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16 Oakland Avenue Needham, MA 02492-3150 www.alstherapyalliance.org

Barry Winovich

When Barry was diagnosed [with ALS], he was told to start living or start dying ­ he chose to live.

Barry Winovich, a father of three from Cleveland, OH, was working for a mortgage insurance company when he was diagnosed with ALS in 2006. "I did not know anyone with ALS, when I was first diagnosed. Now it amazes me how many people I know that have been touched by someone with ALS." Ironically, his best friend from childhood, Treg Charlton, was diagnosed in 2010 with the same debilitating disease and now the friends are co-chairing the ALS Therapy Alliance 2011 Researching a Cure fundraising campaign together.

Barry founded the Bright Side of the Road Foundation to support ALS research, raise funds and support other organizations that educate patients, families, caregivers and the general public about ALS.

"My kids have had to grow up way too fast," Barry explained about how the disease has impacted his family. "My 9-year-old really only knows me with ALS, and my 14-year-old misses playing catch with me." His brother, Bobby, said the disease has caused Barry's body to melt like a candle around him, and all they can do is watch it happen. Bobby explained that when Barry was diagnosed, he was told to start living or start dying ­ he chose to live, and that positive attitude has made a big difference. Barry founded the Bright Side of the Road Foundation to support ALS research, raise funds and support other organizations that educate patients, families, caregivers and the general public about ALS. Barry's goal was to raise $1.5 million over five years through fundraising events like concerts and guest bartending events, and the Foundation has already donated over $1.25 million to ALS research. He encourages other ALS patients to try to do something positive with ALS, which will make them feel better, and to remember "there's always someone worse off than you are." But, while he believes that a positive attitude is important, he also reminds them that they're "allowed to have bad days." Barry also embraces today's technology, saying he doesn't know what he'd do without the Internet ­ and even Facebook ­ to connect with others. For more information about Barry, and the other 2011 Researching a Cure fundraising campaign co-spokespeople, visit www.ALSTherapyAlliance.org.

- Barry Winovich

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My kids have had to grow up way too fast," Barry explained about how the disease has impacted his family. "My 9-year-old really only knows me with ALS, and my 14-year-old misses playing catch with me.

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