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CTSA Annual Informatics Meeting Agenda Natcher Conference Center Auditorium, NIH Campus Wednesday October 12

7:00 AM ­ 8:00 AM New CTSA Awardees Intro Session (Light refreshments provided) Moderated by Bernard LaSalle, University of Utah Room E

Group Meetings 8:00 AM ­ 12:00 PM Research Networking SOA (Service Oriented Architecture) Omics Education Resource Representation Lunch on your own (Cafeteria) Room A Room G Room C Room B Room C

9:00 AM ­ 10:00 AM 10:00 AM ­ 12:00 PM

12:00 PM

CTSA Annual Informatics Meeting Agenda Natcher Conference Center Auditorium, NIH Campus Wednesday October 12

1:00 PM Opening Session ­ CTSA Informatics Key Function Committee Year in Review Michael Kahn,University of Colorado (Denver)

The Impact of Informatics' Influence on Translational Research Moderated by Paul Harris,Vanderbilt University 1:30 PM Novel Methods for Measuring Impact of Informatics Tools Paul Harris,Vanderbilt University Patterns of Search: Analyzing and Modeling User Behavior in a Scientific Professional Network (WorkWeb) Chunhua Weng,Columbia University PROMPTR: Progress Reporting and Outcomes Measurement to Promote Translational Research Elizabeth Wood,Weill Cornell Medical College A Logic Model and Metrics for Evaluation of the Biomedical Informatics Component of the Arkansas Translational Research Institute William Hogan,University of Arkansas for Medical Sciences Panel Discussion Break ­ Networking and Posters Demo Session 1

1:45 PM

2:00 PM

2:15 PM

2:30 PM 3:00 PM 3:30 PM

Room TBD TimeFlow - iPads in clinical research: time-motion and secure offline data collection Warren Kibbe,Northwestern University Room TBD eagle-i: development and expansion of a scientific resource discovery network Douglas MacFadden,Harvard University Room TBD The ITHS Central Database: A Customer Relationship Management System for CTSAs Jim Piper,University of Washington 4:10 PM 4:20 PM Move to next Demo session Demo Session 2

Room TBD Electronic Capture and Management of Informed Consent for Research Aziz Boxwala,University of California,San Diego Room TBD HUBzero Frameworks for Institutional and Project Scale Information Management William Barnett, Indiana University School of Medicine Room TBD Harvard Catalyst Profiles: Research networking, bibliometric analysis, and social network analysis based on linked open data and VIVO ontology Griffin Weber,Harvard University 5 ­ 7 PM Poster Session and Reception

CTSA Annual Informatics Meeting Agenda Natcher Conference Center Auditorium, NIH Campus Thursday, October 13

Introduction ­ The Upcoming Year in CTSA Informatics Eta Berner, The University of Alabama at Birmingham 8:00 AM Opening Remarks Eta Berner, University of Alabama at Birmingham Update on PI Steering Committee Activities Julian Solway, University of Chicago, IKFC PI Liaison CTSCC Overview Paul Harris, Vanderbilt University CTSA IKFC Town Hall meeting Moderator: Eta Berner, University of Alabama at Birmingham

8:05 AM

8:15 AM

8:25 AM

Data Repositories 1 Moderated by Philip Payne, Ohio State University 9:00 AM Integrating Electronic Health Record (EHR) and Community Information System (CIS) Data to Support Population Research and Practice Brian Dixon, Indiana University School of Medicine WICER: Building a Community-Centered Translational Research Infrastructure with Electronic Data Adam Wilcox, Columbia University The Analytic Information Warehouse: a Platform Supporting Comparative Studies of EHR Data Andrew Post, Emory University Explorys - A New Paradigm in Integrated Data Repositories: Overview and Case Study David Kaelber, Case Western Reserve University Panel Discussion Break ­ Networking and Posters Demo Session 3

