiol Young 2007; 17(Suppl. 2): 97­103

Vera Demarchi Aiello, Diane Debich-Spicer, Robert H. Anderson


The nomenclature, definition and classification of cardiac structures in the setting of heterotaxy Cardiol Young 2007; 17(Suppl. 2): 1­28

Jeffrey P. Jacobs, Robert H. Anderson, Paul M. Weinberg, Henry L. Walters III, Christo I. Tchervenkov, Danny Del Duca, Rodney C. G. Franklin, Vera D. Aiello, Marie J. Be´land, Steven D. Colan, J. William Gaynor, Otto N. Krogmann, Hiromi Kurosawa, Bohdan Maruszewski, Giovanni Stellin, Martin J. Elliott


Neoaortic Bicuspid Valve in Arterial Switch Operation: Mid-Term Follow-Up Ann Thorac Surg 2008;85:179-184

Shahid M. Khan, Ahmad Bin Sallehuddin, Ziad R. Al-Bulbul and Zohair Y. Al-Halees


The improvement of care for paediatric and congenital cardiac disease across the World: a challenge for the World Society for Pediatric and Congenital Heart Surgery Cardiol Young 2008; 18(Suppl. 2): 63­69

Christo . Tchervenkov, Jeffrey Phillip Jacobs, Pierre-Luc Bernier, Giovanni Stellin, Hiromi Kurosawa,Constantine Mavroudis, Richard A. Jonas, Sertac M. Cicek, Zohair Al-Halees, Martin J. Elliott,Marcelo B. Jatene, Robin H. Kinsley, Christian Kreutzer, Juan Leon-Wyss, Jinfen Liu, Bohdan Maruszewski,Graham R. Nunn, Samuel Ramirez-Marroquin, Nestor Sandoval, Shunji Sano, George E. Sarris, Rajesh Sharma, Ayman Shoeb, Thomas L. Spray,Ross M. Ungerleider, Herve´ YangniAngate, Gerhard Ziemer Bahaaldin Alsoufi, Ahmed Sallehuddin, Ziad Bulbul, Mansour Joufan, Fareed Khouqeer, Charles C. Canver, Avedis Kalloghlian , Zohair Al-Halees


Surgical Strategy to Establish a Dual-Coronary System for the Management of Anomalous Left Coronary Artery Origin From the Pulmonary Artery Ann Thorac Surg 2008;86:170-176


Results of Left Atrioventricular Valve Reoperations Following Previous Repair of Atrioventricular Septal Defects

Bahaaldin Alsoufi, M.D., Zohair Al-Halees, M.D., Fareed Khouqeer, M.D., Charles C.Canver, M.D., Ghassan Siblini, M.D., Elias Saad, M.D., and Ahmed Sallehuddin, M.D. Bahaaldin Alsoufi, Abid Awan, Ahmad AlOmrani, Mamdouh Al-Ahmadi, Charles C. Canver, Ziad Bulbul, Avedis Kalloghlian and Zohair Al-Halees


The Rastelli Procedure for Transposition of the Great Arteries: Resection of the Infundibular Septum Diminishes Recurrent Left Ventricular Outflow Tract Obstruction Risk Ann Thorac Surg 2009;88:137-143


Hypoplastic left heart syndrome: consensus and controversies in 2007 Cardiol Young 2007; 17(Suppl. 2): 75­86

Gil Wernovsky, Nancy Ghanayem, Richard G. Ohye, Emile A. Bacha, Jeffrey P. Jacobs, J. William Gaynor, Sarah Tabbutt


Impact of Telemedicine on the Practice of Pediatric Cardiology in Community Hospitals 2002;109;e3 Pediatrics

Craig A. Sable, Susan D. Cummings, Gail D. Pearson, Lorraine M. Schratz, Russell C.Cross, Eric S. Quivers, Harish Rudra and Gerard R. Martin


The Ross Procedure is the procedure of choice for congenital aortic valve disease Journal of Thoracic and Cardiovascular Surgery 2002; 123, (3): 437-442

Zohair Al-Halees, MD,FRCSC, Frans Pieters,MD, Fatima Qadoura, MD, Maie Shahid, MD, Mohammed Al-Amri, MD, Fadel Al-Fadley, MD


Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease ­ the perspective of anaesthesia Cardiol Young 2008; 18(Suppl. 2): 124­129

David F. Vener,1 Jeffrey P. Jacobs,2 Ehrenfried Schindler,3 Bohdan Maruszewski,4 Dean Andropoulos


Cardiac complications associated with the treatment of patients with congenital cardiac disease: consensus definitions from the Multi-Societal Database Committee for Pediatric and Congenital Heart Disease Cardiol Young 2008; 18(Suppl. 2): 196­201

Emile Antoine Bacha,1 David Cooper,2 Ravi Thiagarajan,3 Rodney C.G. Franklin,4 Otto Krogmann,5 Barbara Deal,6 Constantine Mavroudis,7 Avinash Shukla,8 Thomas Yeh Jr,9 Paul Barach,10 David Wessel,11 Giovanni Stellin,12 Steven D. Colan13


Analysis of regional congenital cardiac surgical outcomes in Florida using The Society of Thoracic Surgeons Congenital Heart Surgery Database Cardiol Young 2009; 19: 360­369

Jeffrey P. Jacobs,1 James A. Quintessenza,1 Redmond P. Burke,2 Mark S. Bleiweis,3 Barry J. Byrne,3 Eric L. Ceithaml,3 William M. DeCampli,2 Jorge M. Giroud,1 Richard A. Perryman,4 Eliot R. Rosenkranz,5 Grace Wolff,5 Vicki Posner,6 Sue Steverson,6 William B. Blanchard,7 Gerry L. Schiebler


Introduction ­ Databases and the assessment of complications associated with the treatment of patients with congenital cardiac disease Cardiol Young 2008; 18(Suppl. 2): 1­37

Jeffrey P. Jacobs


Qualitative research: what it is and what it can contribute to cardiology in the young Cardiol Young 2009; 19: 131­134

Alexander M. Clark


The nomenclature of safety and quality of care for patients with congenital cardiac disease: a report of the Society of Thoracic Surgeons Congenital Database Taskforce Subcommittee on Patient Safety Cardiol Young 2008; 18(Suppl. 2): 81­91

Jeffrey Phillip Jacobs, Oscar J. Benavidez, Emile A. Bacha, Henry L. Walters III, Marshall Lewis Jacobs


Nomenclature for congenital and paediatric cardiac disease: Historical perspectives and The International Pediatric and Congenital Cardiac Code Cardiol Young 2008; 18(Suppl. 2): 70­80

Rodney C.G. Franklin, Jeffrey Phillip Jacobs, Otto N. Krogmann, Marie J. Be´land, Vera D. Aiello, Steven D. Colan, Martin J. Elliott, J. William Gaynor, Hiromi Kurosawa, Bohdan Maruszewski, Giovanni Stellin, Christo I. Tchervenkov, Henry L. Walters III, Paul Weinberg, Robert H. Anderson


The assessment of complexity in congenital cardiac surgery based on objective data Cardiol Young 2008; 18(Suppl. 2): 169­176

David R. Clarke, Francois Lacour-Gayet, Jeffrey Phillip Jacobs, Marshall L. Jacobs, Bohdan Maruszewski, Christian Pizarro, Fred H. Edwards, Constantine Mavroudis


Nomenclature and databases for the surgical treatment of congenital cardiac disease ­ an updated primer and an analysis of opportunities for improvement Cardiol Young 2008; 18(Suppl. 2): 38­62