9:15 AM

9:30 AM

9:45 AM

10:00 AM 10:30 AM 11:00 AM

Room TBD Demonstration of the i2b2-based Health Outcome Monitoring and Evaluation (HOME) Cell William Adams, Boston University Room TBD G-CODE: Enabling systems medicine through innovative informatics Subha Madhavan, Georgetown University with Howard University Integrating Research Networking Tools with Broader Social Networking Products to Create an Improved Environment for Accelerating Science Eric Meeks, University of California, San Francisco A Research Participant Tracking System that Supports Business Process through System Integration Robert Gehrke, Mayo Clinic

Room TBD

Room TBD

CTSA Annual Informatics Meeting Agenda Natcher Conference Center Auditorium, NIH Campus Thursday, October 13 (Cont.)

11:40 AM 12:40 PM Room TBD LUNCH (pre-ordered) and Posters Demo Session 4 Enhancing Collaborative Science using Shared Query Tagging/Searching Plugins for the i2b2 web client ­ the WO_Apps Rajani Sadasivam, University of Massachusetts Medical School, Worcester The Human Studies Database (HSDB) Project Ida Sim, University of California,San Francisco

Room TBD

Room TBD Building Robust Research Capabilities through Integrating Clinical Study, Patient, and Biospecimen Data Repositories Leslie McIntosh, Washington University 1:20 PM Move to Auditorium

Data Repositories 2 Moderated by Nick Anderson, University of Washington 1:30 PM TruData: Computing Truth Through Real-World Transactions Curtis Cole, Weill Cornell Medical College Plumbing and Politics: A Governance and Operating Model for the Northwestern Medical Enterprise Data Warehouse Andrew Winter, Northwestern University A retrospective research model enabled by an open-source integrated research data repository Gregory Hruby, Columbia University Panel Discussion BREAK ­ Networking and Posters

1:45 PM

2:00 PM

2:15 PM 2:45 PM

Role of Informatics in T1 Research and Drug Development Moderated by Jessie Tenenbaum, Duke University 3:15 PM Harvest: An Open--Source Biomedical Data Integration and Discovery Platform Jeffrey Pennington, Children's Hospital of Philadelphia Using Electronic Health Records to Identify Cohorts for Drug-Induced Thrombocytopenia, Neutropenia and Liver Injury Jyotishman Pathak, Mayo Clinic Panel Discussion Closing Remarks Nick Anderson, University of Washington Adjourn

3:30 PM

3:45 PM 4:15 PM

4:30 PM

Podium Presentations CTSA Informatics Annual Meeting

# 1 2 Title Novel Methods for Measuring Impact of Informatics Tools Patterns of Search: Analyzing and Modeling User Behavior in a Scientific Professional Network (WorkWeb) PROMPTR: Progress Reporting and Outcomes Measurement to Promote Translational Research A Logic Model and Metrics for Evaluation of the Biomedical Informatics Component of the Arkansas Translational Research Institute Integrating Electronic Health Record (EHR) and Community Information System (CIS) Data to Support Population Research and Practice WICER: Building a Community-Centered Translational Research Infrastructure with Electronic Data The Analytic Information Warehouse: a Platform Supporting Comparative Studies of EHR Data Explorys - A New Paradigm in Integrated Data Repositories: Overview and Case Study TruData: Computing Truth Through RealWorld Transactions Plumbing and Politics: A Governance and Operating Model for the Northwestern Medical Enterprise Data Warehouse A retrospective research model enabled by an open-source integrated research data repository Harvest: An Open-Source Biomedical Data Integration and Discovery Platform Using Electronic Health Records to Identify Cohorts for Drug-Induced Thrombocytopenia, Neutropenia and Liver Injury Presenter Paul Harris Chunhua Weng Institution Vanderbilt University Columbia University

3

Elizabeth Wood

Weill Cornell Medical College University of Arkansas

4

William Hogan

5

Brian Dixon

Indiana University

6

Adam Wilcox

Columbia University

7

Andrew Post

Emory University

8 9 10

David Kaelber Curtis Cole Andrew Winter

Case Western Reserve University Weill Cornell Medical College Northwestern University Columbia University