Jeffrey Phillip Jacobs, Marshall Lewis Jacobs, Constantine Mavroudis, Carl Lewis Backer, Francois G. Lacour-Gayet, Christo I. Tchervenkov, Rodney C. G. Franklin, Marie J. Be´land, Kathy J. Jenkins, Hal Walters III, Emile A. Bacha, Bohdan Maruszewski, Hiromi Kurosawa, David Robinson Clarke, J. William Gaynor, Thomas L. Spray, Giovanni Stellin, Tjark Ebels, Otto N. Krogmann, Vera D. Aiello, Steven D. Colan, Paul Weinberg, Jorge M. Giroud, Allen Everett, Gil Wernovsky, Martin J. Elliott, Fred H. Edwards


Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease ­the perspective of cardiology Cardiol Young 2008; 18(Suppl. 2): 116­123

Kathy J. Jenkins, Robert H. Beekman III, Lisa J. Bergersen, Allen D. Everett, Thomas J. Forbes, Rodney C. G. Franklin, Thomas S. Klitzner, Otto N. Krogman, Gerard R. Martin, Catherine L. Webb


Is ``Treat your child normally'' helpful advice for parents of survivors of treatment of hypoplastic left heart syndrome? Cardiol Young 2009; 19: 135­144

Gwen R. Rempel, Margaret J. Harrison, Deanna L. Williamson


Association Between Congenital Heart Defects and Small for Gestational Age Pediatrics 2007;119;e976-e982;

Sadia Malik, Mario A. Cleves, Weizhi Zhao, Adolfo Correa, Charlotte A. Hobbs and the National Birth Defects Prevention Study


The World Society for Pediatric and Congenital Heart Surgery: Its Mission and History Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2009:3-7.

Tchervenkov CI, Stellin G, Kurosawa H, Jacobs JP, Mavroudis C, Bernier PL, Maruszewski B, Kreutzer C, Cicek S, Kinsley RH, Nunn GR, Jonas RA.

93 94

Recurrence of Congenital Heart Defects in Families

Trends in congenital heart disease in Dallas County births. 1971-1984

DE Fixler, P Pastor, M Chamberlin, E Sigman and CW Eifler

95 96

Late Outcomes in Patients with Surgically Treated Congenital Heart Disease

Late Results and Quality of Life After Pediatric Cardiac Surgery in Finland


A Cluster of Hypoplastic Left Heart Malformation in Baltimore, Maryland

K.S. Kuehl,1 C.A. Loffredo2, 1Department of Cardiology, Children's National Medical Center, 111 Michigan Avenue, N.W., Washington, DC 20010,USA. 2Department of Oncology, Georgetown University, 3800 Reservoir Rd NW, Washington, DC 20007, USA


Electrocardiographic risk stratification in families with congenital long QT syndrome European Heart Journal (2006) 27, 2074­2080

Gerold Mo¨nnig1,2*, Lars Eckardt1,2, Horst Wedekind1,2, Wilhelm Haverkamp1,2{, Joachim Gerss3, Peter Milberg1,2, Kristina Wasmer1, Paulus Kirchhof1,2, Gerd Assmann2, Gu¨nter Breithardt1,2, and Eric Schulze-Bahr1,2


The Pattern of Down Syndrome among Children in Qatar: A Population-Based Study Birth Defects Research (Part A) 76:609­612 (2006)

Atqah Abdul Wahab,1 Abdulbari Bener,2,3* Amy L. Sandridge,4 and Georg F. Hoffmann5

100 scenario Rev Bras Cir Cardiovasc vol.22 no.4 São José do Rio Preto Oct./Dec.


Is the RACHS-1 (Risk adjustment in congenital heart surgery) a useful tool in our

Rachel Vilela de Abreu Haickel NinaI; Mônica Elinor Alves GamaII; Alcione Miranda dos SantosIII; Vinícius José da Silva NinaIV; José Albuquerque de Figueiredo NetoV; Vinícius Giuliano Gonçalves MendesVI; Zeni Carvalho LamyVII; Luciane Maria de Oliveira BritoVIII

101 Successful repair of pulmonary atresia with ventricular septal defect without the

use of a conduit: a new surgical option. Report of two cases

Zohair Al-Halees, Omar Galal, and Neil Wilson. Department of Cardiovascular Diseases, King Faisal Specialist Hospital and Research Centre Riyadh, Saudi Arabia


Results after mitral valve replacement with mechanical prostheses in young children

Bahaaldin Alsoufi, Cedric Manlhiot, Brian W. McCrindle, Zohair Al-Halees, Ahmed Sallehuddin, Saud Al-Oufi, Elias Saad, Bahaa Fadel and Charles C. Canver J Thorac Cardiovasc Surg 2010;139:1189-1196


Results of Left Atrioventricular Valve Reoperations Following Previous Repair of Atrioventricular Septal Defects

Bahaaldin Alsoufi, M.D., Zohair Al-Halees, M.D., Fareed Khouqeer, M.D., Charles C. M.D., Ghassan Siblini, M.D., Elias Saad, M.D., and Ahmed Sallehuddin, M.D. King Faisal Heart Institute, King Faisal Specialist Hospital and Research Center, Riyadh, Saudi Arabia

104 Following Triple Valve Surgery

Determinants of Short- and Long-Term Outcomes

Bahaa M. Fadel1, Bahaaldin Alsoufi1, Cedric Manlhiot2, Brian W. McCrindle2, Ghassan Siblini1, Zohair Al-Halees1, Aly Al Sanei1, Charles C. Canver1 1King Faisal Heart Institute, King Faisal Specialist Hospital and Research Center, Riyadh, Saudi Arabia, 2Labatt Famil Heart Center, The Hospital for Sick Children and the University of Toronto, Toronto, Ontario, Canada


Hybrid Management Strategy for Percutaneous Fontan Completion Without Surgery: Early Results

Bahaaldin Alsoufi, Fadel Alfadley, Ahmad Al-Omrani, Abid Awan, Mamdouh AlAhmadi, Majid Al-Fayyadh, Zohair Al-Halees and Charles C. Canver. Ann Thorac Surg 2011;91:566-573


Intermediate results following complex biventricular repair of left ventricular outflow tract obstruction in neonates and infants

Bahaaldin Alsoufi, Zohair Al-Halees, Cedric Manlhiot, Abid Awan, Mamdouh Al-Ahmadi, Brian W. McCrindle, Mansoor Al-Joufan and Charles C. Canver. Eur J Cardiothorac Surg 2010;38:431-438

107 Mechanical valves versus the Ross procedure for aortic valve

replacement in children: Propensity-adjusted comparison of long-term outcomes

Bahaaldin Alsoufi, MD,a Zohair Al-Halees, MD,a Cedric Manlhiot, BSc,b Brian W. McCrindle, MD, MPH,b Mamdouh Al-Ahmadi, MD,a Ahmed Sallehuddin, MD,a Charles C. Canver, MD,a Ziad Bulbul, MD,a Mansoor Joufan, MD,a and Bahaa Fadel, MD

108 Older children at the time of the Norwood operation have ongoing mortality

vulnerability that continues after cavopulmonary connection

Bahaaldin Alsoufi, Cedric Manlhiot, Mamdouh Al-Ahmadi, Zohair Al-Halees, Brian W. McCrindle, Ahmed Yehia Mousa, Yasser Al-Heraish and Avedis Kalloghlian. J Thorac Cardiovasc Surg 2011;142:142-1472

109 Infundibular Septum Diminishes Recurrent Left Ventricular Outflow Tract

Obstruction Risk

The Rastelli Procedure for Transposition of the Great Arteries: Resection of the

Bahaaldin Alsoufi, Abid Awan, Ahmad AlOmrani, Mamdouh Al-Ahmadi, Charles C. Canver, Ziad Bulbul, Avedis Kalloghlian and Zohair Al-Halees. Ann Thorac Surg 2009;88:137-143

110 Total correction of transposition of great arteries with atrioventricular septal


Naresh Kumar, Ganga Prabhakar, Neil Wilson, Zohair Al Halees and Carlos M.G. Duran. Ann Thorac Surg 1992;54:989-990