11

Greg Hruby

12 13

Jeffrey Pennington Jyotishman Pathak

Children's Hospital Of Philadelphia Mayo Clinic

Demonstrations CTSA Informatics Annual Meeting

# 14 15 16 17 18 19 Title TimeFlow - iPads in clinical research: timemotion and secure offline data collection eagle-i: development and expansion of a scientific resource discovery network The ITHS Central Database: A Customer Relationship Management System for CTSAs The Human Studies Database (HSDB) Project Electronic Capture and Management of Informed Consent for Research Harvard Catalyst Profiles: Research networking, bibliometric analysis, and social network analysis based on linked open data and VIVO ontology Demonstration of the i2b2-based Health Outcome Monitoring and Evaluation (HOME) Cell G-CODE: Enabling systems medicine through innovative informatics Integrating Research Networking Tools with Broader Social Networking Products to Create an Improved Environment for Accelerating Science A Research Participant Tracking System that Supports Business Process through System Integration Enhancing Collaborative Science Using Shared Query Tagging/Searching Plugins for the i2b2 Web Client: The WO_Apps HUBzero Frameworks for Institutional and Project Scale Information Management Building Robust Research Capabilities through Integrating Clinical Study, Patient, and Biospecimen Data Repositories Presenter Warren Kibbe Doug MacFadden Jim Piper Ida Sim Aziz Boxwala Griffin Weber Institution Northwestern University Harvard University University of Washington University of California, San Francisco University of California, San Diego Harvard University

20

William Adams

Boston University

21 22

Subha Madhavan Eric Meeks

Georgetown University University of California, San Francisco

23

Robert Gehrke

Mayo Clinic

24

Rajani Sadasivam

University of Massachusetts Indiana University Washington University

25 26

William Barnett Leslie McIntosh

Poster Presentations CTSA Informatics Annual Meeting

# 27 28 Title VIVO: A Tool for Collaboration and Research Discovery Case Studies and Meaningful Research Use of the Shared Health Research Informatics Network (SHRINE) Omics Data Standards Working Group: update on activities DIRECT2Experts ­ Distributed Interoperable Research Experts Collaboration Tool Use-case Driven Development of a Federated Research Data Warehouse Cross CTSA Institutions Cohort Discovery Approach Exploration of Two Approaches for Determination of Recipients of Targeted Communication in a Scientific Collaborative Network (WorkWeb) Improving Robustness and Automating Workflow of the Resource Discovery System with iBIOFind An Informatics Course Based on the CTSA Informatics Competencies Finding Collaborators: Towards Interactive Tools for Research Social Networks REDCap Goes to the Rodeo TIESSPIRiT Collaborative Tissue Network A System Architecture for Federating Standardized Clinical Brain Images Across Hospitals Ranking CTSA Labs: Metrics for Biomedical Resource Identification, Utilization and Impact Assessment Modeling Electronic Tools to Improve Source Document Verification Audits Engaging campus biobanks in the selection of an enterprise-wide biobanking informatics platform Secondary Data Reuse in Comparative Effectiveness Research: A Model Framework and Proof of Concept Maintaining Cohort Discovery coded content with the LE Access Portal (LEAP) i2b2 at the University of Michigan: Cohort discovery and beyond . . . Presenter Kristi Holmes Andrew McMurry Institution Washington University Harvard University

29 30 31 32 33

Jessie Tenenbaum Griffin Weber Monika Ahuja Adil Alaoui Suzanne Bakken

Duke University Harvard University University of Iowa Georgetown University Columbia University

34

Michael Baldonieri

University of Pittsburgh

35 36 37 38 39

Eta Berner Charles Borromeo Linda Carlin Girish Chavan Ann Chervenak

University of Alabama at Birmingham University of Pittsburgh University of Colorado Denver University of Pittsburgh University of Southern California University of Pittsburgh