111 The Fontan patient: inconsistencies in medication therapy across seven pediatric

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Anderson PA, Breitbart RE, McCrindle BW, Sleeper LA, Atz AM, Hsu DT, Lu M, Margossian R, Williams RV Pediatr Cardiol. Department of Pediatrics, Duke University Medical Center, Durham, NC, USA2010 Nov;31(8):1219-28. Epub 2010 Oct 12

112 Prognosis of Fontan procedure outcome: are all selection criteria known?

Bockeria LA, Podzolkov VP, Chiaureli MR, Zelenikin MM Bakoulev Center, Rublevskoe sch. 135, 121552 Moscow, Russia. Interact Cardiovasc Thorac Surg. 2010 Nov;11(5):683-4.

113 The Clinical Course and Incidence of Supraventricular Tachyarrhythmias After

Extra-Cardiac Conduit Fontan Procedures in Relation to an Atrial Situs

Aya Miyazaki, MD; Heima Sakaguchi, MD; Hideo Ohuchi, MD;Osamu Yamada, MD; Masataka Kitano, MD; Satoshi Yazaki, MD;Hisashi Sugiyama, MD; Ken-ichi Kurosaki, MD; Koji Kagisaki, MD;Toshikatsu Yagihara, MD; Etsuko Tsuda, MD

114 Left Heart Syndrome: Current Strategies and Outcomes

Hybrid Palliation for Neonates With Hypoplastic

Osami Honjo, MD and Christopher A. Caldarone, MD Division of Cardiovascular Surgery, Hospital for Sick Children, Toronto, Ontario, Canada


The hypoplastic left heart syndrome is not a risk factor for Fontan operation

Artur Henrique de SOUZA1,Luciana da FONSECA1,Sônia Meiken FRANCHI2,Alessandro Cavalcante LIANZA3, José Francisco BAUMGRATZ1, José Pedro da SILVA4 Rev Bras Cir Cardiovasc 2010; 25(4): 506509

116 Review Article: Fontan Operation

MELETIOS A. KANAKIS1, ANDREAS C. PETROPOULOS2, FOTIOS A. MITROPOULOS3 1Center for Experimental Surgery, Biomedical Research Foundation, Academy of Athens, 2Department of Pediatric Cardiology and Congenital Heart Diseases, Athens Medical Center, 3Pediatric and Congenital Heart Surgery Department, Onassis Cardiac Surgery Center


Absent pulmonary valve, imperforate tricuspid valve, and dysplastic right ventricle CardioVasc Thorac Surg 2010;11:798-799; originally published online Sep 28,2008

Yuki Nakamura, Mitsuru Aoki, Noboru Yamamoto and Tadashi Fujiwara Interact

118 Pattern of craniofacial anomalies seen in a tertiary care hospital in Saudi Arabia

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Aljohar Aziza, Ravichandran Kandasamy, and Subhani Shazia

119 Heart Malformations in Children With Down Syndrome

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Jesús de Rubens Figueroaa, Blanca del Pozzo Magañaa, José L Pablos Hacha, Claudia CalderónJiméneza and Rocío Castrejón Urbinaa, aInstituto Nacional de Pediatría. México, D.F. México.

120 Risk Factors Predisposing To Congenital Heart Defects 121 Assessing The Influence Of Consanguinity On Congenital Heart Disease


Consanguinity Mapping of Congenital Heart Disease in a South Indian Population

Tracy L. McGregor1, Amit Misri2, Jackie Bartlett3, Guilherme Orabona1, Richard D. Friedman1, David Sexton3, Sunita Maheshwari2, Thomas M. Morgan1,3

123 Consanguineous Marriage and Congenital

Heart Defects: A Case-Control Study in the Neonatal Period American Journal of Medical Genetics Part A 140A:1524­1530 (2006)

Yunis Khalid,1* Mumtaz Ghina,1 Bitar Fadi,1 Chamseddine Fadi,1 Kassar May,1 Rashkidi Joseph,2 Ghaith Makhoul,3 Tamim Hala,4 and For the National Collaborative Perinatal Neonatal Network (NCPNN)


Familial Recurrence of Heart Defects in Subjects with Congenitally Corrected Transposition of the Great Arteries American Journal of Medical Genetics 137A:176­180 (2005)

Gerardo Piacentini,1 M. Cristina Digilio,2 Rossella Capolino,2 Andrea De Zorzi,2 Alessandra Toscano,2 Anna Sarkozy,1 Rita D'Agostino,1 Maurizio Marasini,3 M. Giovanna Russo,4 Bruno Dallapiccola,1 and Bruno Marino1*

125 European Heart Journal (2010) 31, 1220­1229

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Carianne L. Verheugt1,2,3, Cuno S.P.M. Uiterwaal1, Enno T. van der Velde4, Folkert J. Meijboom5, Petronella G. Pieper6, Arie P.J. van Dijk7, HubertW. Vliegen4, Diederick E. Grobbee1, and Barbara J.M. Mulder2,3,8*

126 Clinical Profile Of Children With Down Syndrome Treated In a Genetics

Outpatient Service In The Southeast Of Brazil Rev Assoc Med Bras 2009; 55(5): 547-52

127 Gender and Outcome in Adult Congenital Heart Disease

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Carianne L. Verheugt, Cuno S.P.M. Uiterwaal, Enno T. van der Velde, Folkert J. Meijboom, Petronella G. Pieper, Hubert W. Vliegen, Arie P.J. van Dijk, Berto J. Bouma, Diederick E. Grobbee and Barbara J.M. Mulder

128 Long-QT Syndrome After Age 40

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Ilan Goldenberg, Arthur J. Moss, James Bradley, Slava Polonsky, Derick R. Peterson, Scott, McNitt, Wojciech Zareba, Mark L. Andrews, Jennifer L. Robinson, Michael J. Ackerman, Jesaia Benhorin, Elizabeth S. Kaufman, Emanuela H. Locati, Carlo Napolitano, Silvia G. Priori, Ming Qi, Peter J. Schwartz, Jeffrey A. Towbin, G. Michael Vincent and Li Zhang

129 Circulation. 2003;108:857-862; originally published online August 4, 2003;

Quality of Life of Children After Repair of Transposition of the Great Arteries

Erin L. Culbert, David A. Ashburn, Geraldine Cullen-Dean, Jay A. Joseph, William G. Williams, Eugene H. Blackstone, Brian W. McCrindle and the Congenital Heart Surgeons Society

130 Neurodevelopmental Outcome of Infants Supported With Extracorporeal

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Shannon E. G. Hamrick, David B. Gremmels, Corinne A. Keet, Carol H. Leonard, J. Kelly Connell, Samuel Hawgood and Robert E. Piecuch

131 Trisomy 18 In Kuwait



133 Atrioventricular septal defect characteristics in infants

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134 Cross-sectional study of congenital heart disease among Tibetan

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CHEN Qiu-hong, WANG Xiao-qin and QI Sheng-gui.

135 Psychological functioning and health-related quality of life (HRQoL)

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Miri Cohen a, Mansoor Daniela b,c, Sergey Yalonetsky b, Roni Gagin c, Avraham Lorber b,d,*

136 Infl uence of Consanguinity on the Pattern of Familial Aggregation of Congenital

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Mohamed A. Seliem Issam H. Bou-Holaigah Nouriya Al-Sannaa

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139 Outcome of Norwood and Damus-Kaye-Stansel Procedures for Univentricular

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140 Estimation of Modified Concordance Ratio in Sib-Pairs: Effect of Consanguinity

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Mohamed M. Shoukri, Allan Donner, Nadia Abdalla Dessouky, Shazia Subhani, Mansour Al-Joufan, Ahmed Al-Omrani, Futwan Al-Mohanna, Zohair Y. Al Halees, King Faisal Specialist Hospital and Research Center Riaydh. The International Journal of Biostatistics

141 Prevalence of Congenital Heart Defects in Newborns

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