40

Jeff Cromwell

41 42

Stephany Duda Helena Ellis

Vanderbilt University Duke University

43

Dan Fort

Columbia University

44 45

Davera Gabriel Stephen Gendler

University of California, Davis University of Michigan

Poster Presentations (Cont.) CTSA Informatics Annual Meeting

# 46 47 48 Title Identifying duplicate clinical records using administrative and clinical data Achieving Clinical Research Management System (CRMS) Adoption Through Coordinated Changes to Clinical Research and Billing Practice Presenter Withdrawn Susan Guerrero Diana Gumas Institution University of Texas, Houston Johns Hopkins University

49 50

51 52 53 54

55

56

57

58 59 60 61 62 63 64

Withdrawn An Open-source Informatics Management William Hogan System and Community for the National Children's Study Identifying and Assessing the Impact of Kristi Holmes Biomedical Research Informatics Education: Partnerships and Kristi Holmes Opportunities Informatics and Community Engagement: Denise Hynes Collaboration Efforts at UIC eNOTIS - an open source participant tracking Warren Kibbe system used to enhance patient safety and compliance and Registrar, an integrated registry management system NCS Navigator MDES Warehouse - a Warren Kibbe pragmatic approach to building a semantic data warehouse from semi-parsable, mandated data elements FacultyConnect - connecting faculty with Warren Kibbe award opportunities and tracking interest, follow-through, and outcomes LatticeGrid - an open source tool assessing Warren Kibbe collaboration patterns and tracking interest, follow-through, and outcomes A Paradigm Shift: Electronic Health Records Ketan Mane Data in Clinical Practice Towards Integrated Solutions for Virtual Drug Jarek Meller Screening Central Indiana Innovation Network (CI-Net) Michael Murray ResearchIQ: Semantic Search for the Philip Payne Research Community StudySearch: A Tool For Connecting Potential Philip Payne Participants with Locally Recruiting Studies High-throughput Informatics Infrastructure for Susanne Ragg Biorepositories Large-scale Analytics for In Silico Study of Joel Saltz Brain Tumors using High-resolution Digital Pathology

University of Arkansas

Washington University Washington University University of Illinois at Chicago Northwestern University

Northwestern University

Northwestern University Northwestern University University of North Carolina University of Cincinnati Indiana University Ohio State University Ohio State University Indiana University Emory University

Poster Presentations (Cont.) CTSA Informatics Annual Meeting

# 65 Title Integration of drug classification information with EMR data in the utCRIS Data Warehouse for adverse drug event association analysis DV Docs: Generating CVs and NIH Biosketches from VIVO Data Enabling Research Through Technology: Leveraging Enterprise Data Stores in Support of Cohort Generation and Facilitated Subject Recruitment Integration of Clinical Data for an ICU Registry A Collaborative Support Model for InvestigatorInitiated Data Management A Web-based Tool for Cataloging Primary Care Electronic Medical Record Federated Data: FInDiT Warehousing of Trials Data for Data Submission and Reporting Budgeting Issues and Solutions for a Clinical Research in an Academic Health Center Towards and Oncology Database (ONCOD), a Case Study Using Data Warehousing Technology A Machine Learning Based Approach for Retrieval and Organization of Translational Research Articles A Method for Standardized Patient Reported Outcome Data Collection at the Point of Care Using a MeSHbased Index to Demonstrate the Multidisciplinary Propensity of KL2 Scholars Presenter Richard Scheuermann Institution University of Texas Southwestern University of Pittsburgh Duke University

66 67

Linda Schmandt Howard Shang

68 69 70

John Sharp Denise Snyder Kari Stephens

Case Western Reserve University Duke University University of Washington University of Arkansas University of Arkansas University of Chicago

71 72 73

Shariq Tariq Umit Topaloglu Xiaoming Wang

74

Firas Wehbe

Vanderbilt University

75 76

James Willig GQ Zhang

University of Alabama at Birmingham Case Western Reserve University

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